Ensure equitable treatment for Duchenne muscular dystrophy

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The Issue

Duchenne Muscular Dystrophy (DMD) is a severe genetic disorder that primarily affects boys, leading to progressive muscle degeneration and weakness. Globally, it affects approximately 1 in every 3,500 to 5,000 male births, but receives far less attention, research funding, and treatment options than more common diseases. This lack of resources leaves many families, like mine, facing an uncertain future for their loved ones.

In my own family, we have faced the heart-wrenching loss of my elder nephew, Krish Garg, who tragically passed away on November 30th, 2025, due to this debilitating disease. My younger nephew, Lakshay Garg, is currently battling the same condition and relies on BiPAP oxygen therapy to assist his breathing. This reality is shared by countless others who suffer without adequate attention from healthcare systems and policymakers.

There is an urgent need for increased research funding, public awareness campaigns, and the development of accessible and effective treatments. Patients and families deserve access to state-of-the-art therapies and the hope of a better future. The National Institutes of Health (NIH) and related governmental bodies must allocate more resources to combat this devastating disease, ensuring a fair chance at life and health for all those affected.

We call on policymakers, researchers, healthcare professionals, and pharmaceutical companies to prioritize DMD. By fostering a collaborative approach towards treatment development and support, we can work towards a world where DMD no longer dictates the life expectancy and quality of life of those affected.

Please join us in this critical effort to advocate for those who cannot do so alone. Your signature will help push for more funding, research, and ultimately, a cure for Duchenne Muscular Dystrophy. Sign this petition to be a voice for change and hope for all affected individuals and families.

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Rekha GargPetition Starter

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