Nevada State House
Nevada State House
Congress: Let all children of U.S. military service members reunite with their families
I’m Jenifer Bass, a U.S. Navy Veteran, who served for 10 years mostly in the Asia-Pacific region. It was due to my travel between ports in countries like Japan and Thailand, that I first encountered Amerasian children (and descendants) of U.S. sailors and military contractors previously stationed overseas. In the Philippines alone, more than 52,000-plus children were left behind after the U.S. Navy withdrew the last of its military personnel in 1992. Right now, the U.S. government won’t recognize them as U.S. citizens, despite having been born to an American parent. Many Amerasians are caught in a no-man’s land of discrimination and poverty -- most left behind by U.S. sailors who are unaware that they’ve fathered children overseas. My friend John Haines is one of these sailors. In 2011, John discovered he was the father of a half-Filipino daughter, Jannette. He attempted to reunite with her through the American Homecoming Act -- but was frustrated to learn that the Act did not apply to Filipino children of U.S. Service members. Today, all John wants is to be reunited with his daughter and grandchildren. He, like so many other veterans are living with a “hole in their hearts” as they search for ways to reunite with their children. There is hope. The Uniting Families Act of 2016 creates a specialized visa allowing military veterans and eligible civilian contractors to sponsor their children and grandchildren for U.S. citizenship. Blood relationship must be proven by DNA test and the total number of visas granted will be capped at 5,000 each year. The issue takes on more urgency as so many of our veterans from our wars in Southeast Asia are getting older and dying each day -- without the chance to reconnect with their own children. John’s daughter Jannette has already undertaken the DNA testing process, conclusively proving her relationship to her American father. All she’s waiting for is the opportunity to permanently reunite with her dad. You can find them in the Amerasian group pages on Facebook. Search angel services are available to both sides.There is a PBS documentary called "Left by the Ship" (2010), the video above, documenting everyday life and their personal struggles as a Filipino Amerasian on the never ending search for identity and their struggle to connect to their American military fathers, to bridge the gap between the past and the present. Please sign this petition to tell Congress that these families cannot wait another day. Pass the Uniting Families Act of 2016 now!
Remove the penalty that prevents people with disabilities from marrying!
When we think of marriage equality, we think about the ongoing fight LGBT couples face, but another minority group must deal with the stark reality that they are better off living in long-term committed relationships, without marriage. Like LGBT couples, these couples are denied the right to over 1,100 rights afforded to married couples. They have been denied access into their loved ones hospital rooms, faced family disputes over wills and have been denied spousal benefits from their partners workplace or the government in the event of their partners death. These are people with disabilities. Many people rely on the government for medical and financial assistance. Without medical insurance they would have no way to live independently. They would be forced into nursing homes (some already are), which would cost the government significantly more than getting Medicare and/or Medicaid does. At the same time, this assistance comes with a price. The government expects married couples to share income and that affects any assistance the couple receives. For many, their spouse makes too much (even if they make meager SSDI payments). This cuts into the healthcare services these couples receive. For some, their able-bodied partners make too much to allow them to qualify for medical assistance, if married, but not enough to pay out of pocket for costly medical equipment, medicine, or any other needs the disabled partner has. Add in the fact that even when a person with a disability can work, the opportunity for quality medical insurance is hard to find, due to their pre-existing condition and you will understand why many couples with disabilities are forced to live in domestic partnerships. Also, if two people with disabilities marry and they are on SSI or SSDI, their payments are CUT significantly, making it hard for them to maintain independence and afford their own food, shelter, clothing or other necessities. The time to stand up is now!! Let your Senators and Representatives know you want to remove the income caps placed on individuals with disabilities, so they can keep the government assistance and still be able to get married. Every loving couple deserves the right to marry. No one should have to choose between their wheelchair and their love, their therapy and their love, their medication and their love, their ability to eat or have a roof over their head and their love!! Those are not choices!! Help make it possible for those with disabilities to share their love without being penalized!Join our fight for marriage equality for people with disabilities:https://www.facebook.com/MarriageEqualityForPeopleWithDisabilities
#ProgressiveDisruption by the States
What happened to make this country the focus of judgment, laughter, and fear from the rest of the world? The industrialized world outside of the United States enjoys a better quality of life and general happiness that most of us can only imagine. First class education, comprehensive health care, clean food/water/air and an overall better relationship with their fellow citizens. And as a country, we have higher mortality rates at younger ages, poorer health, and an impoverished population who can't learn new skills without going deeper into debt. As much as we like to blame Donald Trump for our national problems; these problems were here before him, and they will still be here if Trump is removed from office tomorrow. We have a political system that centralizes power to a consolidated political center in Washington, DC and an economic center in New York City. Our Electoral System will isolate the power to determine the direction of our political system to a very small, easily manipulated portion of the electorate in strategic location. Worst of all, we have a large portion