No confidence Obama/Biden, A call for special election January 21, 2016 for new president
Through the leadership of the current sitting president and administration, the United States has lost it position in the world, as sovereign country. Unfair tax for healthcare that's more unaffordable than when the act was passed, and the continuous over reach and misuse of the fabric of the constitution, I hereby ask the decision maker to grant a vote of no confidence and call for a special election for new President/VP no later than January 21, 2016
Make it a Federal Crime to Murder any Police Officer in the U.S. including Puerto Rico
In the past few years their's been this mindset that has taken over this country where people feel it's ok to attack police officers and assassinate them and this presents a clear and present danger to the safety of the public. We call on the federal government to pass legislation making it a federal crime to murder a law enforcement officer. The murder of a federal law enforcement officer or even a K9 and Horse working with a federal LEO agency is already a federal offense. The cold blooded assassinations of NYPD Detectives Rafael Ramos, Wen Jian Liu, Brain Moore, Sheriff Darren Goforth, Sergeant Miguel Perez-Rios and countless others in our country calls for changes in the law. We will not tolerate the murder of law enforcement officers and these cop-killers need to know they will receive the ultimate penalty. We can't leave the states to prosecute these cases since some have banned the death penalty. We are asking our elected officials and the people of our great country who support law enforcement to join us in calling for the enactment of legislation to make it a federal crime to kill a law enforcement officer.
#SAVEH2B: Save Small & Seasonal Businesses!
PLEASE ASK CONGRESS TO #SAVEH2B AND SUPPORT IMMEDIATE CAP RELIEF! American Small and Seasonal businesses are currently approaching their busiest season of the year and they will not be receiving their seasonal guest workers. Without these legal, temporary employees American businesses and workers are in jeaprody. The H-2B Visa nonimmigrant program allows employers to hire foreign workers to come to the United States and perform temporary nonagricultural services or labor on a one-time, seasonal, peakload or intermittent basis. H-2B workers are not considered immigrants. In order to qualify for an H-2B Visa, an employer must prove that there are not sufficient U.S. Workers who are capable of performing temporary services or labor. MYTH: H-2B WORKERS TAKE JOBS AWAY FROM AMERICANS.FACT: American workers are guaranteed first chance at every job later filled by an H-2B temporary laborer. By law, every open position must be properly advertised in the community and requires employers to hire any able and willing American workers to fill open positions. The fact is that H-2B temporary workers actually support American jobs and the U.S. economy. The H-2B program provides an opportunity for seasonal businesses to operate at a greater capacity, thereby retaining their full-time American workers and contributing more to their local economies. Additionally, temporary foreign seasonal workers help support many upstream and downstream jobs. According to the American Enterprise Institute study on Immigration and American Jobs, every H-2B worker creates or sustains 4.64 American jobs on average. MYTH: EMPLOYERS DON’T EVEN TRY TO HIRE AMERICAN WORKERS TO FILL THESE TEMPORARY HARD LABOR JOBS.FACT: Employers work extremely hard to hire American workers because 1) it is dramatically cheaper to do so, and 2) the law requires that employers demonstrate that every effort has been made to hire Americans before they can start the process of trying to hire a temporary foreign laborer. Again, the fact is that the vast majority of American workers are not interested in temporary seasonal manual labor jobs. Geography is a big obstacle for many employers; for example, many resort communities don’t have a sufficient local labor pool. And, in many cases, these types of seasonal jobs may not be appropriate for high school students due to the hours or labor laws that prohibit the use of heavy machinery by minors. MYTH: PAYING HIGHER WAGES WILL ENTICE AMERICAN WORKERS AND SOLVE THE SEASONAL TEMPORARY LABOR SHORTAGE.FACT: Hourly pay for these types of jobs have gone up significantly over the last few years because employers who use the H-2B program are required to pay their H-2B workers and similarly employed American workers a premiumwage dictated by the U.S. Department of Labor. These temporary manual labor jobs often pay considerably more than the minimum wage, but American workers still won’t take the positions. Sadly, in many cases, employers who obey the law and use the H-2B program are often competing against businesses that choose to illegally hire undocumented immigrants and pay those workers considerably less. If wages were raised even higher, seasonal employers who use the program would not be able to sustain their businesses or their American workers. MYTH: THE H-2B PROGRAM REPRESSES WAGES FOR AMERICAN WORKERS BY PROVIDING A CHEAPER LABOR SOURCE.FACT: Hiring H-2B workers is a much move expensive and risky option. In addition to the fact employers are required to pay H-2B workers and similarly