Nevada State House
Nevada State House
Change Nevada Law to Protect our Pets like we do our Children
Last Year SB 409 was introduced in Nevada by Mark Manendo, Nicole Cannizzaro, David Parks; Kelvin Atkinson, Yvanna Cancela, Moises Denis, Julia Ratti, Tick Segerblom, Pat Spearman and Joyce Woodhouse.Manendo, Cannizzaro and Parks were the primary sponsors of this bill. In short, the state gave immunity to First Responders should they need to break into a vehicle to save an animal in distress but failed to protect you and I, the everyday citizen! Read a full copy of the bill here. The purpose of this petition is to get them to re-introduce a new bill this year to add "Good Samaritan" to Nevada State Law. In Nevada it is illegal to leave a child or animal in a hot vehicle, however, according to State Law you can ONLY break in the vehicle to save the child. You can be held civilly AND criminally liable to saving the animal. It's time that changed! Even on a perfectly lovely 75°F day, it only takes 10 minutes for the internal temperature of a car to rise above 100°F! And on a sweltering summer day at 100°F, it’s pretty much immediately too hot for an animal to be left in the car as temps can reach 150°F within minutes! In Nevada, the "Good Samaritan Law" protects Law Enforcement, Fire Fighters, Animal Control and other "First Responders" from any civil liability should they break a vehicle window to rescue a pet in distress that has been left in an extremely hot or cold car unattended. (NRS 202.575). What we need is a law the protects a private citizen, like you or I, should we come face to face with this situation. As it is now, a private citizen is required to call 311 (or their local non-emergency phone number) to report the situation. A call to 911 is ONLY allowed when the pet is in serious danger of dying. You are NOT PERMITTED to touch the vehicle! So, how do you know if there’s enough danger to the animal to require action?1. How hot is too hot?* In areas like Las Vegas, even 70°F is to hot, because in a vehicle with the windows rolled up, temperatures can fly well past 100°F in a matter of minutes!2. What can and should you do to help an animal in a hot or cold car?* According to Nevada State Law, you can't do ANYTHING, except call the police, and if and when they show up, hope the animal hasn't died by then. 3. Not to mention, what can you legally do to rescue that animal, and is it legal to break the car window?* It is ILLEGAL in Nevada to attempt or break into a vehicle to save an animal. How State Rules Differ About Rescuing Animals From Hot Cars In many states, (AZ, CA, CO, DE, FL, IN, MA, OH, TN & WI) ordinary citizens are granted legal immunity if they damage someone’s vehicle to rescue “an animal.” There is pending legislation in AL & OR. Other states, like Nevada, DO NOT have “Good Samaritan” laws that protect ordinary citizens who rescue animals that are trapped in hot cars. Does this mean that you could or should run around, willy-nilly, smashing car windows with rocks if you live in a state that grants you legal immunity? Of course not. What it does mean is that Nevada needs to get in line with several other states and protect our animals. Citizens can break a car window to save a child, but not an animal. This does not make sense! Sign the petition to send a message to our Elected Officials that it's time to protect our animals like we do our children. Because to some, our animals ARE our children!
Congress: Let all children of U.S. military service members unite with their families!