of the population who will empower a mentally unstable man to the highest office in the world; just so they can say “We Won”. This group is constantly complaining about a simple world with plentiful jobs in their communities that are extinct or never really existed. And now, they have the nerve to complain about losing the federal government programs they benefitted from and voted against. It's time we said “ENOUGH” and have Progressive States and Communities band together and share resources and ideas to provide a better quality of life for its people, that the Trump Administration wants to take away. And furthermore, we need to ensure that we only support States and Communities who will change their policies for its people. We can no longer provide assistance to Red States, just so they can abuse and neglect their citizens for business interests. For the future of this nation, we need to explore every legal method possible to protect the people from an extremely dangerous President Trump. A Values Based Alliance of the States (VBAS) is one way of resisting this new reality of government, and the dangerous changes that we all know are inevitable. I understand that the constitution will not allow us to directly stop this monstrosity, but it will allows us to devalue it. A VBAS of certain states with similar values and policy preferences can and will use its population centers and economic influence to co-op, share resources, and implement policies with other co-opted states, while not having to depend on or engage the federal government. Examples: There are certain states with a majority of people that believe single payer healthcare system (CA, MA, VT, NY, WA, OR, IL, HI.). If those states passed laws to provide single payer health care for it’s people, a Single Payer Healthcare VBAS organization of those states can share resources to improve efficiencies, expand medical training/education amongst the co-opted states, negotiate pharmaceutical/treatment, amend needed tax policies and petition the US Government. This would also force neighboring states to decide if they want to change their internal policies to provide single payer, so they can join the Health Care VBAS. A resident of Indiana might ask his state to join the VBAS, because he could literally see his next door neigbor in Illinois fully covered, and using a Doctor that just came back from his training at a medical school in California. Although the VBAS states can not legally sign the Paris accords, they can change their internal policies to abide by its recommendations. There could be an environmental protection VBAS, where the states involved agree to abide by the Paris accords, improve safety protocols within its states, take climate change seriously, and provide economic preference to states and nations that do the same. CA, OR, NY, MA, VT, WA HI, and NV could agree to be a preferred customer of states or nations that voluntarily reduces its carbon emissions and address climate change, instead of LA or TX, which most likely will not. Other issues could include minimum wage, education, trade agreements, gun control and virtually every policy not adjudicated solely to the federal government. As more VBASes are organized and more states agree to join them, Donald Trump and the ignorance of future presidents become less and less relevant. Please sign this petition and pass it on to as many people as possible.
Don't deport Gerardo Suarez, father of Afghanistan War Veteran!
_______________________________________________________________ Victory! ALRIGHT EVERYONE! SMALL VICTORY, BUT A VICTORY INDEED! MY father was just released on his Own Recognizance. It's not over, but my father doesn't have to suffer in jail anymore. Now we are awaiting the hearing with the Immigration Judge. CONTINUE TO PRAY STEADFAST. Pray for the softening of the judge's heart. We now have a chance to actually present his case! WOOO! PRAISE GOD! Thank you to all the petition signers, everyone who wrote their Congress, ICE, DHS, Senators, and our Governor. Your support has been paramount, and I'm proud to be an American, standing alongside all of you who helped. THANK YOU! God bless you all! _______________________________________________________________ ORIGINAL MESSAGE: Hello Everyone, As we all know, our country is in drastic need of Immigration Reform. Immigrants are fighting for their lives to be with their families day and night. As an American Soldier, and U.S. Citizen I have witnessed and experienced the hardship of battle, and separation from family whilst serving a tour overseas in Afghanistan. I have just returned home on January 15th 2012, with no injuries and all thanks to God. As of March 24th 2012, just 69 days after my post-deployment transition, my father, who is a Legal Permanent Resident, was taken by ICE Agents in my living room while I was asleep. My father has lived in the USA as a Legal Permanent Resident since 1989. 14 Years ago he was convicted of a Class D felony, and was sentenced to Probation which he was discharged Honorably (and early) because of good conduct. Since his conviction, my father has learned his lesson and completely turned his life around. As a child, my father was distant, because of type of lifestyle he was involved in. Yet, I knew he loved me, and his children, and he always took care of me as best he could. His addiction to drugs (which at the time, I was unaware of) was starting to overpower him, and finally our home was raided. After 1998, when my father was honorably discharged, he took proactive steps to make our life better. We went from poverty, to living in a room in a relative's house, to eventually renting our own place. My dad worked painstakingly hard trying to find good work to support me, pay for college, and raise me. For years, nobody would hire him. He worked odd jobs, here and there, but nothing significant enough to really get our own place to live. Finally, in 2007 he got a big break, and was hired by Veolia Transportation, driving and serving the citizens of Las Vegas on the Citizens Area Transit Bus. He was so proud. His pay was finally good enough to start saving, and he did just that. Often times telling me: "Everything I have here is for you, son." He would sacrifice his whole day doing work that very rarely gets recognition. Day in and Day out he'd wake up at 2am, deal with the abuse of the passengers, and the inability to take breaks despite working 14 hour days. He always lived by "Hard work, is