employed American workers a premium wage that is often well above the federal minimum wage, complying with the H-2B program is extremely costly, complicated and wrought with uncertainty due to an overly restrictive cap and a constantly changing regulatory environment. Employers turn to the H-2B program as a last resort, after extensive efforts to recruit American workers. MYTH: H-2B WORKERS OVERSTAY THEIR VISAS AND EXACERBATE ILLEGAL IMMIGRATION IN AMERICA.FACT: According the U.S. Department of Homeland Security visa overstay in the H-2B program are rare. Workers who do overstay their visas are barred from using the program ever again. The fact is that the vast majority of H-2B workers and their employers are meticulous about compliance. Not following the strict program rules means the end of a well-paying seasonal jobs that allows these workers to provide for their families and still maintain their homes in their native countries – a risk these workers are not willing to take since they generally return to the same employer year after year. Additionally, when approving H-2B visas, the U.S. Consulate confirms workers’ ties to their home countries. Further, the U.S. Department of Homeland Security requires employers to promptly report any H-2B workers who do not report for work or who complete their work earlier in the season than anticipated. MYTH: THE H-2B RETURNING WORKER EXEMPTION IS UNNECESSARY.FACT: The H-2B program’s annual 66,000 cap (33,000 for each half of the fiscal year) is not adequate to meet the demands of a growing economy. The cap for the first half of the fiscal 2017 was reached on January 10. The second-half cap was reached on March 13, leaving many seasonal employers shut out of the program with no access to legal seasonal laborers. Without the returning worker exemption passed by Congress with bipartisan support and signed into law by the President, many companies will have to close their businesses, lay off American workers or turn away customers.This provision is essential to the survival of small and seasonal businesses across the country and should be made permanent. An H-2B returning worker exemption is a narrow solution to a seasonal workforce shortage that focuses on workers who are valuable to their seasonal employers and who have never violated the terms of their past visas or other U.S. laws. These workers do not pose a security risk and they are not taking away jobs from Americans. For more information please visit: https://www.SaveH2b.orghttps://www.h2bworkforcecoalition.com https://youtu.be/UTYVEirlu3o To contribute further, please contact your Congressmen/women and tweet using the hashtag: #SAVEH2B
Save Net Radio! We Need Your Help To Petition Congress. 100,000+ Stations Will Perish!
SHARE, SHARE, SHARE! SAVENETRADIO 3.0 Just before the holiday break 2015 the CRB (Copyright Royalty Board) made a decision on new royalty rates for all U.S. based webcasters that helped the BIG webcaster and eliminates the small webcaster. Prior to this decision there was a special CONGRESSIONAL LAW titled the "Small Webcasters Agreement of 2009" or SWA which made these ridiculously expensive royalty fees affordable to the small webcaster and kept innovative programmers and new emerging artists on the air. (The SWA expired on Jan, 1 2016 at midnight ) They are now being SHUT DOWN by the tens of thousands.. Nearly 100,000 small webcasters will go off the air without YOUR help! Update: live365.com is already closed down. With this new ruling by the CRB there was NO provision for small webcasters and the prognosis is not good for about 100,000 United States small internet stations. The old rates under the Small Webcasters Agreement of 2009 (set by congress) were adequate, as long as you didn't make over $1.25 million a year and had less than 5 million listener hours monthly. These NEW rates, albeit lower ( for the BIG BOYS ), apply to everyone and there is NO provision for the small webcaster. These new rates are effective January 1 2016, but we can change this if we act NOW! Here's how this insane system works: The new royalty rates apply to EVERY COMMERCIAL BROADCASTER at .0017 per performance. If you had 1000 listeners on at all times, each song would cost you $1.70 to play. If you play 15 songs an hour, the royalties alone are $25.50 an HOUR! That's $612.00 per DAY and $223,380.00 per year. Here's the reality: In stream advertising rates are currently $1.69 per thousand impressions. That means if there are 1000 people on line and hear an ad (commercial), you make a whopping $1.69 (less 60%). That is the "going rate" nationwide. With 8 commercials an hour, (we will use 1000 listeners as a basis here). and 1000 listeners plus a 100% "fill rate" (meaning all 1000 listeners receive an ad), you would make $13.52 an hour, less 60% commission leaving $8.11 net revenue per hour. It doesn't add up and it's designed that way: Net Income is $8.11 minus SoundExchange royalties $25.50 = ($17.39) That is negative income of ($17.39) per hour.. That adds up to a net loss of ($152,366.40) annually in negative cash flow. No small business can survive this. This does not include royalty rates from ASCAP, BMI, SOCAN or SESAC, music purchases, overhead, employees (really?), computer hardware, software, web and stream hosting costs.. The kicker? AM & FM radio pays ZERO!! They are EXEMPT from these royalties. Could you imagine if an FM station had to pay over $2 Million in annual performance royalties for every 10,000 listeners in their market? The airwaves would be silent! The only difference between AM & FM and webcasting is how the audio is delivered. I don’t care how you monetize, a small webcaster can’t come close to breaking even under these rates and neither can AM & FM. (That's why they're EXEMPT) We’d be better off sending our listeners each a check for $200 and telling them to go out and buy some CD's Webcasting is the only businesses where a large audience is far more likely to be a liability than an asset. Who would possibly want that? This is crony capitalism at it's WORST. Internet radio was just regulated out of business in the dead of night just before the holiday break. We were told, " you're done." It shouldn't be like this. Everyone deserves to be heard. RAIN news stated that deliberations were going on for two years.. Really? NO small webcaster knew.. No small webcaster was notified. NPR was notified, Pandora, Spotify, Sirius/XM, college and high school radio was represented as well. ( they receive special rates for royalties the small webcaster is not privy to) The small webcaster was NOT represented. Small webcasters were not represented because they cannot afford to be represented. If they could they wouldn’t need Small Webcaster Agreement of 2009 to begin with. If one’s future were being decided in a court of law one would at least get a court appointed attorney. But there’s no such provision in copyright court. That should be a eye opening concern – an entire segment of the industry is effectively denied representation in government hearings that decide their future. In my mind that ought to be grounds for a lawsuit. But of course if one could afford a lawsuit one could afford to have been represented. What kind of insane, screwed up system is it where an organization does not have any way of knowing at all what their cost of doing business will be beyond two weeks into the future? How are any of these radio stations supposed to make any operational or business decisions when one doesn’t know what one’s expenses will be or even whether one will even be able to remain in business? Why isn’t there some law that requires advance notice? It isn’t like nobody knew that rates for 2016 would need to be set. What were these people doing? Why did they sit on their butts and wait until the very last minute with no announcement? Are they afraid that the small webcasters will go back to Congress before the decision takes effect as they did in years past? And of course this will kill niche formats and reduce opportunities for small and niche artists. The big corporate webcasters will just strike direct licensing deals with the major mass market labels. So new artists will not only have the usual struggle just to be noticed by programmers their music will be more expensive to play because they are too obscure to make it worth anybody’s while to cut a direct license deal. Most new and niche artists would gladly swap the pennies they get in SoundExchange royalties for wider exposure. It is the small and niche stations that provide such artists their best opportunity of getting airplay and exposure. And with small stations off the air those artists, even if they did prefer royalties over exposure, won’t likely get anything at all from SoundExchange. That will probably make SoundExchange’s bookkeeping easier not having to mess with tracking royalties for all those names that nobody ever heard of before except for freaks who listen to "pesky small" stations. The end result is that major label music has less competition from unsigned artists. Despite their posturing and professed concern about “artists” the only artists the major labels are concerned with are those they have under contract. All other artists are long tail competitors and thus a potential threat. If an emerging artist can build up an audience and following without signing with one of the major labels – then what are the labels good for in a digital world? The whole thing stinks from beginning to end from the lack of representation of small webcasters to waiting until the very last minute. Where is the oversight? Who holds these people accountable? It seems to me that maybe this needs to once again be brought of the attention of Congress. In conclusion: We are asking congress to step in quickly and put an INDEFINITE STAY on the Small Webcasters Agreement of 2009 OR DISCONTINUE RADIO ROYALTIES altogether and represent the tens of thousands of small webcasters facing execution. All radio stations PROMOTE the artist being played.. It's a trade off that has been in place for decades. This is reverse payola.. AM & FM pays nothing, why should anyone else? The THOUSANDS of companies and radio outlets affected:All shoutcast stations, All icecast stationsAll live365 stationstunein.com stationsiTunes internet radio.Windows Media GuideCar radios and players on the internet..The list goes on & On The execution has started already with live365 shutting down operations, firing their staff and vacating their offices, January 1 2016. There's still some time to save the rest of us, Please help! Sign the petition and save net radio.
