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The Department for Health and Social Care


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Victory
Petitioning The Department for Health and Social Care, Sajid Javid

UK government to provide free PCR covid tests for travel

If you work for an airline, in an airport or in any aviation related industry and want to do something to secure your job, then sign this petition. If you want to go on holiday this year or take your family on holiday this year without having to pay hundreds of pounds in Covid testing, then sign this petition. In the last twelve months, PCR Covid testing has become a multi-million pound industry. The UK government have stopped offering free PCR tests to the general public, they are only available to front line workers. If you are travelling abroad you will need a test before you depart, a test before you return (taken in the country you travel to) and at a minimum a test on day two after returning to the UK, depending on where you have a been you may have to take even more tests. The average cost for testing per person per trip is £236. A family of four will typically have to pay almost £1,000 in testing in order to take a  trip abroad. At the same time, domestic holidays in the UK have seen a sharp price increase due to demand, meaning holidays at home or abroad are now extortionately expensive. To boost the aviation and travel sector the government should offer free or heavily discounted PCR tests so that anyone can travel abroad for a fair price. The recovery of the travel sector is anticipated to be very slow. Despite being allowed to travel, many can not afford the additional costs. Not only does this mean not being able to travel abroad for many, it means more redundancies and pay cuts for airline and airport staff. The government should intervene now and give this sector the support it needs to help save jobs and give people a chance to travel. 

Neill Farkhondeh
405,774 supporters
Victory
Petitioning Matt Hancock MP, Theresa May MP, Department for Health and Social Care

Make suicide prevention and support a government minister's responsibility

My brother Dan was my best pal and my idol. He was taken by something silent, something none of his friends or family saw coming. 13 years ago, we lost Dan to suicide.  After he died, I set out a goal of preventing one brother, one father, one family, one friend having to go through what my family, his friends and I went through.  Dan was just one of the 84 men who take their own lives every single week in the UK. The numbers still shock me. Suicide claims the lives of more than 6,000 British men and women every year and is the single biggest killer of men under 45 in the UK. Every single suicide directly affects 135 people – people like me, people like you. Beyond this unimaginable emotional cost, every single suicide costs an estimated £1.67 million – a cost to families, friends and wider society.  Yet no minister in the UK government is officially responsible for suicide prevention and bereavement support. No minister is mandated to represent the thousands of people every year who feel like suicide is their only option, or the hundreds of thousands of bereaved families whose lives will never be the same again.  It doesn’t have to be this way. It’s time to take a stand.  I’ve joined forces with the Campaign Against Living Miserably (CALM), who are leading the movement against male suicide. Together, we are calling for a government minister to take on official responsibility for suicide prevention and bereavement support.  What would this actually mean?  It means a Government minister would be held to account for the delivery of effective suicide prevention plans for every local area. It means they would be held to account for high standards for bereavement support across the whole country, so it’s no longer a postcode lottery whether you get help after losing a loved one. It means they would be held to account for ensuring accurate data about the people who take their own lives, so we can better understand how to help them stay alive It means those at risk, as well as their families, getting the support they need. It means fewer men like Dan. Fewer families like mine. Join me and CALM to take a #StandAgainstSuicide. -- We've made some more specific recommendations and actions that we'd like the new ministerial role to undertake. You can read that paper here. On March 26th 2018, CALM launched #Project84 to tell the stories behind the statistic that 84 men die by suicide every week. Find out more and join the campaign at:  http://bit.ly/WSPD2018CALM. Have you been affected by suicide? The Support After Suicide Partnership is a hub for anyone bereaved or affected by suicide, where you can find emotional and practical support. 

Matthew Smith
391,389 supporters
Petitioning The Secretary of State for Health, The Department for Health and Social Care

Stop unnecessary cancer deaths caused by the COVID disruptions and save thousands of lives

This is my daughter Kelly, she died tragically aged 31 due to bowel cancer. Her loss has been devastating to our family. Her life expectancy was drastically cut short after her chemotherapy stopped as a direct result of COVID. Across the UK, people have had their cancer treatments impacted - so I've started this petition calling for the Government to take urgent action, before it's too late. You may have seen our Kelly’s story featured in a recent Panorama programme called ‘Britain’s Cancer Crisis’ which showed the extent of the problem. Experts are warning that as many as 35,000 cancer patients could die unnecessarily as a result of the impact of the pandemic on cancer services. The Government and senior NHS leaders need to react to this national tragedy in cancer services.  When we watched the Panorama programme it seemed that the powers that be were aiming to get cancer services back to normal by the end of the year! This is far too long - it is not OK to let cancer patients suffer and die. Every day of delay is a day too many. They need to act now. Sadly it is too late for Kelly, but there’s still time to save others. We need an emergency response across all available cancer treatments with extra resources and with the same amount of energy and focus as was deployed against the virus itself.  In particular, treatments like radiotherapy need to be boosted and set free from the bureaucracy that is holding it back.  Please sign this petition to urge the Health Secretary to boost cancer services, at all stages of the cancer pathway, to stop tens of thousands of cancer patients dying unnecessarily.#CatchUpWithCancer #Radiotherapy4Life #BritainsCancerCrisis

