Isla's Law: End Dangerous Delays in Paediatric Care


Isla's Law: End Dangerous Delays in Paediatric Care
The Issue
In memory of my cousin Isla Sneddon, a vibrant young girl who tragically lost her life at the age of 17, we are advocating for critical changes to Scotland's paediatric health legislation.
Isla's journey began at the age of 15 when she was repeatedly referred and downgraded in her medical assessments. By the time a definitive diagnosis of cancer was made, it was too late, and her family was given the heartbreaking news that she had only months to live.
Her passing has left a deep void in her family's life, and we strongly believe that if her medical condition had been treated with the same urgency as an adult's, she might still be with us today.
Scotland currently holds the grim title of having the highest mortality rate per capita for children under 18 across Europe. This alarming statistic underscores a critical failure in our healthcare system. Currently, children's medical cases are not given the same attention and urgency as adult medical cases. This disparity stems from an assumption that children inherently have better health outcomes. However, the reality is that children and adults face similar risks, and their medical conditions can be equally severe.
We propose a paradigm shift in the way children's medical conditions are approached in Scotland. Serious paediatric symptoms must be treated with the same urgency and access to diagnostics as adult cases, particularly when cancer is a possible diagnosis. By adopting this approach, we increase the chances of early detection and potentially life-saving interventions.
This is not just a matter of healthcare; it is a moral obligation to ensure equitable treatment for all, regardless of age. All children deserve an equal chance at life, and changing the legislative framework is a crucial step in this direction.
We are calling on the Scottish Government and NHS Scotland to introduce mandatory clinical standards that:
- Ensure urgent paediatric referrals are subject to the same maximum wait times as adult cancer referrals.
- Require clear accountability and follow-up where a referral is downgraded or delayed.
- Fund training and guidelines to help GPs and clinicians recognise and escalate signs of cancer in children without delay.
We also ask for a formal review into paediatric diagnostic delays in Scotland, to identify systemic failures and implement change.
Isla’s story is a stark reminder of what is at stake, and by taking action now, we can prevent other families from experiencing similar heartbreak.
Please join us in urging the Scottish Government to enact these vital changes. Sign this petition to ensure that every child receives the attention and care they so richly deserve.
42,727
The Issue
In memory of my cousin Isla Sneddon, a vibrant young girl who tragically lost her life at the age of 17, we are advocating for critical changes to Scotland's paediatric health legislation.
Isla's journey began at the age of 15 when she was repeatedly referred and downgraded in her medical assessments. By the time a definitive diagnosis of cancer was made, it was too late, and her family was given the heartbreaking news that she had only months to live.
Her passing has left a deep void in her family's life, and we strongly believe that if her medical condition had been treated with the same urgency as an adult's, she might still be with us today.
Scotland currently holds the grim title of having the highest mortality rate per capita for children under 18 across Europe. This alarming statistic underscores a critical failure in our healthcare system. Currently, children's medical cases are not given the same attention and urgency as adult medical cases. This disparity stems from an assumption that children inherently have better health outcomes. However, the reality is that children and adults face similar risks, and their medical conditions can be equally severe.
We propose a paradigm shift in the way children's medical conditions are approached in Scotland. Serious paediatric symptoms must be treated with the same urgency and access to diagnostics as adult cases, particularly when cancer is a possible diagnosis. By adopting this approach, we increase the chances of early detection and potentially life-saving interventions.
This is not just a matter of healthcare; it is a moral obligation to ensure equitable treatment for all, regardless of age. All children deserve an equal chance at life, and changing the legislative framework is a crucial step in this direction.
We are calling on the Scottish Government and NHS Scotland to introduce mandatory clinical standards that:
- Ensure urgent paediatric referrals are subject to the same maximum wait times as adult cancer referrals.
- Require clear accountability and follow-up where a referral is downgraded or delayed.
- Fund training and guidelines to help GPs and clinicians recognise and escalate signs of cancer in children without delay.
We also ask for a formal review into paediatric diagnostic delays in Scotland, to identify systemic failures and implement change.
Isla’s story is a stark reminder of what is at stake, and by taking action now, we can prevent other families from experiencing similar heartbreak.
Please join us in urging the Scottish Government to enact these vital changes. Sign this petition to ensure that every child receives the attention and care they so richly deserve.
42,727
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Petition created on 15 May 2025