Impeach Judge Anna J. Brown
We the People of the United States petition the U.S. House of Representatives to impeach Judge Anna J. Brown of the U.S. District Court for the District of Oregon for committing treason and for her participation in the insurrection against the Constitutional authority of the federal government pursuant to Article I Section 8 Clause 15, Article 3 Section 3 and Article 2 Section 4 of the U.S. Constitution, 18 U.S. § Code 2831 and 18 U.S. § Code 2383. Whereas Judge Brown, at the direction of the FBI and other federal agencies, is unlawfully detaining, and has been for over eight months, prominent activists within the Citizens for Constitutional Freedom political movement for exercising their First Amendment protected rights. Among the political prisoners are Ammon and Ryan Bundy, who both provide C4CF with necessary influence. These prisoners have also been subjected to mistreatment by the FBI, U.S. Marshal Service and employees of the correctional facilities. Whereas Judge Brown denied the Motion for mistrial after two of the government's witnesses introduced prejudicial information. Whereas Judge Brown is consciously proceeding with falsified charges filed by the FBI against C4CF and refusing to grant motions to dismiss after relevant laws (60 stat 1065 & Article I Section 8 Clause 17) were presented to her by the defense. Whereas Judge Brown is participating in a cover up of the suppression by the FBI (by way of COINTELPRO tactics) of the right to the free exercise of religion, freedom of speech, freedom of the press, peaceful assembly, and petition the Government for a redress of grievances. Whereas Judge Brown has been/is conspiring with the prosecution and FBI by prohibiting the defense to admit relevant evidence and to sufficiently question the witnesses, and by sustaining objections never raised by the prosecution but rather herself. Whereas Judge Brown has proven herself unfit to be a impartial Federal Judge; Consistent to the extreme bias expressed by her assistance given to the federal government and its usurpation of power and by covering up the inhumane treatment of political activists who are being unlawfully detained.
RYAN BUNDY, NEVER CONVICTED, BEATEN UP BY STAFF IN PRISON WITHOUT JUSTIFICATION
On August 9, 2016, at 600 hours, Ryan Bundy, a non-convicted prisoner at the Multnomah County Jail, was beaten up without just cause by Sheriff Deputies Sgt Curtis E. Sanders, Sgt. Jacobs and Deputy Rose. Sgt Sanders pushed Ryan Bundy down the stairs, endangering his life. U.S. Marshalls are implicated as they had directed the deputies to seize Ryan Bundy against his will for an unspecified meeting at an unspecified location that had not been previously scheduled. Ryan rightfully suspected foul play as the government had repeatedly tried to take custody of important evidence, a bullet, lodged in Ryan's shoulder from unjustified shooting at passengers in the LaVoy Finicum truck. The government seeks to take such evidence without Ryan's consent in order to protect agents involved in the shooting from the consequences of their unlawful shooting of lethal projectiles. The Multnomah County sheriff deputies, in an attempt to cover up their unjustified beating of Ryan Bundy, have punished him by placing him in solitary confinement without due process or evidence that Ryan was the guilty party in the physical beating. No government employee sustained any injuries nor were they examined by medical personnel while Ryan sustained significant injuries and pain including a dislocated/broken wrist and thumb from the unilateral beating. The overarching injustice in this matter is that Ryan has never been convicted of any crime. 500 years of careful construction of innocence until proven guilty doctrine and bail law are nullified by placing Ryan in a prison without due process, only the hearsay accusations from zealous federal prosecutors who are supported by a judge who is paid by the same employer . Ryan has to suffer brutal prison staff treatment without the right to due process. This matter is not only about Ryan Bundy, but all American citizens who are at risk of being treated the same, denied a presumption of innocence and the right to bail under a system that is designed to support for profit prisons and plea bargaining, rather than the right to a speedy trial by a jury of peers and the right to be free to prepare for trial. This could happen to any citizen! We ask you to investigate this matter, not only for the sake of Ryan Bundy, but for all Americans who are at risk of being treated the same, without the protections of a presumption of innocence and without access to bail for any reason that a judge deems appropriate according to his/her whim or political idealogy.
