For years, many #ParentAdvocates, including myself have fought to give a voice to those who cannot advocate for themselves. Parents, carers, and advocates have taken on the burden of attending conferences, discussions, and consultations—ensuring that the opinions and needs of their family are heard, even when they cannot be present. 

However, the truth is, this fight is exhausting. It is a fight for #justice, for #access, and for the rights of all who are unable to fight for themselves. This is a collective struggle—necessary, and together, we have the power to create change. ✊🏻

The alternative to fighting, is to agree that your new NDIS Plan is inadequate, does not meet your needs, but you will have to accept this and live life more difficulty because fighting for your rights is too complicated, the process is too hard, and the situation has become too overwhelming.

The NDIS is broken. How is it that #Autism is deemed not disabled enough to access reasonable and necessary supports required? When families push themselves to their limits, doing everything they can to ensure their loved ones continue to receive the services they need, why does it take a collapse under pressure just for individuals to access supports that should be well within their right in a #holistic healthcare setting where all components of care are considered and included? Why must we be on the verge of #breakdown and #burnout in the fight to be seen and heard by a system that is supposed to care for the most vulnerable and in need?

This is a fight for #equality. This is a fight for capacity building. This is a fight for a future where #Neurodiverse individuals, people living with #Autism, co-morbidities associated, and other disabilities have the best shot at leading independent lives—just like their neurotypical peers, or people living without disability. 

After years of advocating, learning, liaising, and framing every request in the bureaucratic, legalistic language demanded, which is always changing face through continued #legislative shifts that legal teams are admittedly struggling to follow, this fight is almost too much.

Our voices count. We are necessary, and together, we can empower ✊🏻

✋🏻 Why is this fight so damn hard?
👂🏻 Why are we still not being heard?
📢 Why does our voice not matter?
👩‍👦 How do you fragment a person and segment their care in a way that undermines #HolisticHealthcare needs for a person?

#AskingForTheNDIS 💡

I add my voice today—loud and clear—calling for justice for families like mine who are caught in the system’s failures. We are not "not disabled enough." We are fighting for what is rightfully ours.

I am rallying behind the Administrative Review Tribunal #AAT #ART across Perth, Western Australia and Australia, nationally, and all the other advocates in this legal battle that never should have existed in the first place. But we can’t do it alone. We must force a further review to examine these failings and hear the voices that are lot been listened to. Will you help us in our fight?

Many families have fought tirelessly to protect the rights of their children, as essential services face the risk of being stripped away. These are services supported by strong evidentiary backing—services that provide capacity building and support that is beyond what any parent or carer could provide alone. Many of these families also live with multiple children with these differing needs, and the parent(s) with a neurodiverse diagnosis of their own, due to the highly hereditary nature of the neurological condition(s).

These services offer purpose, meaning, and a sense of acceptance. They not only foster friendships but also empower individuals to become better friends and gain a deeper understanding of themselves in relation to their peers. Despite the undeniable positive impact, these services are often dismissed as not providing 'value for money' or considered 'reasonable and necessary' under current frameworks.

We need your support. The NDIS must be held accountable. Every child deserves a voice. Every family deserves support. Every person living with #disability should have access to the supports they deem as #ReasonableAndNecessary in their lives to #empower and enable them to live their best possible life, their way.

👉 Please sign this petition. Add your voice to the fight. Demand the change we need. Let’s #FixNDIS and give all NDIS participants — regardless of their disability—a fighting chance to access the supports they want, their way.

#JusticeForAll #EndNDISFailings #SupportAutismFamilies #TheNDISIsBroken #ThisIsAdvocacy #ThisIsExhaustion #ThisIsBeyondParentalCapacity #ThisNotOkay #TheKidsArentAlright #AutismIsALifelongDiagnosis #ReasonableAndNecessary #ParentAdvocatesUnite #WeMustBeHeard #FightingForThoseWhoCant