Hi,

Firstly Happy New Year! Wishing you all good (better) health for the year ahead.

As a person living with M.E and Long Covid I forced myself to take the past few weeks off to 'recharge', unfortunately, I have gone through yet another (suspected) bout of covid so my plan didn't quite pan out!

But time away from work has given me head space to get my thoughts in order and plan for the year ahead. Those plans include this petition and wider 'Shake It UP Campaign' (If you live in the UK could you also email your MP re. this issue? Please do get involved in the wider campaign if you are a UK resident).

As I stated before Christmas, when we reach 7500 signatures (we currently have 7420) I will be sending the comments to the Secretary of State for Health and Social Care Sajid Javid MP and NHS England CEO Amanda Pritchard. They need to see the need through the words of those affected by these 'treatments'.

The narrative that non-pharmaceutical 'treatments' do not, and cannot, harm patients is simply untrue.

UK residents - If you have personally been harmed by GET and/or CBT - or any other non-pharmaceutical 'treatment' -  please do email me with your 'story' (no more than 150 words please). I know many M.E/C.F.S patients did this for the NICE review but those accounts were not passed to NHS England or DHSC. They were at the request of a member of the review committee due to the lack of quantitative data re. harms. I would very happily forward these, with the petition signatures, to Sajid Javid MP and Amanda Pritchard to reinforce the need for this new system. This new system will gather the quantitative data that was not available for the NICE review!

Email me (Sally) via mefoggydog@gmail.com. Thank you.

Take care and keep safe.

Sally