Confirmed victory
Petitioning Representative Alan Grayson and 3 others

Authorize a single case contract with Dr. Sugarbaker / Washington Hospital Center so I can have my lifesaving surgery


My name is Holly Freuler. I am a 35 year old married mother of 2. I have a very rare form of cancer: Multicystic Peritoneal Mesothelioma. Only 130 cases have been reported worldwide.  

I was first treated for this cancer back in June of 2012. Unfortunately, my most recent CT scan indicated a recurrence of my disease.   

This type of disease requires a specialized surgery (Cytoreductive Surgery with Hyperthermic Intraperitoneal Chemotherapy (HIPEC). No doctor within my insurance network has ever treated a case like this before and no doctor performs the surgery necessary to save my life: Cytoreductive Surgery with HIPEC (open perfusion). My local surgeon who is considered, "in network" recognizes this fact and is also recommending I have surgery with Dr. Sugarbaker in Washington, D.C. He has stated that, "No one here can cure what you have. You need to go to Dr. Sugarbaker."  

Cytoreductive surgery with Hyperthermic Peritoneal Chemotherapy (HIPEC) is the standard treatment for my disease. There is NO alternative curative treatment. It is approved by the FDA and my surgeon has a 90% survival rate at 5 years (well above the rest).  

 
In 2012, my health insurer, Florida Hospital/FHHS, authorized the surgery with the same surgeon/hospital I am requesting now after I created a Change.org petition. Now, I need FHHS to authorize this treatment and sign a single case contract with Dr. Sugarbaker/Washington Hospital Center again. Since they have set a precedent of treatment and clearly agreed with the points I raised in my appeal in 2012, I hope they will authorize this treatment once again.   
 
My surgeon's office has been attempting to obtain authorization in a timely manner prior to my surgery date of February 26th, 2014. Unfortunately, they have been given incorrect fax numbers, claims of numerous lost received faxes, and other roadblocks preventing us from receiving the authorization.

I am proud to have been a Florida Hospital employee for 3 years. I've been a registered nurse for over 10 years.  Through my work not only as a registered nurse but also in Information Technology, I strive to provide the best solutions for our patients. It's time for Florida Hospital to "extend the healing ministry of Christ" to one of their own employees: Me. They can do this by signing a single case contract to let me have my life saving surgery to cure me of cancer. 

Please sign my petition and help me once again to convince Florida Hospital Healthcare System to give me the same chance at beating cancer as they did in 2012.
Letter to
Representative Alan Grayson
Senator Bill Nelson
Senator Marco Rubio
and 1 other
Florida Hospital/FHHS
Florida Hospital (FHHS), Adventist Health System
I urge Florida Hospital Healthcare System (FHHS), part of Florida Hospital and Adventist Health to sign a single case contract with Dr. Paul Sugarbaker of Washington Hospital Center. There is no doctor who performs this surgery in my insurance network; therefore my surgeon and myself should not be penalized.

Florida Hospital is one of the best hospitals in the world who employs the best staff. I know this because I am a staff member myself. However, being the best also means knowing when you cannot give a patient what they need, and allowing them to seek treatment where it is given.