I’m Jenifer Bass, a U.S. Navy veteran, who served for 10 years, one-third in the Asia-Pacific region. It was due to my travel between ports in countries like Japan and Thailand that I first encountered amerasian children, and descendants, of U.S. service members and civilian contractors previously stationed overseas. Filipino Amerasians are abandoned and neglected biracial children of Filipino mothers and American fathers (mostly members of the US armed forces). In the Philippines alone, more than 52,000-plus children were born and left behind after the U.S. Navy withdrew the last of its military personnel in 1992. Right now, the U.S. government won’t legally recognize them as U.S. citizens, despite having been born to an American parent. The Philippine Embassy won't help them either. As a former US colony between 1898 and 1946, the Philippines was home to millions of US soldiers and their dependents, even after its independence. Until 1992, the country hosted two of the largest US military facilities outside the US – Clark Air Base and Subic Naval Base, which played major roles during the Vietnam and first Gulf wars. In 1982 US Public Law 97-359, or the Amerasian Act of 1982, allowed children from Korea, Vietnam, Laos, Kampuchea, or Thailand to move to the US and eventually become American citizens, but those who were from the Philippines were excluded from the law, an exclusion which was upheld by the US Senate on the basis that many Filipino Amerasians were “conceived from illicit affairs and prostitution”, and were born during peacetime. Today, there are estimated to be more than 250,000-plus children. Many amerasians are caught in a no-man’s land of discrimination and poverty -- most left behind by U.S. service members who are unaware that they’ve fathered children overseas. My friend John Haines is one of these sailors. In 2011, John discovered he was the father of a half-Filipino daughter, Jannette. He attempted to unite with her through the American Homecoming Act -- but was frustrated to learn that the Act did not apply to Filipino children of U.S. service members. Today, all John wants is to be united with his daughter and grandchildren. He, like so many other veterans are living with a “hole in their hearts” as they search for ways to unite with their children. There is hope. The Uniting Families Act of 2018, HR 1520, creates a specialized visa allowing military veterans and eligible civilian contractors to sponsor their children and grandchildren for U.S. citizenship. Currently, blood relationship must be proven by DNA test and the total number of visas granted will be capped at 5,000 each year. The issue takes on more urgency as so many of our veterans from our wars in Southeast Asia are getting older and dying each day -- without the chance to connect, or in some cases, reconnect with their own children. John’s daughter Jannette has already undertaken the DNA testing process, conclusively proving her relationship to her American father. All she’s waiting for is the opportunity to permanently unite with her father. There is a PBS documentary, "Left by the Ship" (2010), documenting a day in the life and the personal struggles as a Filipino amerasian on the never ending search for identity and their struggles to connect to their American military families. Please sign this petition to tell Congress that these families cannot wait another day. Pass the Uniting Families Act of 2017, HR 1520, now!
Impeach Judge Gloria M. Navarro
We the People of the United States petition the U.S. House of Representatives to impeach Judge Gloria M. Navarro of the U.S. District Court for the District of Nevada for committing treason and collaborating in the insurrection against the Constitutional authority of the federal government pursuant to Article I Section 8 Clause 15, Article 3 Section 3 and Article 2 Section 4 of the U.S. Constitution, 18 U.S.C. § 2831 and 18 U.S. § Code 2383. Whereas Judge Navarro, at the direction of the FBI, BLM, and other federal agencies, is unlawfully detaining (Amendment VIII of the Bill of Rights & 18 U.S.C. § 3142), and has been for over nine months, prominent activists within the Citizens for Constitutional Freedom political movement for exercising their First Amendment protected rights—protesting against federal government