good work." He always talked to me about principles of life, teaching me to "obey and submit to authority." "Strive, work hard, make investments and save money." He was really focused on setting me in the right track. In 2008, I enlisted in the Nevada Army National Guard, and 2 years later I was promoted to Sergeant. When I first heard word of my impending deployment, my dad was broken hearted. The look on his face, when I told him that I was leaving to Afghanistan was filled with shock, worry, disdain, and bitter sadness. My father suffered for a year without me in 2011, often times not even knowing if I would make it home, or if the phone would ring again with my voice on the other end. However, he remained so strong, and really played an instrumental role in my service. He would always encourage me, comfort me with scriptures, provide advice on leading my troops, and giving me the strength to move forward day by day waiting for the longest 365 days until I can reunite with him. My father has been an active member of our church, Calvary Chapel Green Valley, where he would attend regular Military Ministry meetings, often times comforting family members of deployed soldiers. While I was gone, he would spend his weekends attending the church's "Downtown Outreach" where he would feed the homeless, give them bibles, support, prayer, and minister to them. When I finally returned him this past January, my father greeted me with tears of joy. He was so happy, and proud of his son's service. He would often brag about the medals I got, my rank, and about the accomplishments during my deployment to his friends, and the cashiers at the local grocery store. It was a bit embarrassing to say the least, but that's how he showed his love and pride. I guess the picture I am trying to paint is that my father, yes he made a mistake 14 years ago, was drastically changed from that. He is a completely different man! Gone are the days where he'd be cooped up in his room with his "friends". Gone are the days, where we would barely even talk because he was too doped up. In fact, my father is a proud patriot, parent of a soldier, a productive member of society, a servant of the public sector, a tax payer and an amazing, christian father. He has taught me so much, and honestly even now, as I face his incarceration and possible deportation proceedings, all of his training that he has instilled in me is kicking in. Without it, I would have been an unorganized mess. I owe everything to my father, and even as a soldier, my performance in duty, and decorations are a direct result of his input. My father has been instrumental in my morale, my troop's morale and most importantly my re-integration into society after experiencing war. My whole family is full of Servicemen, U.S. Citizens, and law enforcement. To strip him away from me is both shattering to my morale, well-being, and inspiration to strive. This year, when I returned we were already planning to buy a house, and have signed our paperwork. I was planning to fulfill my lifelong dream of taking care of him. He is a 54 year old man, and he's turning 55 this year. He's a frail image of what he used to be in his younger days, and as his son, I've always wanted to care for him. The Arrest: The sad morning transpired as my father responded to knocks on the door by ICE Agents. My father, being as docile as he is opened the door. He was under the impression that they were just "policemen." They began asking him questions about his truck that he owned. Worried, my father opened the door a little more and started asking if everything was alright. One ICE agent already put his foot in the door. Well, noticing that, my father asked them "Who are you?" To which only a badge was shown, but no positive Identification from the agents. Nothing stating that they were ICE or anything like that. Well, a little confused, he said "come in the living room, I will brush my teeth. I just woke up." My dad ran upstairs, brushed his teeth and came back down. They began interviewing him, asking questions about his prior conviction. Moments later, they said "We have to take you in for questioning" and without a warrant of any sort, they started to cuff him. My dad submitted, as he felt it was the right thing to do (and it was). As they took him out of the house, he said "My son just returned from Afghanistan. Please let me say goodbye to him" to which they replied "No." My dad called my name, in hopes I'd awake so he can say goodbye. Sadly, I didn't hear him. The ICE Officer then walked upstairs, rummaged through my dad's belongings to get his Green Card, Wallet and House Keys. I woke up that morning thinking he was kidnapped, when I then received a call from ICE saying they had my father in custody. As a veteran who fought to protect the freedoms, and defend the constitution of this great nation this situation poses questions: Was my fight in vain? Why serve a federal duty, protect freedom, if my family will get immediately separated? I am proud of my service this great country. I know my sacrifice will not be in vain, because of everyone here that makes this place so great! I am urging anyone who sees this petition to please help me. My father is all I have. He is my motivation, my inspiration, my best friend, and most of all: MY HERO! A great man. He's a father of four, a grandfather, an Uncle, and a brother and a friend to many. A 55 year old man, that just wants to love his family, and is loved very much by them. If he is deported to the Philippines, there is no life there for him. He doesn't have the protections of Equal Employment Opportunity in a country where age discrimination is so rampant; Therefore, he wont be able to support himself. All of his brothers, sisters, friends, and most of his children are here. There is nobody there to take care of him. His life is here in America. He has nothing there. It is an old country that he left 24 years ago. My father has already done his time, and he is now a contributing member of society. He pays his taxes, he loves his family, he gives to his church, ministers to members of his community, and lives his life just. He should be allowed to stay, because he has earned that right. I hope my sacrifice has helped earn his right as well. Thank you for your consideration, Sincerely, Sergeant Marc-Johann Suarez B 422nd Expeditionary Signal Battalion
United Health Care Health Plan of Nevada: Stop denying out of network, life-saving care to patients.
