On 4/12/25, my 19-year-old daughter, Hannah, tragically passed away due to SUDEP - sudden unexpected death in epilepsy. She was diagnosed with epilepsy in 02/2023, and we, like so many other families, were assured by medical professionals that her condition was under control, and that she could lead a normal life. We were painfully mistaken. Like us, countless parents across the USA are unaware of SUDEP, its risks and how to manage these dangers.
Hannah was the best daughter I could ever ask for, despite all her struggles she never gave up or chose the easy way. She was 4 weeks away from finishing her freshman year at GMU. She loves reading and writing short stories. 

SUDEP takes the lives of about 1 in 1,000 people with epilepsy each year, according to the Epilepsy Foundation. These numbers are actually in a rise. Tragically, a significant part of this is due to a lack of awareness and lack of education provided to parents and caregivers regarding the potential risks associated with epilepsy, including SUDEP. 
In fact, SUDEP takes more lives in the USA than SIDS, but we usually talk about SIDS whenever we have a new born.
We are, therefore, seeking government intervention in enforcing a law that ensures every parent and caregiver who encounters a new diagnosis of epilepsy is adequately informed about the condition, the potential dangers including SUDEP, and regular checks on how we manage these risks.

Learning about diabetes is compulsory, we believe educating about epilepsy and SUDEP should equally be. Help us in our demand to ensure no other parent has to go through the pain and trauma of losing a loved one to SUDEP. Please sign this petition to enforce a law that mandates education on SUDEP for parents and caregivers of those diagnosed with epilepsy.