overreach [the fact it had sold 9,000 acres of public land bordering Bundy Ranch and other people who own grazing rights to the division to a Communist Chinese energy firm represented by Rory Reid (Harry Reid's son), EMM, for $4.5 million, $34.1 million less than its value, and began rounding up the Bundy’s cattle and holding them in inhumane conditions … at least 60 purportedly suffering death or missing]—and, in order to suppress C4CF 's education of the People, they have been charged by the FBI for violating 18 U.S.C. § 371 - Conspiracy to Commit an Offense Against the United States; 18 U.S.C. § 372 - Conspiracy to Impede and Injure a Federal Officer; 18 U.S.C. § lll(a)(l) and (b) - Assault on a Federal Officer; 18 U.S.C. § 115(a)(l)(B) - Threatening a Federal Law Enforcement Officer; 18 U.S.C. § 924(c) - Use and Carry of a Firearm in Relation to a Crime of Violence; 18 U.S.C. § 1503 - Obstruction of the Due Administration of Justice; 18 U.S.C. § 1951 - Interference with Interstate Commerce by Extortion; 18 U.S.C. § 1952 - Interstate Travel in Aid of Extortion; 18 U.S.C. § 2 - Aiding and Abetting. Among the political prisoners are Cliven, Ammon, Ryan and Mel Bundy, Peter Santilli (a journalist), Ryan Payne, Blaine Cooper, Eric Parker and Jerry DeLumus—all of whom provide C4CF with necessary influence. Whereas the discovery comprises substantial evidence proving the innocence of the defendants but is being concealed from the public at the order of Judge Navarro (in violation of Amendment VI of the Bill of Rights and Rule 26 of the Federal Rules of Criminal Procedure). These prisoners have also been subjected to mistreatment by the FBI, U.S. Marshall Service and employees of the correctional facilities. Whereas Judge Navarro is consciously proceeding with falsified charges filed by the FBI against C4CF and refusing to grant motions to dismiss after learning that Sheriff Douglas Gillespie and many other local, state and federal officials ordered the BLM to return the cattle to the Bundy’s and withdraw from the land, and being presented with relevant laws [Article I Section 8 Clause 17 & Article IV Section 3 Clause 2 of the U.S. Constitution, Rule 501 of the Federal Rules of Evidence and Nevada Revised Statute 568.225] were presented to her by the defense. Whereas, after being ordered by Sheriff Gillespie to stand down, Special Agent Dan P. Love of the BLM continued to impede on the rights and jurisdiction of the People of Clark County and all People of Nevada unabated; Committing acts of aggression that should be considered attempts to seriously injure or even kill peaceful protesters, including tazing several individuals and using blunt force (some already challenged by physical disabilities)—an apparent result of its militarization. Sheriff Gillespie stated that "anyone who had been in policing would question their tactics." Whereas Judge Navarro is participating in a cover up of the suppression by the FBI (by way of COINTELPRO tactics) of the right to the free exercise of religion, freedom of speech, freedom of the press, peaceful assembly, and petition the Government for a redress of grievances. One of the main functions of government is to enforce contracts, and in this case not only is the government failing to enforce a contract but it is also the contractor, and have abridged their obligations in addition to preventing the contractee(s) [Cliven Bundy—We the People] from discharging our duties enumerated in Article I Section 8 Clause 15 & 16 of the U.S. Constitution & 10 U.S.C. § 311 and pursuant to Rule 501 of the Federal Rules of Evidence. Whereas Judge Navarro has proven herself unfit to be an impartial Federal Judge; Consistent to the extreme bias expressed by her assistance given to the federal government and its usurpation of power and by covering up the inhumane treatment of political activists who are being unlawfully detained for exercising their rights protected by the First Amendment to enforce the rule of law—to establish justice, insure domestic Tranquility, secure the Blessings of Liberty to ourselves and our Posterity, guarantee a Republican Form of Government, and secure the right to life, liberty and property, as ordained by the Creator in the U.S. Constitution.
Remove the penalty that prevents people with disabilities from marrying!
