The Department for Health and Social Care
The Department for Health and Social Care
Make suicide prevention and support a government minister's responsibility
My brother Dan was my best pal and my idol. He was taken by something silent, something none of his friends or family saw coming. 13 years ago, we lost Dan to suicide. After he died, I set out a goal of preventing one brother, one father, one family, one friend having to go through what my family, his friends and I went through. Dan was just one of the 84 men who take their own lives every single week in the UK. The numbers still shock me. Suicide claims the lives of more than 6,000 British men and women every year and is the single biggest killer of men under 45 in the UK. Every single suicide directly affects 135 people – people like me, people like you. Beyond this unimaginable emotional cost, every single suicide costs an estimated £1.67 million – a cost to families, friends and wider society. Yet no minister in the UK government is officially responsible for suicide prevention and bereavement support. No minister is mandated to represent the thousands of people every year who feel like suicide is their only option, or the hundreds of thousands of bereaved families whose lives will never be the same again. It doesn’t have to be this way. It’s time to take a stand. I’ve joined forces with the Campaign Against Living Miserably (CALM), who are leading the movement against male suicide. Together, we are calling for a government minister to take on official responsibility for suicide prevention and bereavement support. What would this actually mean? It means a Government minister would be held to account for the delivery of effective suicide prevention plans for every local area. It means they would be held to account for high standards for bereavement support across the whole country, so it’s no longer a postcode lottery whether you get help after losing a loved one. It means they would be held to account for ensuring accurate data about the people who take their own lives, so we can better understand how to help them stay alive It means those at risk, as well as their families, getting the support they need. It means fewer men like Dan. Fewer families like mine. Join me and CALM to take a #StandAgainstSuicide. -- We've made some more specific recommendations and actions that we'd like the new ministerial role to undertake. You can read that paper here. On March 26th 2018, CALM launched #Project84 to tell the stories behind the statistic that 84 men die by suicide every week. Find out more and join the campaign at: http://bit.ly/WSPD2018CALM. Have you been affected by suicide? The Support After Suicide Partnership is a hub for anyone bereaved or affected by suicide, where you can find emotional and practical support.
Make Cervical Cancer Screening Accessible For Disabled Women Like Me
Hi, my name is Fiona Anderson, I'm a 30yr old Mum of 2 living in Bolton, Greater Manchester. Living with a rare life-limiting muscle-wasting condition means my mobility is so limited I'm hoisted for all transfers. Despite receiving my first letter at age 25 (like every other woman) to book an appointment for Cervical Screening - previously known as a "smear test" - I could NOT access this vital, routine screening as 98% of healthcare centres do not have patient hoists for people like me, who need it to transfer safely onto the examination table. I'm not an isolated case. There's an estimated 250,000 disabled people in the UK who rely on hoists, half of which are female. That's give or take - 125,000 disabled women who will struggle immensely to get their routine cervical screening or not gain access to it AT ALL - due to lack of hoist provision. I have NEVER had a smear test because my GP practice does not have a hoist and couldn’t come up with another safe solution to examine me. Home visits for Cervical Screenings aren’t covered by the medical centre's insurance and there is no database of clinics/medical centres with hoists to refer me somewhere else! As a result I run the risk of cervical cancer going undetected purely because of an accessibility issue related to my disability. To this day, along with the thousands upon thousands of disabled women who need hoists, I still receive letters reminding me my smear test is overdue and that by skipping it I'm risking my life. Some women are being asked to sign saying they're REFUSING the routine screening, to stop getting these letters despite their GPs knowing full well it's an access need being unmet and a possible breach of the Equality Act 2010. As a community we are calling for the NHS to take steps to give people with disabilities equal access to vital cervical cancer screening. Including by making hoists available at every NHS medical centre! Please help us by signing this petition.
Help put pressure on the pharmaceutical companies
Pharmaceutical companies use sick people to trial their medicines but are free to stop treatments whenever they want. We need to put pressure on these companies to continue the treatments at the request of the patient. Profit should not be put before people and pharmaceutical companies should not cease the treatment, especially beneficial treatment, after the agreed scheduled period of treatment comes to an end. Following the diagnosis and treatment with chemotherapy on lung cancer, patient X relapsed and was given a course of radiotherapy. This was followed by an experimental immunotherapy treatment. Whilst this treatment will not cure the cancer it has stopped it growing and spreading. Patient X wants to continue with the treatment but the pharmaceutical company will end their treatment in January 2019. Please sign this petition to help support our plea for continuation on the treatment; cost should not come before a persons life. Pharmaceutical companies should not decided who can have and who can't based on profit margins. Support the campaign to get this much loved mother, grandmother, sister, aunt and cousin, continued access to the immunotherapy treatment. Help keep her in her home with her family around her and give her and her family the peace of mind that everything that could be done, was done. Please sign this petition today and forward to all of your contacts. Thank you.
