Our current freedom of information enquiry to the NDIA has revealed that the NDIA has NO written record of the standards used for assessment (including what treatments are required to be considered "Fully Treated, Diagnosed and/Stabilised") and no evidence by the agency for any medical consultation was undertaken to establish standards or documents for ME and CFS patients.
This reveals that the NDIA have

A) No written basis or evidence for coding ME/CFS under code R58.3
No written basis or evidence for the standards used to approve or deny access to the NDIS for ME and CFS patients
C) No evidence of ANY medical consultation for determining ANY of the above, including whether they have changed or updated advice based on current, publicly available research.
D) No written evidence or public tender process of any attempt to consult with researchers, charities, community organisations or other invested parties involved with ME and CFS.
This paints a damning picture of the NDIA, as the NDIA are in essence practicing medicine without a license by making decisions that affect people with ME (PWME) without any medical training, guidance, guidelines or oversight.

This brings into question EVERY decision the NDIA has made to deny incredibly sick and disabled people much needed and life changing NDIS supports. If this were raised in a legal case, could the NDIA truly argue that they have not acted negligently?

PLEASE join our campaign below and sign and submit stories (if you haven't done so already) and share this post! Help us hold the NDIA accountable at the Disability Royal Commission!

https://www.facebook.com/groups/908377670101438/permalink/956344748638063/