Amaris Hayden is an English professor at the College of Southern Nevada and the mother of a 17-year-old son. She has devoted her life to helping and nurturing others. Today, she lies dying in a hospital bed because her insurer, United Healthcare, is refusing treatment to save her life. In the late 90s, Amaris discovered that she suffered from a rare and terminal disease that required a transplant for both lungs. After two transplants, she was able to finish college and graduate school, become a professor of English and raise a son to near adulthood. Tragedy struck recently, though, when her body began rejecting the donated lungs. She has spent the last few weeks dying in a hospital in Las Vegas, hoping that bureaucrats at United Healthcare of Nevada will relent and finally allow her the life-saving care she so desperately needs. Amaris needs to be transferred from the hospital she is at in Nevada, where she teaches, to the University of Washington Transplant Ward in Seattle. If she isn’t transferred soon, she will die. But United Healthcare is refusing the transfer, because UW is out of network. No hospitals that are in network can give Amaris the treatment she needs. Is this was people work for? Is this the American dream? During life and death situations, hardworking Americans are left with a never-ending insurance bureaucracy that seems intent to kill you before doctors can treat you? No one deserves to have some paper-pusher decide whether or not he/she has the right to live. This is absolutely criminal. Everyone should know about Amaris’ story, because her story could become the story of any one of us. Please send complaints via Twitter. United Health Care's Their handle is @myUHC and make sure you use the hashtag #SAVEAMARIS. Let them have it.
Impeach Judge Gloria M. Navarro
We the People of the United States petition the U.S. House of Representatives to impeach Judge Gloria M. Navarro of the U.S. District Court for the District of Nevada for committing treason and collaborating in the insurrection against the Constitutional authority of the federal government pursuant to Article I Section 8 Clause 15, Article 3 Section 3 and Article 2 Section 4 of the U.S. Constitution, 18 U.S.C § 2831 and 18 U.S. § Code 2383. Whereas Judge Navarro, at the direction of the FBI, BLM, and other federal agencies, is unlawfully detaining (Amendment VIII of the Bill of Rights & 18 U.S.C. § 3142), and has been for over nine months, prominent activists within the Citizens for Constitutional Freedom political movement for exercising their First Amendment protected rights—protesting against federal government overreach [the fact it had sold 9,000 acres of public land bordering Bundy Ranch and other people who own grazing rights to the division to a Communist Chinese energy firm represented by Rory Reid (Harry Reid's son), EMM, for $4.5 million, $34.1 million less than its value, and began rounding up the the Bundy’s cattle and holding them in inhumane conditions … at least 60 purportedly suffering death or missing]—and, in order to suppress C4CF 's education of the People, they have been charged by the FBI for violating 18 U.S.C. § 371 - Conspiracy to Commit an Offense Against the United States; 18 U.S.C. § 372 - Conspiracy to Impede and Injure a Federal Officer; 18 U.S.C. § lll(a)(l) and (b) - Assault on a Federal Officer; 18 U.S.C. § 115(a)(l)(B) - Threatening a Federal Law Enforcement Officer; 18 U.S. C. § 924(c) - Use and Carry of a Firearm in Relation to a Crime of Violence; 18 U.S.C. § 1503 - Obstruction of the Due Administration of Justice; 18 U.S.C. § 1951 - Interference with Interstate Commerce by Extortion; 18 U.S.C. § 1952 - Interstate Travel in Aid of Extortion; 18 U.S.C. § 2 - Aiding and Abetting. Among the political prisoners are Cliven, Ammon, Ryan and Mel Bundy, Peter Santilli (a journalist), Ryan Payne, Blaine Cooper, Eric Parker and Jerry DeLumus—all of whom provide C4CF with necessary influence. Whereas the discovery comprises substantial evidence proving the innocence of the defendants but is being concealed from the public at the order of Judge Navarro (in violation of Amendment VI of the Bill of Rights and Rule 26 of the Federal Rules of Criminal Procedure). These prisoners have also been subjected to mistreatment by the FBI, U.S. Marshall Service and employees of the correctional facilities. Whereas Judge Navarro is consciously proceeding with falsified charges filed by the FBI against C4CF and refusing to grant motions to dismiss after learning that Sheriff Douglas Gillespie and many other local, state and federal officials ordered