Craig and Mandy Russell
387,593 supporters
Victory
Petitioning The Department for Health and Social Care, NHS Digital

Stop the Share of NHS Data and paid access without informed consent

From 1st of September, NHS Digital plans to roll out its General Practice Data for Planning and Research. I am a Barrister of England and Wales and feel strongly that everyone should be given the choice of how their data is used. I don't necessarily object to companies having access to some data but I object to the data being shared without prior, informed consent on what information is shared, and with whom. Watch my video here: https://youtu.be/vydHzQ3uuCM 10 years' worth of YOUR NHS data will be collected for a “wide variety of research and analysis to help run and improve health and care services”. What is the problem with this? It is "opt-out" rather than "opt-in" - so your data will be shared unless you take action by the 1st of September 2021. Dr Ellen Welch, a GP and the editorial leader of Doctors' Association UK, said:  “NHS Digital has failed to publicise this adequately to patients or healthcare staff, and we feel more time is needed to explain to patients how exactly their data will be used, who will benefit from it and what implications it may have for individuals.” This should be "opt-in", rather than "opt-out" - just like virtually every website you visit that insists you acknowledge and consent to tracking cookies. NHS DIGITAL WEBSITE: https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research Read what the BBC says in the subject here: https://www.bbc.co.uk/news/technology-57383992 Excerpt:Dr Farah Jameel, of the British Medical Association (BMA), said the timeline needed a "hard reset".

BlackBelt Barrister
239,289 supporters
Petitioning The Bank of England, The Department for Health and Social Care

International Mary Seacole Day for 2021 Celebrating modern nursing & diversity in the NHS

The Bank of England has just announced that they will be redesigning the £50 note. Meaning there will be an opportunity to feature a new individual who has made an invaluable contribution to British History. I think that person should be Mary Seacole. Other than the Queen the only other woman on our banknotes is Jane Austen, and there are no ethnic minorities.  Mary Seacole is a Jamaican British war hero who supported British troops as a nurse during the Crimean war. Despite being rejected by Florence Nightingale to join her band of nurses, she traveled to the front line of the war in Crimea. She was so widely loved for her healing powers, the soldiers nicknamed her “Mother Seacole.” Mary inspired thousands of women and people of colour to dedicate their lives to the NHS. Recently the Royal College of Nursing recognised her contribution to British Nursing, publicly declaring her on the same footing as Florence Nightingale. I am an activist and campaigner who has been fighting for years to get Black Britons recognised for their contribution to history. In 2003 I launched an initiative called 100 Great Black Britons, where the public voted Mary Seacole as the greatest black briton of all time for the heroic way she served the country during war. Since then I have fought and won campaign a campaign to get her on the school curriculum. I think an incredible next step would be to see her on the £50 note. The lack of ethnic minority representation on British banknotes needs to change. It currently doesn’t reflect the face of Britain and it sends a damaging message that people of colour haven’t played an important role in British history - which isn’t true. The recent Windrush scandal sent a damaging message that British institutions don’t respect the valuable contribution that black britons have made to the country. Putting Mary Seacole on the note could help start to mend that. I know if enough of you get behind this we can make a change. In 2013 a petition of 35,000 convinced the Bank of England to put a woman on the £5 note and another which I started convinced the Government to keep Mary Seacole on the School Curriculum. Please help me convince the Bank of England to put Mary Seacole on the £50 note by signing this petition.  