When we think of marriage equality, we think about the ongoing fight LGBT couples face, but another minority group must deal with the stark reality that they are better off living in long-term committed relationships, without marriage. Like LGBT couples, these couples are denied the right to over 1,100 rights afforded to married couples. They have been denied access into their loved ones hospital rooms, faced family disputes over wills and have been denied spousal benefits from their partners workplace or the government in the event of their partners death. These are people with disabilities. Many people rely on the government for medical and financial assistance. Without medical insurance they would have no way to live independently. They would be forced into nursing homes (some already are), which would cost the government significantly more than getting Medicare and/or Medicaid does. At the same time, this assistance comes with a price. The government expects married couples to share income and that affects any assistance the couple receives. For many, their spouse makes too much (even if they make meager SSDI payments). This cuts into the healthcare services these couples receive. For some, their able-bodied partners make too much to allow them to qualify for medical assistance, if married, but not enough to pay out of pocket for costly medical equipment, medicine, or any other needs the disabled partner has. Add in the fact that even when a person with a disability can work, the opportunity for quality medical insurance is hard to find, due to their pre-existing condition and you will understand why many couples with disabilities are forced to live in domestic partnerships. Also, if two people with disabilities marry and they are on SSI or SSDI, their payments are CUT significantly, making it hard for them to maintain independence and afford their own food, shelter, clothing or other necessities. The time to stand up is now!! Let your Senators and Representatives know you want to remove the income caps placed on individuals with disabilities, so they can keep the government assistance and still be able to get married. Every loving couple deserves the right to marry. No one should have to choose between their wheelchair and their love, their therapy and their love, their medication and their love, their ability to eat or have a roof over their head and their love!! Those are not choices!! Help make it possible for those with disabilities to share their love without being penalized!Join our fight for marriage equality for people with disabilities:https://www.facebook.com/MarriageEqualityForPeopleWithDisabilities
Pass a Sexual Assault Survivors' Bill of Rights in Nevada
I'm calling on legislators in Nevada to pass a Sexual Assault Survivors' Bill of Rights that will guarantee comprehensive, common sense civil rights for survivors: Rise’s Five Key Civil Rights: 1. The right to not have your rape kit destroyed before either 20 years or the statute of limitations has passed (whichever is longer).2. The right to be notified of your civil rights related to a sexual assault.3. The right to not be charged for your own rape kit examination.4. The right to access your own medical record related to a rape kit examination.5. The right to a copy of your own police report. Over forty states have backlogs for untested kits. Some states do not cover the full medical expenses of a kit, leaving survivors to pay their own way towards justice. Most states destroy rape kits before the statute of limitations for the crime has passed. The lack of these rights has inspired us to act. This is a crisis for 25 million survivors across America, and it's time for our legislators to do something about it. Sign this petition, then learn more at our website -- and if you have a few minutes to contribute to the cause, take a look here at the quick, easy, ways you can make an impact now!
Call for Blue States to Move On
What happened to make this country the focus of judgment, laughter, and fear from the rest of the world? The industrialized world outside of the United States enjoys a better quality of life and general happiness that most of us can only imagine. First class education, comprehensive health care, clean food/water/air and an overall better relationship with their fellow citizens. And as a country, we have higher mortality rates at younger ages, poorer health, and an impoverished population who can't learn new skills without going deeper into debt. As much as we like to blame Donald Trump for our national problems; these problems were here before him, and they will still be here if Trump is removed from office tomorrow. We have a political system that centralizes power to a consolidated political center in Washington, DC and an economic center in New York City. Our Electoral System will isolate the power to determine the direction of our political system to a very small, easily manipulated portion of the electorate in a strategic location.Worst of all, we have a large portion of the population who will empower a mentally unstable man to the highest office in the world; just so they can say “We Won”. This group is constantly complaining about a simply lost world with plentiful jobs in their communities. And now, they have the nerve to complain about losing the federal government programs they benefited from and voted against.It's time we said “ENOUGH” and have Progressive States and Communities band together and share resources and ideas to provide a better quality of life for its people, that the Trump Administration wants to take away. And furthermore, we need to ensure that we only support States and Communities who will change their policies for its people. We can no longer provide assistance to the Red States, just so they can abuse and neglect their citizens for business interests. For the future of this nation, we need to explore every legal method possible to protect the people from an extremely dangerous President