Aggiornamento sulla petizioneKeytruda on PBS (Pharmaceutical Benefits Scheme) for Mesothelioma and other rare less common cancers (RLC). Keytruda life saving drug!Mavis Nye's Keytruda/Mesothelioma journey in United Kingdom.

Lou (Louise) WilliamsAustralia
26 ott 2015
I am 74 years old and never thought I would see another Christmas and yet here I am coming up to my 6th. I was diagnosed in 2009 with Pleural Mesothelioma after 48 yrs from exposure. I had washed my husband's clothes when a bride of 19 and Ray worked as a shipwright in Chatham Dockyard. I was given the news of three months to live and told to go home and sort my affairs out.
But after a pleurodesis and then the treatment of Cisplatin and Alimta (the standard treatment in the UK) which after shrinkage gave me 15 months but then a scan showed the onward growth of tumours.
I was then offered the NGR-hTNF trial at Maidstone, this clinical trial acts on the tumours blood vessels which I’m afraid didn’t work for me or I had a placebo. So two sessions of Cisplatin and Alimta, I became allergic but it did work and we had stability again for a few months but then growth was found by a next scan. What would I like next as there are no new trials or Chemotherapy? I’m not used to a doctor having no answers.
I emailed Saint Bartholomew Hospital and that Friday I was in an appointment where the Doctor offered me the last place on the ADAM Trial, but it would mean another Bi-op and then I might not even be suitable I had tried on an earlier occasion and failed so I couldn’t see why Arginen would be found now.
He threw me a life line of GemCarbo chemotherapy and I could have that locally. Back to Canterbury and I was on chemotherapy again until September.
The October scan was bad news...the chemotherapy hadn't worked. A scan every three months was showing the growth of three millimetres every three months.
I asked to be referred to the Royal Marsden in Surrey where I knew a trial of Immunotherapy with the drug, Pembrolizaumab was being started. MK3475 Now known under the popular name of Keytruda. And I was placed in the 2 year trial.
Every 2 weeks and 10mg/kg and although out of 4 Mesothelioma patients I am the only one remaining and doing well the other three are still alive at this point. It is thought the drug slows the disease at the point of stopping the drug. So you still survive a bit longer.
The results have excited Medical team at the Royal Marsden and the whole of the UK as my Shrinkage has been ground breaking at 81% with 3 marker tumours untraceable now .
22 cancers were in the trial and the other cancers have had good results.
We call Keytruda the wonder drug and to us Mesothelioma Patients it is the first sign of hope!
Copia il link
WhatsApp
Facebook
X
E-mail