Impeach Judge Gloria M. Navarro
We the People of the United States petition the U.S. House of Representatives to impeach Judge Gloria M. Navarro of the U.S. District Court for the District of Nevada for committing treason and collaborating in the insurrection against the Constitutional authority of the federal government pursuant to Article I Section 8 Clause 15, Article 3 Section 3 and Article 2 Section 4 of the U.S. Constitution, 18 U.S.C § 2831 and 18 U.S. § Code 2383. Whereas Judge Navarro, at the direction of the FBI, BLM, and other federal agencies, is unlawfully detaining (Amendment VIII of the Bill of Rights & 18 U.S.C. § 3142), and has been for over nine months, prominent activists within the Citizens for Constitutional Freedom political movement for exercising their First Amendment protected rights—protesting against federal government overreach [the fact it had sold 9,000 acres of public land bordering Bundy Ranch and other people who own grazing rights to the division to a Communist Chinese energy firm represented by Rory Reid (Harry Reid's son), EMM, for $4.5 million, $34.1 million less than its value, and began rounding up the the Bundy’s cattle and holding them in inhumane conditions … at least 60 purportedly suffering death or missing]—and, in order to suppress C4CF 's education of the People, they have been charged by the FBI for violating 18 U.S.C. § 371 - Conspiracy to Commit an Offense Against the United States; 18 U.S.C. § 372 - Conspiracy to Impede and Injure a Federal Officer; 18 U.S.C. § lll(a)(l) and (b) - Assault on a Federal Officer; 18 U.S.C. § 115(a)(l)(B) - Threatening a Federal Law Enforcement Officer; 18 U.S. C. § 924(c) - Use and Carry of a Firearm in Relation to a Crime of Violence; 18 U.S.C. § 1503 - Obstruction of the Due Administration of Justice; 18 U.S.C. § 1951 - Interference with Interstate Commerce by Extortion; 18 U.S.C. § 1952 - Interstate Travel in Aid of Extortion; 18 U.S.C. § 2 - Aiding and Abetting. Among the political prisoners are Cliven, Ammon, Ryan and Mel Bundy, Peter Santilli (a journalist), Ryan Payne, Blaine Cooper, Eric Parker and Jerry DeLumus—all of whom provide C4CF with necessary influence. Whereas the discovery comprises substantial evidence proving the innocence of the defendants but is being concealed from the public at the order of Judge Navarro (in violation of Amendment VI of the Bill of Rights and Rule 26 of the Federal Rules of Criminal Procedure). These prisoners have also been subjected to mistreatment by the FBI, U.S. Marshall Service and employees of the correctional facilities. Whereas Judge Navarro is consciously proceeding with falsified charges filed by the FBI against C4CF and refusing to grant motions to dismiss after learning that Sheriff Douglas Gillespie and many other local, state and federal officials ordered the BLM to return the cattle to the Bundy’s and withdraw from the land, and being presented with relevant laws [Article I Section 8 Clause 17 & Article IV Section 3 Clause 2 of the U.S. Constitution, Rule 501 of the Federal Rules of Evidence and Nevada Revised Statute 568.225] were presented to her by the defense. Whereas, after being ordered by Sheriff Gillespie to stand down, Special Agent Dan P. Love of the BLM continued to impede on the rights and jurisdiction of the People of Clark County and all People of Nevada unabated; Committing acts of aggression that should be considered attempts to seriously injure or even kill peaceful protesters, including tazing several individuals and using blunt force (some already challenged by physical disabilities)—an apparent result of its militarization. Sheriff Gillespie stated that "anyone who had been in policing would question their tactics." Whereas Judge Navarro is participating in a cover up of the suppression by the FBI (by way of COINTELPRO tactics) of the right to the free exercise of religion, freedom of speech, freedom of the press, peaceful assembly, and petition the Government for a redress of grievances. One of the main functions of government is to enforce contracts, and in this case not only is the government failing to enforce a contract but it is also the contractor, and have abridged their obligations in addition to preventing the contractee(s) [Cliven Bundy—We the People] from discharging our duties enumerated in Article I Section 8 Clause 15 & 16 of the U.S. Constitution & 10 U.S.C § 311 and pursuant to Rule 501 of the Federal Rules of Evidence. Whereas Judge Navarro has proven herself unfit to be an impartial Federal Judge; Consistent to the extreme bias expressed by her assistance given to the federal government and its usurpation of power and by covering up the inhumane treatment of political activists who are being unlawfully detained for exercising their rights protected by the First Amendment to enforce the rule of law—to establish justice, insure domestic Tranquility, secure the Blessings of Liberty to ourselves and our Posterity, guarantee a Republican Form of Government, and secure the right to life, liberty and property, as ordained by the Creator in the U.S. Constitution.