Trump. A Values-Based Alliance of the States (VBAS) is one way of resisting this new reality of government, and the dangerous changes that we all know are inevitable. I understand that the constitution will not allow us to directly stop this monstrosity, but it will allow us to devalue it. A VBAS of certain states with similar values and policy preferences can and will use its population centers and economic influence to co-op, share resources, and implement policies with other co-opted states, while not having to depend on or engage the federal government. Examples: There are certain states with a majority of people that believe single-payer healthcare system (CA, MA, VT, NY, WA, OR, IL, HI.). If those states passed laws to provide single payer health care for its people, a Single Payer Healthcare VBAS organization of those states can share resources to improve efficiencies, expand medical training/education amongst the co-opted states, negotiate pharmaceutical/treatment, amend needed tax policies and petition the US Government. This would also force neighboring states to decide if they want to change their internal policies to provide single payer, so they can join the Health Care VBAS. A resident of Indiana might ask his state to join the VBAS because he could literally see his next-door neighbor in Illinois fully covered, and using a Doctor that just came back from his training at a medical school in California.Although the VBAS states cannot legally sign the Paris accords, they can change their internal policies to abide by its recommendations. There could be an environmental protection VBAS, where the states involved agree to abide by the Paris accords, improve safety protocols within its states, take climate change seriously, and provide economic preference to states and nations that do the same. CA, OR, NY, MA, VT, WA HI, and NV could agree to be a preferred customer of states or nations that voluntarily reduce its carbon emissions and address climate change, instead of LA or TX, which most likely will not.Other issues could include minimum wage, education, trade agreements, gun control and virtually every policy not adjudicated solely by the federal government.As more VBASes are organized and more states agree to join them, Donald Trump and the ignorance of future presidents become less and less relevant. Please sign this petition and pass it on to as many people as possible.
Don't deport Gerardo Suarez, father of Afghanistan War Veteran!
_______________________________________________________________ Victory! ALRIGHT EVERYONE! SMALL VICTORY, BUT A VICTORY INDEED! MY father was just released on his Own Recognizance. It's not over, but my father doesn't have to suffer in jail anymore. Now we are awaiting the hearing with the Immigration Judge. CONTINUE TO PRAY STEADFAST. Pray for the softening of the judge's heart. We now have a chance to actually present his case! WOOO! PRAISE GOD! Thank you to all the petition signers, everyone who wrote their Congress, ICE, DHS, Senators, and our Governor. Your support has been paramount, and I'm proud to be an American, standing alongside all of you who helped. THANK YOU! God bless you all! _______________________________________________________________ ORIGINAL MESSAGE: Hello Everyone, As we all know, our country is in drastic need of Immigration Reform. Immigrants are fighting for their lives to be with their families day and night. As an American Soldier, and U.S. Citizen I have witnessed and experienced the hardship of battle, and separation from family whilst serving a tour overseas in Afghanistan. I have just returned home on January 15th 2012, with no injuries and all thanks to God. As of March 24th 2012, just 69 days after my post-deployment transition, my father, who is a Legal Permanent Resident, was taken by ICE Agents in my living room while I was asleep. My father has lived in the USA as a Legal Permanent Resident since 1989. 14 Years ago he was convicted of a Class D felony, and was sentenced to Probation which he was discharged Honorably (and early) because of good conduct. Since his conviction, my father has learned his lesson and completely turned his life around. As a child, my father was distant, because of type of lifestyle he was involved in. Yet, I knew he loved me, and his children, and he always took care of me as best he could. His addiction to drugs (which at the time, I was unaware of) was starting to overpower him, and finally our home was raided. After 1998, when my father was honorably discharged, he took proactive steps to make our life better. We went from poverty, to living in a room in a relative's house, to eventually renting our own place. My dad worked painstakingly hard trying to find good work to support me, pay for college, and raise me. For years, nobody would hire him. He worked odd jobs, here and there, but nothing significant enough to really get our own place to live. Finally, in 2007 he got a big break, and was hired by Veolia Transportation, driving and serving the citizens of Las Vegas on the Citizens Area Transit Bus. He was so proud. His pay was finally good enough to start saving, and he did just that. Often times telling me: "Everything I have here is for you, son." He would sacrifice his whole day doing work that very rarely gets recognition. Day in and Day out he'd wake up at 2am, deal with the abuse of the passengers, and the inability to take breaks despite working 14 hour days. He always lived by "Hard work, is good work." He always talked to me about principles of life, teaching me to "obey and submit to authority." "Strive, work hard, make investments and save money." He was really focused on setting me in the right track. In 2008, I enlisted in the Nevada Army National Guard, and 2 years later I was promoted to Sergeant. When I first heard word of my impending deployment, my dad was broken hearted. The look on his face, when I told him that I was leaving to Afghanistan was filled with