• In less than a month, nearly 8000 signatures from 64 different countries 
• At the time of writing, 31 ME/CFS and Long Covid organisations supporting the open letter - including global organisations such as the World ME Alliance and Physios for ME, and organisations from many nations including Norway, New Zealand and the United Kingdom

And of course, it is not just a matter of what people with ME/CFS and Long Covid and their organisations say.  An increasing number of government agencies have looked carefully at the literature and have decided to not recommend exercise therapies as ME/CFS treatments. It is abundantly clear that the concerns about Graded Exercise Therapy are not just held by a "noisy minority of activists", as has been claimed by the proponents of the therapy, but are robustly based in experience and in science.

And yet Cochrane still has the 2019 Larun et al Exercise Therapy Review for CFS on its website.  Cochrane has still not given an explanation for the lack of communication for more than two years about the promised replacement review. They have not replied to the open letter.

We have started reaching out to Long Covid organisations to ensure that they are aware of Cochrane's role in the promotion of these ineffective therapies to people with post-infection fatigue syndromes.  

To Cochrane staff - with the post-Covid-19 ME/CFS-like illness already acknowledged as a global health crisis, you have the ability to help improve the care of millions of people by removing a review that you have already stated is flawed.

Will you choose instead to continue to ignore these calls for action so as to not risk annoying a tiny group of people whose reputations and livelihoods are tied to the discredited therapies?

To those organisations who have or soon will support the open letter - thank you so much for what you do for the people you represent, for being well-informed and for taking the time to be part of this global campaign. The names of the organisations that have already supported the open letter are below.

To those of you who have signed the petition - we are so grateful for your support and your comments. We hope this expression of solidarity is as affirming to you as it has been to us.  If an ME/CFS or Long Covid organisation that you are affiliated with doesn't appear in the list below, please consider reaching out to them to mention this campaign.

To everyone living with ME/CFS or Long Covid and to everyone who loves, or has loved, someone with ME/CFS or Long Covid, we wish you strength and easier times ahead.

Organisations supporting the open letter as at 27 September 2023

International
Science for ME

ME Global Chronicle

World ME Alliance

Physios for ME

Europe
Hope 4 ME & Fibro Northern Ireland, Board of Trustees

ME Centraal, the Dutch ME-info channel

Bury/Bolton ME/CFS & Fibromyalgia Support Group, UK

Millions Missing France

German Association for ME/CFS | Deutsche Gesellschaft für ME/CFS e.V.

European ME Coalition (EMEC)

Millions Missing Stavanger (Norway)

Norwegian ME-Association

Norwegian ME-association Trøndelag

Norwegian ME-association Rogaland

Norwegian ME-association Møre and Romsdal

Norwegian ME-association Innlandet

25% ME Group (United Kingdom)

ME Foreldrene (ME Parents, Norway)

12ME (Belgium)

Welsh Association of ME & CFS Support (WAMES)

ME Association (United Kingdom)

ME Advocates Ireland (MEAI)

Action for M.E. (United Kingdom)

RME Kronoberg Blekinge (Sweden)

CONFESQ (Spain)

Americas
Millions Missing Canada

Asia and Oceania
Post Viral Research Aotearoa (New Zealand)

ANZMES (New Zealand)

M.E. Awareness NZ (New Zealand)

Long Covid Support Aotearoa (New Zealand)

Middle East and Africa
ME/CFS Israel