SC DEMANDS TO BE HEARD. OUR VOICELESS ANIMALS NEED US. NO MORE ABUSE. STOP THE KILLINGS.
The systematic killing of animals in S.C. shelters is not “necessary” or simply “lamentable.” And it is certainly not a “gift” as the heads of HSUS, the ASPCA and PETA have indicated to one degree or another. The system is ugly, broken, regressive and violent. And it is so by design. The sooner we recognize that, the sooner we can focus our energies on fixing it. By making our shelters the safe havens they should be, we make them safe for animal lovers to work at, too. But it is taking far too long, and too many animals are being subjected to systematic and unrelenting violence, because the large national animal protection organizations are defending and protecting the status quo. These organizations fight progressive legislation to save tens of thousands of animals every year from those brutal environments. They send letters and staff members to fight shelter reform. They defend the killing with circular reasoning, fuzzy math and regressive, antiquated dogmas. Or, they celebrate these agencies when they should be holding them accountable. And, in doing so, they abdicate their mission to protect animals through oversight of shelters in order to defend harm by providing those who abuse and kill animals political cover. And not one by one or two by two or a thousand by a thousand or even by the tens of thousands, but millions upon millions of animals are marched to their needless deaths while these national organizations continue to ignore their plight. So we must do it in spite of them. Ending the routine and casual killing of animals will not only save the lives of four million animals every year, but it will bring decency and compassion to our nation’s shelters where these virtues are in tragically short supply. The No Kill revolution starts with each and every one of us; the killing, and the accompanying neglect and abuse, ends when we demand that it does.
Urgent! Support the "Right To Try Act (H.R. 3012) of 2015" Hope for the Terminally ill
I am writing this letter in utter despair, because my family needs your help. My brother, my hero, the man I've always looked up to was diagnosed with ALS. You the Congress, the decision makers, have the chance to pass the "Right To Try Act". And everyone fighting a terminal illness right now needs this. I remember being a little kid, I remember always trying to hang out with my brother, he is 10 years older than me, so I was never allowed. But I thought I was cool having an older brother that could take me places. I am the youngest of 4, there are 3 sisters and 1 brother. We have always been a close family. Always. I feel like I was just at the shore this summer carrying on with him at the beach, and today he can barely walk. ALS, has been around, over 80 years and still NO CURE. The ice bucket challenge in my opinion brought much needed awareness to the disease. I was told in Oct 2015, about my brother and that he has ALS. I don't think it really hit me, as I really didn't understand the magnitude of what he was about to go thru. Maybe in a way I didn't want to believe it? I didn't want him nor his family to have to go thru this. But its real. Its not going away. I don't think I myself was prepared for him, to have to fight for his life. Its heart wrenching to watch, even more so, he has a family, a loving wife, 6 children. He is a family man, he would give you the shirt off his back because that is the man he is. Always has been. Life certainly hasn't been easy for our family, in December 2013 we lost my sisters 10 year old son, our nephew, it never gets easier, the heartache never goes away. Time does Not heal. There are 12 nieces and nephews between my sisters and brother. He and his wife have 6 children. His wife is amazing. Not only does she make sure my brother is taken care of, she also takes care of 6 kids, and her mother who currently has brain cancer. So if anyone, anyone wants to complain about life, they certainly deserve to. But guess what? they don't. They don't complain, they look for answers, they look for hope. They look for ways to change the lives of other people. That is the ultimate meaning of strength and courage, they are. So I write this letter to You, in hope that you listen clearly to my message. My brother, deserves the "Right To Try" He derves to possibly change his quality of life for the better. He deserves so much more from life besides ALS. He deserves to try a medicine, that may give him hope. His family deserves that right. He deserves to walk his daughters down the aisle. He deserves everything every other human on this earth does. So grant him that right to try what ever he wants to. He was given a terminal diagnosis. Terminal. There is no cure for ALS. And you the government, have the ability to change that. You have the opportunity to pass the "Right To Try Act", to make it possible for him to maybe change his life. Maybe not. But shouldn't that be a human right ? Would you want his 6 children wondering why their dad wasn't given a chance at life? give him the "Right to Try" then just maybe, he can watch all his kids grow up. He can sit with his wife in a rocking chair on the porch when they are older. Why would you not want to give him that right? I beg you to support this Act, "Right To Try Act" (H.R. 3012) of 2015. I beg you. No one ever , ever deserves a terminal illness, they don't, but you as our law makers have an opportunity right NOW to make their life a little bit brighter. A little bit more hopeful. Let's try to change the world to make it a better place instead of holding people back from having hope. That is all they have. HOPE. Please help my family, please allow my brother Frank Mongiello, the "Right To Try". #CureALS Warmest Regards, Frank's Lil' Sister, Lisa Mongiello Kupsey