Patrick Vernon OBE
151,949 supporters
Petitioning The Department for Health and Social Care, Theresa May MP, Jeremy Corbyn MP, Paula Sherriff MP

Make Cervical Cancer Screening Accessible For Disabled Women Like Me

Hi, my name is Fiona Anderson, I'm a 30yr old Mum of 2 living in Bolton, Greater Manchester. Living with a rare life-limiting muscle-wasting condition means my mobility is so limited I'm hoisted for all transfers. Despite receiving my first letter at age 25 (like every other woman) to book an appointment for Cervical Screening - previously known as a "smear test" - I could NOT access this vital, routine screening as 98% of healthcare centres do not have patient hoists for people like me, who need it to transfer safely onto the examination table. I'm not an isolated case. There's an estimated 250,000 disabled people in the UK who rely on hoists, half of which are female. That's give or take - 125,000 disabled women who will struggle immensely to get their routine cervical screening or not gain access to it AT ALL - due to lack of hoist provision. I have NEVER had a smear test because my GP practice does not have a hoist and couldn’t come up with another safe solution to examine me. Home visits for Cervical Screenings aren’t covered by the medical centre's insurance and there is no database of clinics/medical centres with hoists to refer me somewhere else! As a result I run the risk of cervical cancer going undetected purely because of an accessibility issue related to my disability. To this day, along with the thousands upon thousands of disabled women who need hoists, I still receive letters reminding me my smear test is overdue and that by skipping it I'm risking my life. Some women are being asked to sign saying they're REFUSING the routine screening, to stop getting these letters despite their GPs knowing full well it's an access need being unmet and a possible breach of the Equality Act 2010. As a community we are calling for the NHS to take steps to give people with disabilities equal access to vital cervical cancer screening. Including by making hoists available at every NHS medical centre! Please help us by signing this petition. 

Fiona Anderson
109,498 supporters
Petitioning UK Parliament, Boris Johnson, The Department for Health and Social Care, Matthew Hancock MP

STOP PREGNANT WOMEN FROM BEING INFECTED WITH COVID 19

In Loving Memory of Mary Agyiewaa Agyapong My name is Ernest Boateng; I am the husband of Mary Agyapong, the 28 year old pregnant nurse who tragically died in April, after becoming infected with Covid19. Since Mary’s death, very little has been done to protect pregnant women from this life threatening virus, despite studies showing that for those in the later stages of pregnancy, they are more likely to become severely unwell. That is why I am calling on the Government to protect pregnant women by ensuring they can either work from home, or they must be suspended from work on full pay. The announcement of a vaccine which is to be rolled out imminently is good news for many people who are vulnerable, but pregnant women will not be given the vaccine. This means they will not be protected when other vulnerable people will be. The Government must consider the specific needs of pregnant women to ensure they are safe. The guidance for pregnant women has been confusing throughout this pandemic. The current guidance continues to list pregnant women as vulnerable and says that if they cannot work from home then they should adhere to strict social distancing. But, we know that this is not happening. Research by Pregnant Then Screwed in October found that 57% of pregnant women who are working outside of the home do not feel safe, and only half of pregnant women (53%) have had a risk assessment from their employer, and even then, many employers are ignoring their own risk assessment. Only 1% of pregnant women who cannot work from home have been suspended from work on safety grounds. The groups at increased risk of severe COVID-19 were recognised including the increased risk for mothers from Black, Asian and minority ethnic heritage. An analysis of women in French hospitals showed that those in the second half of pregnancy, from 20 weeks gestation, were five times more likely to be admitted to ICU than those in the first half of pregnancy. We also know that maternal Covid-19 is associated with an approximately three times greater risk of preterm birth. Black pregnant women were 8 times more likely to be hospitalised than white pregnant women, according to research by Oxford University. Mary should not have been working based on the facts and findings above. She was 35 weeks pregnant when she tested positive for Covid-19. In memory of my beautiful, kind and caring wife, I ask that no other family has to experience what mine has. Please sign this petition to demand that all pregnant women are protected by ensuring they can either work from home or are suspended from work on full pay.

Ernest Boateng
101,830 supporters
Petitioning The Department for Health and Social Care, Matt Hancock, East Sussex Local Health Authority

Don’t rob my children of their dignity: Provide incontinence pads

My name is Jackie. I’m a mother of two wonderful children - Mathew is 15 and Ellie is 8.Mathew and Ellie are both disabled and have complex physical and medical needs. They are both incontinent and rely on pads 24/7. Without them, they would be sat in their own urine and faeces.Our Local Health Authority used to provide these pads, but earlier this year they suddenly told us the allowance would be drastically cut. This could be happening across the country so the system clearly isn’t working.Instead of 5 pads per day, my children are now given 3. This isn’t enough. Sometimes they’ll get through two pads before they even get to school. But when we raised this the Local Health Authority said we’d have to pay for the rest ourselves.That’s a £1600 a year just to keep our children dry and clean. And it’s yet another burden that parents of children with disabilities have to face.That’s why I’ve set up a petition calling for all people with disabilities to be given as many continence pads as they need. I’m calling on my Local Health Authority and the Health Minister to work together and make sure everyone has access to free pads.The situation we’re now in is humiliating for myself and for my children. I’m used to constantly fighting for their rights, but can’t believe I’m now having to fight for this too. Even my son’s consultant has said that this decision is ridiculous.My children didn’t ask to be born with disabilities. All I’m asking for is that they are treated with dignity and respect.Nobody should be robbed of this basic human rights because their families can’t pay for extra pads.Sign my petition so that all people with disabilities get access to free continence pads.

