📌 Addressed to:
The UK Department of Health & Social Care (DHSC), the National Institute for Health and Care Excellence (NICE), the World Health Organization (WHO)…alongside the European Parliament Health Committee and the US Centers for Disease Control (CDC)

Across the world, people with chronic Lyme disease are being ignored, dismissed, and misdiagnosed — left to endure devastating symptoms without proper testing, treatment, or support.

I know this suffering first hand. For years, I’ve battled this disease while watching others be told their pain is “all in their head.”  It isn’t. It’s real and it’s destroying lives.

This petition calls on health authorities worldwide — including the NHS in the UK — to recognise, properly diagnose, and treat chronic Lyme disease, so that no one else is left to fight this alone.

🌍 Why This Matters

For decades, patients across the world have been misdiagnosed, dismissed and denied proper treatment for Lyme disease.

While health authorities and media continue to claim that “antibiotics cure Lyme,” millions of patients know this is only part of the truth.

 Lyme caught early can sometimes be treated successfully — but for the countless people who are missed or misdiagnosed (often labelled instead with fibromyalgia, CFS/ME, MS, ALS and more), the result is years of preventable suffering without recognition or care.

This is not rare. This is not invisible. This is a global epidemic

What We’re Demanding

• Global Recognition — Acknowledge chronic, late-stage Lyme disease and PTLDS as legitimate conditions.
• Better Diagnosis — Invest in accurate, accessible diagnostic tests, not reliant on outdated methods that miss countless patients.
• Update National Guidelines (NICE, etc.) - Revise UK NICE guidelines and international standards to include serious complications such as Lyme-related myocarditis, ensuring earlier detection and life-saving care.

Too many patients have suffered cardiac damage or lost their lives because Lyme-related myocarditis was missed or dismissed.

• Affordable Treatment Options — Ensure access to long-term, tailored treatment, including options beyond short-course antibiotics.
• Justice and Accountability — Recognise the harm caused by misdiagnosis and stonewalling, and commit to doing better.
• Patient Voices at the Table — Include Lyme patients and advocacy groups in research, policy-making, and awareness campaigns. 

🌱 This is not just an infection — it is a global health crisis.
We are not invisible. We are not rare. We are millions.

Together, we call on the WHO, the European Parliament, the US CDC, the UK Department of Health and all national health authorities to act now.

The time for denial is over.  The time for action is now.