shock, worry, disdain, and bitter sadness. My father suffered for a year without me in 2011, often times not even knowing if I would make it home, or if the phone would ring again with my voice on the other end. However, he remained so strong, and really played an instrumental role in my service. He would always encourage me, comfort me with scriptures, provide advice on leading my troops, and giving me the strength to move forward day by day waiting for the longest 365 days until I can reunite with him. My father has been an active member of our church, Calvary Chapel Green Valley, where he would attend regular Military Ministry meetings, often times comforting family members of deployed soldiers. While I was gone, he would spend his weekends attending the church's "Downtown Outreach" where he would feed the homeless, give them bibles, support, prayer, and minister to them. When I finally returned him this past January, my father greeted me with tears of joy. He was so happy, and proud of his son's service. He would often brag about the medals I got, my rank, and about the accomplishments during my deployment to his friends, and the cashiers at the local grocery store. It was a bit embarrassing to say the least, but that's how he showed his love and pride. I guess the picture I am trying to paint is that my father, yes he made a mistake 14 years ago, was drastically changed from that. He is a completely different man! Gone are the days where he'd be cooped up in his room with his "friends". Gone are the days, where we would barely even talk because he was too doped up. In fact, my father is a proud patriot, parent of a soldier, a productive member of society, a servant of the public sector, a tax payer and an amazing, christian father. He has taught me so much, and honestly even now, as I face his incarceration and possible deportation proceedings, all of his training that he has instilled in me is kicking in. Without it, I would have been an unorganized mess. I owe everything to my father, and even as a soldier, my performance in duty, and decorations are a direct result of his input. My father has been instrumental in my morale, my troop's morale and most importantly my re-integration into society after experiencing war. My whole family is full of Servicemen, U.S. Citizens, and law enforcement. To strip him away from me is both shattering to my morale, well-being, and inspiration to strive. This year, when I returned we were already planning to buy a house, and have signed our paperwork. I was planning to fulfill my lifelong dream of taking care of him. He is a 54 year old man, and he's turning 55 this year. He's a frail image of what he used to be in his younger days, and as his son, I've always wanted to care for him. The Arrest: The sad morning transpired as my father responded to knocks on the door by ICE Agents. My father, being as docile as he is opened the door. He was under the impression that they were just "policemen." They began asking him questions about his truck that he owned. Worried, my father opened the door a little more and started asking if everything was alright. One ICE agent already put his foot in the door. Well, noticing that, my father asked them "Who are you?" To which only a badge was shown, but no positive Identification from the agents. Nothing stating that they were ICE or anything like that. Well, a little confused, he said "come in the living room, I will brush my teeth. I just woke up." My dad ran upstairs, brushed his teeth and came back down. They began interviewing him, asking questions about his prior conviction. Moments later, they said "We have to take you in for questioning" and without a warrant of any sort, they started to cuff him. My dad submitted, as he felt it was the right thing to do (and it was). As they took him out of the house, he said "My son just returned from Afghanistan. Please let me say goodbye to him" to which they replied "No." My dad called my name, in hopes I'd awake so he can say goodbye. Sadly, I didn't hear him. The ICE Officer then walked upstairs, rummaged through my dad's belongings to get his Green Card, Wallet and House Keys. I woke up that morning thinking he was kidnapped, when I then received a call from ICE saying they had my father in custody. As a veteran who fought to protect the freedoms, and defend the constitution of this great nation this situation poses questions: Was my fight in vain? Why serve a federal duty, protect freedom, if my family will get immediately separated? I am proud of my service this great country. I know my sacrifice will not be in vain, because of everyone here that makes this place so great! I am urging anyone who sees this petition to please help me. My father is all I have. He is my motivation, my inspiration, my best friend, and most of all: MY HERO! A great man. He's a father of four, a grandfather, an Uncle, and a brother and a friend to many. A 55 year old man, that just wants to love his family, and is loved very much by them. If he is deported to the Philippines, there is no life there for him. He doesn't have the protections of Equal Employment Opportunity in a country where age discrimination is so rampant; Therefore, he wont be able to support himself. All of his brothers, sisters, friends, and most of his children are here. There is nobody there to take care of him. His life is here in America. He has nothing there. It is an old country that he left 24 years ago. My father has already done his time, and he is now a contributing member of society. He pays his taxes, he loves his family, he gives to his church, ministers to members of his community, and lives his life just. He should be allowed to stay, because he has earned that right. I hope my sacrifice has helped earn his right as well. Thank you for your consideration, Sincerely, Sergeant Marc-Johann Suarez B 422nd Expeditionary Signal Battalion
United Health Care Health Plan of Nevada: Stop denying out of network, life-saving care to patients.