Jackie Hoadley
88,247 supporters
Petitioning UK Parliament, The Department for Health and Social Care, cancer research uk, Boris Johnson

We need more than 3% of funding to go towards research and curing childhood cancer!

Please sign the government petition as well, as it’s the only one they will officially recognise https://petition.parliament.uk/petitions/597620 My name is Charlotte Fairall and I do not want other mums to have to suffer the most horrendous cancer journey like I have.  No mother should have to witness their child enduring the most horrific pain caused by cancer, or to witness the debilitating after-effects of outdated and harmful treatments. My beautiful daughter, Sophie, at just 10 years of age, was taken from us on 18th September 2021 by this horrid disease.  At no point during this last year, has Sophie given up, or not lived-up to her end of the bargain.  She has fought hard, she’s been relentless in her fight, she’s shown dogged determination and spirit throughout her journey.  SHE did not lose the fight to cancer, she was let down by the lack of funding, research, awareness and support available for children with cancer.  Sophie’s legacy will be one dedicated to the cause for real and impactful CHANGE in outcomes for children with cancer.  During the long periods of painful, tiring and draining rounds of chemotherapy and radiotherapy, Sophie told me that she wanted CHANGE.  She wanted things to be better for future children who endure this battle.  Better food, better play, better care, kinder treatments and better support for parents.  Here’s how we can make CHANGE.     Most people will not be aware of the frankly shocking statistics around funding for childhood cancer. Only 3-4% of government cancer research funding in the UK is fully dedicated to childhood cancer.  Yet, cancer is the number one killer of children age 0-14 by disease in the UK.  So, how can governments and cancer research organisations justify the pitiful % of funds that go in to identifying cures and new treatments for childhood cancer?!  Why isn’t this an issue of national importance?  Why are we still allowing beautiful children like Sophie to endure the most horrific end to their lives because drug companies and Government feel as though these children are not worth it? We need to stand together and make this CHANGE.  It will be Sophie’s legacy.  Sophie’s cancer was a form of Sarcoma, known as Anaplastic Rhabdomyosarcoma. It is extremely rare. Accounting for 3% of childhood cancer cases each year.  Sadly, survival rates for Sarcomas remain very low and on relapse, there is only an 8-20% chance of survival.  Sarcomas are cancers that can resemble bone or soft tissues.  Rhabdomyosarcomas are the most common soft tissue sarcomas that occur in children and they tend to look like developing muscle or fibrous tissue. It is a highly aggressive form of childhood cancer with a variety of subtypes such as embryonal and alveolar which influence the outcome. They can originate in almost any part of the body and are commonly seen in the head and neck, abdomen, chest and bladder. There are around 70 new cases in the UK each year. They are currently treated using a combination of surgery (if possible), chemotherapy and radiotherapy which results in debilitating short- and long-term side-effects. The long-term side-effects are just horrific.  Children who endure these archaic and damaging chemotherapy and radiotherapy treatments, often must deal with life-long, serious heart conditions, kidney issues, fertility problems and cognitive issues.  These are just a few of the side-effects.  The harsh treatments used such as cytotoxic drugs and radiotherapy, are so toxic that some children die not from the cancer, but from the actual treatments.  Here are some of the statistics that we need to CHANGE: - About 1,900 children (up to the age of 15) are diagnosed in the UK with cancer each year- Around 240 children in the UK die from cancer each year.  This is more than 4 children each week.  - Only 4 new drugs have been approved in the last 20 years to treat childhood cancers- Drugs used to treat Rhabdomyosarcoma and have seen very little change in treatment or research in decades!  Some of the cancer drugs Sophie was given, haven't changed since the 1960s. Sophie’s legacy will be one of hope for children with cancer.  During her fight, Sophie often talked about the changes she wanted to make for other children in the future.  She didn’t want others to have suffer like she’s suffered.  Sophie wanted more to be done.  Sophie demanded CHANGE and it will be my life’s work to make this CHANGE.  Together we can all make an impact, and with Sophie’s star shining brightly above us, we won’t rest.   Thank you for signing this petition and for helping us to make positive CHANGE.  Charlotte Fairall.  In memory of Sophie Fairall – 12/08/2011 – 18/09/2021. x

Charlotte Fairall
31,226 supporters