Recognise children whose parents have mental illness in government policy by 2021
Our Time, the only UK charity solely supporting children and young people whose parents have a mental illness, is running a campaign called “Being Seen and Heard” — a campaign calling for recognition and support for the 3.4 million affected children. These children are amongst the most vulnerable and neglected in the country, receiving little attention or support. Children who have a parent with a mental illness are at risk of having mental health problems unless they get the right support. Research indicates that 70% risk developing mental health problems  with significant impact on their life chances and at huge expense to the public purse. In an average British classroom, that equates to eight children — more than 1 in 4 children per class. Some 3 million children are projected to be at risk of developing a mental health issue by 2021. Experts say the potential cost to the UK government could amount to £180 billion.  All this is preventable. Evidence indicates that low-cost, timely intervention enables young people to flourish.& Our Time wants children affected by parental mental illness to be seen and heard. We are working hard to persuade politicians and policy makers in health, social services and education to include these children in mental health policy and funding plans. Please join our campaign by signing the petition below. References: Ernst & Young, ‘Sizing the Problem – analysis by EY,’ commissioned by Our Time (2018) Rubovits, P. C. (1996). Project CHILD: an intervention programme for psychotic mothers and their children. In Gopfert, J.Webster & MV Seeman (eds) Parental Psychiatric Disorder (2nd edition pp 161-172) New York:Cambridge University Press Children’s Commissioner Vulnerability Report 2018 Welsh Adverse Childhood Experiences (ACE) study, Public Health Wales, Centre for Public Health, Liverpool John Moores University, 2015 Rutter, M. (1966) Children of sick parents. An environmental and psychiatric study. London: Oxford University Press.
Provide coverage for Dental Implants
About 23 million are completely edentulous and about 12 million are edentulous in one arch. 90 percent of those who suffer from edentulism have dentures. Dentures are generally the poorest quality of tooth replacement. I liken them to a false or prosthetic arm….it may look like an arm but does not function like one and is a poor substitute for the real thing. Dentures are not much different. No doubt a denture is usually better than nothing at all, but they are fraught with problems. Millions of Americans can not afford permanent solutions to tooth loss like the G4 Implant Solution. Why is dental not covered under medical insurance? The same may be asked of vision, but at least there if you have a serious eye problem (like glaucoma or cataracts) you go to an ophthalmologist, which is covered by medical. Such isn’t the case with dental. The partition between dental and medical makes little sense given that “oral health is directly related to general health. The oral cavity is a gateway to your body. A lot of stuff in the mouth can indicate kidney disease, heart disease, diabetes, HPV, cancer, etc. Your dentist can be your first line of defense. More than 800,000 annual ER visits arise from preventable dental problems. Dentistry and medicine have been considered inherently distinct practices. The two have never been treated the same way by either the medical system or public insurance programs. But as we learn more about how diseases that start in our mouths can ravage the rest of our bodies, it’s a separation that’s increasingly hard to rationalize. Private Insurance, Public Insurance, and the Medical systems need to realize that a majority of person's wait until it is too late, because they can not afford proper prevention, and then their only option is something they can not live with or the cheapest solution. Dental Implants provide a much more permanent solution, that function far more closely to natural teeth.I started this petition because...Over the last decade that I have had the honor to work with Dr. Mike Golpa, I have seen the dramatic impact that oral health has on a person's life. I have had the privilege to meet and befriend thousands of patients from all walks of life, and I have found that no matter someone's background, a person's smile, or lack thereof, can have devastating effects on self-esteem as well as overall health. I have witnessed these effects on family members and friends throughout my life as well.“Over the last decade we have received thousands of powerful letters from you, detailing your struggles, the pain, embarrassment, and the judgement that you endure on a daily basis, due to issues with your teeth that are often beyond your control, or due to a lack of resources to address them.But we think we can change that! If you sign our petition, we think we can change the view of insurance companies and the government that consider this just a “Cosmetic” procedure, and don't truly know that this can be as necessary as, if not more than many covered medical procedures. Carlos Morgan - Director - https://g4bygolpa.com
Maintain and reopen the invaluable Alexandra Avenue Walk-in Centre in Harrow
Anyone who has visited the A&E department at Northwick Park Hospital will know how busy it is and be aware of the 4-hour wait. Walk-in and Urgent Care Centres, a vital part of our healthcare service, are an alternative to, and take the pressure off our A&E departments. Because of funding cuts, Northwest London Clinical Commissioning aims to reduce the number of patients at the Alexandra Avenue Clinic from 40,000 to 20,000 by removing it's walk-in availability from November 1st 2018. Harrow walk-in centre's will only be available at the Pinn Medical Centre and Belmont Health centre. Local parents, elderly and vulnerable patients, will be severely affected by this change. If the Alex Clinic has lost its walk-in availability, how long until the Pinn and Belmont Health Centre's suffer the same fate? Please join #Fixit in our attempt to maintain the availability of the Alexandra Clinic NHS Walk-in service, an invaluable asset to our community. Let’s pull together and make sure that our Harrow services are not pulled away. Together, our voices can be heard.