Raise Awareness for HHT Patients and Their Families
There are so many of us that are suffering from Hereditary Hemorrhagic Telangiectasia (HHT) and we can't get enough help. We are asking and pleading to be able to get someone to help us stand up for ourselves to get awareness out there to get proper medical attention. We need help. We are suffering daily from this genetic disorder and being told that either we can't be helped, we don't know what we're talking about or just being treated like idiots. What Is HHT? It is a genetic disorder of the blood vessels. It affects males and females from all racial and ethnic groups. The disorder is also sometimes referred to as Osler-Weber-Rendu (OWR) after several doctors who studied HHT about 100 years ago. In 1896 Dr. Rendu first described HHT as a hereditary disorder involving nosebleeds and characteristic red spots that was distinctly different from hemophilia. Before Dr. Rendu's work, doctors did not understand that individuals with what we now call HHT have abnormalities of their blood vessels, not a clotting problem in the blood itself. Drs. Weber and Osler reported on additional features of HHT in the early 1900s. More than a hundred years later, HHT is still often misdiagnosed in affected individuals and many doctors do not understand all of its manifestations. HHT is a hereditary disorder (passed down through generations) that is characterized by abnormal blood vessels. A person with HHT has a tendency to form blood vessels that lack normal capillaries between an artery and vein. This means that arterial blood under high pressure flows directly into a vein without first having to squeeze through very small capillaries. This place where an artery is connected directly to a vein tends to be a fragile site that can rupture and bleed. We usually call a blood vessel that is abnormal in this way a telangiectasia (tel-AN-jee-eck-TAZE-ee-ya) if it involves small blood vessels. The telangiectasias most commonly occur on the skin of the face and hands and the lining of the nose and mouth. The telangiectasias on the lining of the nose cause recurrent nosebleeds, the most common symptom of HHT. Telangiectasias can also occur in the digestive tract, particularly in the stomach and small bowel. There are a number of different treatments available for bleeding from telangiectasias in the nose and digestive tract. What Causes HHT? HHT is caused by a change (a “mutation”) in one of several HHT-associated genes. Changes in one of two of the genes, endoglin (ENG) and activin receptor-like kinase 1 (ACVRL1) are responsible for most cases of HHT. Changes in another gene, SMAD-related protein 4 (SMAD4), cause a combined syndrome of juvenile polyps of the gastrointestinal tract and HHT. At least two other unidentified genes also appear to cause HHT in a smaller number of individuals. There are hundreds of different mutations in each of the three known genes that can cause HHT. Having a mutation in an HHT-associated gene causes some blood vessels to form improperly leading to symptoms of HHT. An abnormality that involves a larger blood vessel is called an arteriovenous malformation (AVM). Some people with HHT will also have AVMs in one or more organs. AVMs occurring in the lungs and brain and can lead to serious complications. Everyone with HHT should undergo screening for lung and brain AVMs because if these are detected, they can be treated. The HHT Foundation recommends that allpatients and families with HHT be assessed at an HHT Treatment Center for proper screening and treatment. I'm sure if we were to find a famous celebrity that suffered from this potentially fatal vascular disorder, it would be all over the news. Unfortunately, that has yet to happen, so we just sit in the dark and suffer. All we are asking if for someone to stand up for us and help us act to get some awareness and funds to do more research. We need to eat healthy to carry on, however nearly every single "health food" contains something in it that is a natural blood thinner that causes us to bleed that much more. There is no cure and I've yet to find or hear of a treatment that helps without hurting in some way. 1 in 5000 people have this disease, but it is rarely diagnosed so there's not enough emphasis on it for us to get the help that we need. If you will PLEASE look into this for us just so there can be some type of recognition, our gratitude would be unending. Thank you for your time and attention to this matter. Sincerely, All HHT Sufferers