Amaris Hayden is an English professor at the College of Southern Nevada and the mother of a 17-year-old son. She has devoted her life to helping and nurturing others. Today, she lies dying in a hospital bed because her insurer, United Healthcare, is refusing treatment to save her life. In the late 90s, Amaris discovered that she suffered from a rare and terminal disease that required a transplant for both lungs. After two transplants, she was able to finish college and graduate school, become a professor of English and raise a son to near adulthood. Tragedy struck recently, though, when her body began rejecting the donated lungs. She has spent the last few weeks dying in a hospital in Las Vegas, hoping that bureaucrats at United Healthcare of Nevada will relent and finally allow her the life-saving care she so desperately needs. Amaris needs to be transferred from the hospital she is at in Nevada, where she teaches, to the University of Washington Transplant Ward in Seattle. If she isn’t transferred soon, she will die. But United Healthcare is refusing the transfer, because UW is out of network. No hospitals that are in network can give Amaris the treatment she needs. Is this was people work for? Is this the American dream? During life and death situations, hardworking Americans are left with a never-ending insurance bureaucracy that seems intent to kill you before doctors can treat you? No one deserves to have some paper-pusher decide whether or not he/she has the right to live. This is absolutely criminal. Everyone should know about Amaris’ story, because her story could become the story of any one of us. Please send complaints via Twitter. United Health Care's Their handle is @myUHC and make sure you use the hashtag #SAVEAMARIS. Let them have it.
Save Lives: Require Spinal Muscular Atrophy Newborn Screening
August is Spinal Muscular Atrophy (SMA) Awareness Month. Please join our efforts to require SMA newborn screening, and help end the deadly effects of SMA. About SMA: • SMA is the number one genetic killer of babies and children under the age of two.• SMA is a motor neuron disease like ALS.• SMA robs the ability to move, swallow, and eventually breathe. • One in 40 unknowingly carries the gene responsible for SMA.• When two carriers have a baby, there is a 25% chance the baby will have SMA, a 50% chance the baby will be a carrier, and a 25% chance the baby will be unaffected.• One in 10,000 babies is born with SMA. The FDA approved Spinraza as the first treatment for SMA on December 23, 2016. However, newborns continue to go untreated when they would receive the most benefit, as no states are performing SMA newborn screening. Newly diagnosed Type 1 SMA babies treated with Spinraza didn't lose their ability to move, swallow, and breathe, but instead gained strength. Some even crawled and took steps — steps away from the deadly effects of SMA. Newborn babies treated within the first two weeks never lost abilities to SMA, and developed as average babies do. They crawl, eat, stand, and walk. Only newborns with older SMA siblings have been treated this way, as their parents knew to screen for SMA. Every newborn needs to be screened for SMA, so babies born with SMA can develop just as babies without SMA do. For this to happen, SMA needs to be added to the Recommended Uniform Screening Panel (RUSP), states need to require SMA newborn screening, and funding needs to be provided for SMA newborn screening. The Advisory Committee on Heritable Disorders in Newborns and Children (Committee) is scheduled to vote to add SMA to the RUSP at its February, 2018 meeting. Once the Committee votes favorably to add SMA to the RUSP, the Secretary of the Department of Health and Human Services (HHS) will add SMA to the RUSP. This is an important step, as many states look to the RUSP when adding new conditions to screen for. This petition will be delivered to both the Committee, and the Secretary of HHS. States also need to