Absolutely disgusted. We haven't even issued a judicial review as we were trying to resolve this amicably. But an absolute disgrace. 

Eight months later and still we have no one able to feed amd medicate Ellie apart from me. It means Ellie has to starve or not have meds if I have to go somewhere that she cannot come or she has to go everywhere with me. 

The result of this is the impact on my family...

My daughter should be sitting her A levels but instead is sitting in a psych ward for past 6 weeks unable to function and can't come home as we wouldn't be able to support her as no support suitable in place for Ellie. 

My 79 year old mum and dad have been down helping as we have to sleep beside Ellie every night to stop her from making herself sick and choking in ber sleep. This has been for past 3 months. Do they care..  nope.

I haven't been able to leave Ellies sigh for more than an hour at a time as who else will feed her. I've to attend hospital apts for Kayla and it means Ellie has to forgo meds and feed till I get back or my dad has to go down and stay meaning his life is put on hold. 

All because of a stupid outdated policy that the trust themselves openly state they have no other service to replace it.

They're wondering why the NHS is in the state it is when we have trust officials that don't check clarity or wven read emails correctly. 

Absolutely fuming 

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