As of today (18 September 2023), Science for ME has still not received any response from Cochrane to our letter sent on 31 August, other than acknowledgements of receipt.

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On the 17 September, the forum committee sent a followup email to a substantial number of Cochrane officers and Hilda Bastian, again requesting action. It notes the establishment of this petition:

"On 4th September 2023, the forum committee set up a Change.org petition to enable the many people who wished to support the open letter to add their names."

It also asks the Cochrane officers to take the time to read the comments on the petition, and quotes a small selection of those comments.

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Thank you to the many individuals and organisations who have supported this call for action by signing the petition and sharing it.  Twenty four ME/CFS organisations from around the world have now signed the initial letter.