Approve Vorasidenib for PBS in Australia


Approve Vorasidenib for PBS in Australia
The issue
I have been diagnosed with brain cancer, an Oligodendroglioma to be exact. A diagnosis that changed my life forever. Since that day, I have been fighting not just for myself and my family but for others who share my condition. We face a significant challenge: accessing the best available treatment, Vorasidenib, which isn't currently funded by the Pharmaceutical Benefits Scheme (PBS) in Australia. This drug is not just a hope for us, but a lifeline. A treatment that can stop my cancer it slow its growth long enough for me to see my young children graduate school.
Brain cancer is a formidable adversary. Every day, individuals diagnosed with it endure emotional and financial strains that are often unimaginable to others. Vorasidenib, a targeted therapy for brain cancer, offers us a precious chance to improve our quality of life and potentially extend it. However, the cost of this medication—an astounding $45,000 per month—makes it unattainable for the majority of us.
The Australian Government's PBS has been a beacon of support for many dealing with severe health conditions, yet the absence of Vorasidenib in its list leaves a glaring gap for brain cancer patients. By approving Vorasidenib, the PBS can alleviate not just the financial burden on us, but also allow us a fighting chance at life.
The evidence supporting Vorasidenib's efficacy is robust. Studies have shown that it significantly improves outcomes for those suffering from brain tumors with specific genetic profiles. In clinical trials, patients have reported improved brain function and a reduction in tumor size, offering them and their families hope for a better future.
Our call is simple yet profound: let us have the opportunity to fight our battle with all available resources. To the decision-makers of the PBS, we ask for empathy and understanding of our plight. Let us not be hindered by the barriers of high drug costs. We, the affected, need Vorasidenib to be a part of the PBS.
Please sign this petition to urge the Australian Government to include Vorasidenib in the PBS. Your signature can mean the difference between life and death for us. Together, let's make this change happen and bring hope to many lives.

4,209
The issue
I have been diagnosed with brain cancer, an Oligodendroglioma to be exact. A diagnosis that changed my life forever. Since that day, I have been fighting not just for myself and my family but for others who share my condition. We face a significant challenge: accessing the best available treatment, Vorasidenib, which isn't currently funded by the Pharmaceutical Benefits Scheme (PBS) in Australia. This drug is not just a hope for us, but a lifeline. A treatment that can stop my cancer it slow its growth long enough for me to see my young children graduate school.
Brain cancer is a formidable adversary. Every day, individuals diagnosed with it endure emotional and financial strains that are often unimaginable to others. Vorasidenib, a targeted therapy for brain cancer, offers us a precious chance to improve our quality of life and potentially extend it. However, the cost of this medication—an astounding $45,000 per month—makes it unattainable for the majority of us.
The Australian Government's PBS has been a beacon of support for many dealing with severe health conditions, yet the absence of Vorasidenib in its list leaves a glaring gap for brain cancer patients. By approving Vorasidenib, the PBS can alleviate not just the financial burden on us, but also allow us a fighting chance at life.
The evidence supporting Vorasidenib's efficacy is robust. Studies have shown that it significantly improves outcomes for those suffering from brain tumors with specific genetic profiles. In clinical trials, patients have reported improved brain function and a reduction in tumor size, offering them and their families hope for a better future.
Our call is simple yet profound: let us have the opportunity to fight our battle with all available resources. To the decision-makers of the PBS, we ask for empathy and understanding of our plight. Let us not be hindered by the barriers of high drug costs. We, the affected, need Vorasidenib to be a part of the PBS.
Please sign this petition to urge the Australian Government to include Vorasidenib in the PBS. Your signature can mean the difference between life and death for us. Together, let's make this change happen and bring hope to many lives.

4,209
The Decision Makers
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Petition created on 20 November 2025