require newborn screening, as the RUSP is only a recommendation, it does not mandate states to test for conditions. We will continue to pursue SMA newborn screening in every state, and this petition will help our efforts. Missouri is the only state to enact newborn screening legislation, and will begin screening for SMA in January of 2019. Federal and state funds are also needed to begin and continue SMA newborn screening. This petition will help us as we advocate for funding with the appropriate federal and state congressional members. Act Now: With an FDA-approved treatment, it is urgent we secure SMA newborn screening. Newborn babies treated within the first two weeks will have the best chance at progressing as they would without SMA. Every baby born with SMA should be afforded this life-saving treatment. Please sign our petition urging Committee to vote to add SMA to the RUSP, urging states to require SMA newborn screening, and urging federal and state congressional members to provide funding for SMA newborn screening.
Stop Potential Nuclear Disaster in Nevada
As a state which doesn’t have any nuclear power plants, Nevada should be the last state that needs a nuclear waste dump. Yet, the Department of Energy and Congress are trying to screw up Nevada again. In 1987, Congress directed the Energy Department to build a single dump in Nevada to hold the nuclear waste produced by the entire nation. The site was chosen at Yucca Mountain, which was about 90 miles away from Las Vegas. Shocked by the legislation, the state of Nevada successfully fought back the first several attempts at bringing the construction into action. However, the Trump administration has proposed spending 120 million dollars to restart the process. As residents of Nevada, we have to stand up and say no to this legislation. Even though scientists and lobbyists claim that the nuclear waste dump facility is absolutely safe for the surrounding area, it is not entirely true. In February 2014, a radiation leak was spotted in a waste isolation pilot plant located in New Mexico. Although no personal or environmental damage was caused, the clean-up work now ranks one of the most expensive projects in U.S. history. Besides, Nevada ranks fourth in the nation for current seismic activity. Six hundred and twenty-one seismic events with a magnitude greater than 2.5 were spotted within a 50-mile radius of Yucca Mountain since 1976. In other words, potential earthquakes could seriously threaten the safety of the nuclear waste storage in the planned site. Not only the storage site could cause a potential risk, transportation of spent nuclear fuel to the dump site could also cause a huge problem to Nevada. Although rather unlikely, should a contamination happen, it can cause unrepairable damage to the state. Nevada, as a state, relies heavily on her tourism industries. More than 50% of her state tax income is from sales taxes and gaming taxes, which mostly are contributed by the tourists. Nevada learned her lesson in 2008 about how fragile this type of economic system could be. We certainly do not need another recession in our tourism economy. Nevada has given her fair contribution to American’s nuclear development. She was the nuclear weapon test ground during the World War II and the Cold War Era. Nevada does not need to be the “trash can” for the rest of the United States. While the state legislature needs to take a stronger stance, we, as residents of Nevada, need to unite together and let the elites in Washington D.C. hear our voice. Besides helping me signing this petition, there are several other ways you can help to save Nevada from getting screwed: Senator Dean Heller https://www.heller.senate.gov/public/index.cfm/contact-form Senator Catherine Cortez Masto https://www.cortezmasto.senate.gov/contact Governor Brian Sandoval http://gov.nv.gov/contact/ President Donald Trump Twitter: @realDonaldTrump (yes, this might actually work for this president)