Japan should admit their crimes during WW2 and Apologize
�Hi, this is JCH Global Community. (https://www.facebook.com/JCHGLOBAL/ We are here to let more people know the covered up History during WW2 in Asia. Most of the people only remember #German and the Nazi during #WW2. ➡But the fact is #Asia has gone through way worse than the Holocaust by the Japanese Empire.This is the 「Asian version of Holocaust.」 The victims were #Chinese, #Filipinos , #Koreans and even #Australian women were forced to be their sex slaves. Nanking Massacres .Sex slavery. more rapes .Human experimentation Unit731 and more killings. In fact Korea was under Japanese colony even way before the WW2. Its been 100years since then.And we havent still got one sincere apology. They are still #denying and trying to #cover_up their crimes.Calling the victims of forced sex slavery the "Comfort Women" Japan has managed to make it sound like those little girls were there to comfort them. They were dragged far away from their homes.They were tortured raped and killed. Their average age were 13. Now the #survivors from that war don't have much time left. There are only 22 survivors left in South Korea and very few in China and Philippines.Three of the victims passed away recently. These women and the victims of the forced labor are still waiting for one sincere Apology . That is all the victims are asking for .So please help these victims to speak out and make sure Japanese government doesnt delete all these victims from our history. They have taken 500.000 of South korea's cultural properties .Among them there are 200.000 documented Korea's history books .Other historical documents are all burnt by the Japanese Army. South Koreans dont know their own history.We learn asian history by Chinese documents. We need them back .Help us I trully hope government of Japan realizes what it is like to be forgiven before they all pass away. With that one sincere apology and forgiving ;we all can start better new relationship. Hoping our descendants dont go through these historical problems with the Japanese government.And its about time we adults teach them what "Justice" is. So please help us tell the world what had happened and let these victims know that they will not be forgotten and be erased from the asian history. Thank you for reading through. Your caring and sharing our story will mean a lot to the victims. Sincerely, JCH Global. Kyla Kim
To achieve transparent, open and dignified care for all our elderly with the right care.
I have worked as a health care professional for over 25 years in the United kingdom and Europe where I gained my qualification as a Registered General Nurse from 1994. In that time I have seen many changes in the health and social care system the latter being a lack of funding and resources for the most vulnerable people in our society. Recently I witnessed very poor care and a real lack of education and structure to a private health care organisation which were asking for extremely high funding which didn't equal the level of care the individuals recieved. This made me so sad and also helpless, although I followed the process of escalating my concerns and informing the right professionals this had a profound effect on my overall health. I feel that there needs to be far more work carried out in private health care for our most vulnerable people as they are being failed by companies who are making millions to house them and "care" but in reality there is a real crisis on employing the best candidates and adequately train the staff to ensure they are equipt to carry out appropriate care and also there are enough employees to ensure residents needs are being met as in reality this rarely happens.
Allow the kidney transplant uncle Lenny needs to survive!
What if you woke up this morning and were told you have only 4-6 months to live? I know personally I would initially question this theory relentlessly, next I would cry to no avail, go through all the emotions I have felt throughout my lifetime associated with sadness pain and regret, obviously exhaust every possible option/treatment I could find to live even for just a little longer and ultimately be forced to say my final goodbyes to the ones I love and hold dear to my heart. That’s just me...but this heartbreaking reality isn’t about me...but it is about someone I love and cherish tremendously. Meet my uncle Lenny. The sweetest man I have ever know! With the most contagious smile! You don’t know him personally but I’ll attempt to paint you a picture that’s engrained in my brain of him...let me start by telling you this! I literally can never pass a hot wheel car without associating it with him. Seems small and maybe trivial to some but if you knew Lenny and read this you would just smile and let out a giggle and know exactly why lol! Ya know...all throughout my childhood and as I grew older I cannot recall a day when he didn’t have one in his hands! Some of you may think come on now leila no way surely there is at least one day you may have missed! But nope no way no how y’all! Seriously true story he would come barreling out of his bedroom down the hallway to my nanas kitchen on a daily basis hot wheels in each hand saying Leila I got a new hot wheel you want to see my new hot wheel?! No less than 5 times lol but hey that’s my uncle Lenny! Huge grin from ear to ear repeating that same line over and over again to no avail until he knew without a shadow of a doubt you first heard him, second took the time to acknowledge the fact you heard him and lastly said absolutely Lenny you know I want to see that new hot wheel! That’s where that huge grin comes into play I was telling you about...and it’s contagious y’all because I then get that heart warming I just wanna throw my arms around and bear hug you like crazy because I know you are the best uncle ever and I just need you to know I’m just as happy as you are in that moment kinda grin! Yup it’s that amazing � and every time I would see that grin I couldn’t help but let