Oct 20, 2022

It is becoming increasingly apparent that the UK current Government does not want to collect data on Myalgic Encephalomyelitis.

Not only do they not want to centrally collect and collate data on harms caused to chronically sick people (including M.E) by non-pharmaceutical 'treatments' - as is the aim of this petition. They are also not collecting data on how many cases of M.E have been caused by COVID19 (Question asked by Vicky Foxcroft MP on my behalf).

At least 6 research studies have now shown that 42 - 59% of Long COVID cases meet the diagnostic criteria for M.E, yet the Department of Health and Social Care and NICE continue to deal with them as separate issues. Possibly so DHSC can offer 'cost effective' GET/CBT to Long COVID patients in future. This is why we need cases counted and acknowledged to prevent harm to M.E patients sick as a result of COVID19.

This is a very hard battle but one that I am continuing to fight.

Thank you to all who have supported so far.

Sally

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