out a little giggle. Now I know this may not seem close to home to those of you who don’t know Lenny. I do however know several of you can relate at least and have your own form of an “uncle Lenny” in your life. Imagine this were your “uncle Lenny” and you lived majority of your life knowing him as this carefree, and almost jolly man you adore and love only to wake up to a truth that will ultimately destroy you... I’m going to introduce you to the uncle Lenny in my life present day. This is my uncle Lenny. He is currently in renal failure. One of his kidneys has shut down and the other one is at about 15%. He was given 4-6 months to live. We were informed dialysis is not an option and he would not qualify for a transplant because he is "mentally retarded" which clearly leaves him with no options other than the death sentence the hospital has handed over to him. Which has left us (his family) grasping at every straw within reach to hopefully save him and at the very least bring awareness to the deranged law regarding no transplants for mentally ill individuals! There are things I know he will never be able to do. For instance he will never be able to drive a vehicle, hold a highly regarded position in a lucrative company and more than likely will never marry someone but what I do know is he has achieved several goals he pursued. He has absolutely worked a job suitable for him after being deemed permissible, he has loved with his entire heart and has done that better than anyone I know and he is contrary to belief a contributing member to society! He is capable of accomplishing extraordinary things given the opportunity to live. My uncle Lenny is my little piece of home. The one person I can think of when the day comes to an end, the dust settles and I have a chance to reflect on that specific day...the day I may have thought was awful...and realize it could be a lot worse. My uncle faces so many obstacles and has had all odds stacked against him his entire life yet he still manages to keep that massively contagious smile plastered on his face and a hot wheel in each hand! That’s the aha moment when I realize my day really wasn’t that bad. It could have been worse. Then move on and try to make it better. Smack that smile on my face maybe not a hot wheel in each hand though. Mine are filled with my two littlest girls hands that I love and adore with the same love he showed and taught me everyday of my life and hope he gets to show them one day given the chance to live. I strongly believe there isn’t a soul that should should be capable of deeming another human life worthy of not living or not capable of receiving an organ to live because of a mental handicap they possess. Everyone’s life matters. Handicapped or not. There was a case just like ours back in 2012 only it was a 3 year old little girl. Her parents fought back and did just as I am doing now and they ultimately won! They brought so much awareness hospitals and legislatures were forced to do the right thing and ultimately she received her kidney transplant and went on to live her life! So I’m asking all of you to please find it in your hearts to help us. Help us save my uncle Lenny. Help us to fight back and change these laws to hopefully save a life and many many more! Maybe even god forbid your “uncle Lenny” one day. � let’s make a change starting now! I want to take this opportunity to say thank you to each and every one of you that chooses to help in any way shape or form in advance and say we will forever be grateful for your help and support and will advocate for you as well if ever needed! We love all of you! Thank you!
Change HIPAA rules dealing with addiction.
As someone with a very close cousin who has battled addiction for 10 years now, it is obvious to me that the HIPAA Privacy Rule needs immediate change. The HIPAA Rule must change so that it allows patients’ families to be notified immediately of any medical issues/updates regarding the patient. I understand that it protects the patient’s rights, however, in a situation where someone, like my own cousin, is rushed to the hospital due to a drug overdose, these privacy rights should be thrown out the window. Families have the right to know what is going on with their loved one. My cousin has fortunately survived two overdoses, yet still refuses help and continues to use drugs like heroin. A person who uses drugs on a regular basis is clearly not in the right state of mind, and should not be granted the ability to sign themselves out of rehab, especially without any family members being notified of their whereabouts. There comes a certain point where a person’s well-being should be put before their privacy rights. Drug addicts can not make rational decisions and therefore it should not be their sole responsibility to make decisions regarding their health. Recently, my cousin was administered Narcan to save her life after she overdosed. She ordered the hospital to send her parents home and because of the HIPAA Rule, they had no choice but to leave. Because of my cousin’s right to “legal privacy,” she has the ability to sign herself out of the hospital without her parents being notified. This leaves her parents in the dark as to whether she is alive and safe, or has overdosed alone somewhere. One time, my cousin signed herself out of rehab and her parents were not even told that she had left the facility. Days later, her mother arrived at the rehab facility to visit and support her. It was not long until she realized that her daughter was missing. In 2017 alone, over 70,000 people died of drug overdoses. A number of them were able to escape from their families and go under the radar with the help of the HIPAA Rule. If we could help just a fraction of the victims of drug abuse, we could make an enormous change in society by saving many lives and creating worry free parents. The HIPAA Privacy Rule continues to allow people like my cousin to sneak away and obtain their next high, possibly their last. Please sign and make a difference.