the BLM to return the cattle to the Bundy’s and withdraw from the land, and being presented with relevant laws [Article I Section 8 Clause 17 & Article IV Section 3 Clause 2 of the U.S. Constitution, Rule 501 of the Federal Rules of Evidence and Nevada Revised Statute 568.225] were presented to her by the defense. Whereas, after being ordered by Sheriff Gillespie to stand down, Special Agent Dan P. Love of the BLM continued to impede on the rights and jurisdiction of the People of Clark County and all People of Nevada unabated; Committing acts of aggression that should be considered attempts to seriously injure or even kill peaceful protesters, including tazing several individuals and using blunt force (some already challenged by physical disabilities)—an apparent result of its militarization. Sheriff Gillespie stated that "anyone who had been in policing would question their tactics." Whereas Judge Navarro is participating in a cover up of the suppression by the FBI (by way of COINTELPRO tactics) of the right to the free exercise of religion, freedom of speech, freedom of the press, peaceful assembly, and petition the Government for a redress of grievances. One of the main functions of government is to enforce contracts, and in this case not only is the government failing to enforce a contract but it is also the contractor, and have abridged their obligations in addition to preventing the contractee(s) [Cliven Bundy—We the People] from discharging our duties enumerated in Article I Section 8 Clause 15 & 16 of the U.S. Constitution & 10 U.S.C § 311 and pursuant to Rule 501 of the Federal Rules of Evidence. Whereas Judge Navarro has proven herself unfit to be an impartial Federal Judge; Consistent to the extreme bias expressed by her assistance given to the federal government and its usurpation of power and by covering up the inhumane treatment of political activists who are being unlawfully detained for exercising their rights protected by the First Amendment to enforce the rule of law—to establish justice, insure domestic Tranquility, secure the Blessings of Liberty to ourselves and our Posterity, guarantee a Republican Form of Government, and secure the right to life, liberty and property, as ordained by the Creator in the U.S. Constitution.
Trophy Hunting is Senseless and should be Illegal
It is understandable that some people must hunt animals for food. But, the senseless slaughter of animals for trophies, should be illegal in this country. Is it any wonder why people dislike Americans all around the world when it is predominantly us that pay for trophy hunts through organizations such as the Safari Club? These hunts even include endangered species from all around the world. They also sponsor hunts to kill our own animals such as the Alaskan bears and the dwindling California wild cats. We are asking for common sense legislation that would make it illegal for any American to hunt ANY endangered species here or around the world. Americans seeking to adorn their walls with a majestic animal such as an elephant or lion should be prosecuted (read about Cecil the Lion killed in a cowardly way and left to die slowly in pain with an arrow in his side). An American dentist was the last being he saw as he died slowly from his wounds. A minimum of 30 days in jail and a $100,000 fine would be a good start. These fees should be spent on education about the destruction caused by these cowardly hunters in terms of the costs of the animals lost, the perpetuation of hatred of our people from abroad and even the ridiculous amount of money spent by these people to kill defenseless animals in the wild "legally". We are asking that all nature lovers and other fair-minded Americans stand up to these senseless activities which are based on arrogance, ignorance and a lack of compassion. It's time we speak out for those that cannot do so for themselves and ask our federal and state legislatures to condemn these people and pass common sense laws to protect animals here and abroad from these savage activities. As Americans, we are better than this. We share this world with many species that deserve our protection. Let us be an example of compassion and conservation rather than destruction around the world and here at home.
Take action to end human trafficking in Nevada
The Nevada General Assembly is considering legislation to help combat human trafficking, and your help is needed! A critical bill to help victims of sex trafficking to restart their lives has just passed the Assembly Judiciary Committee, and we need to keep the momentum going. Human trafficking is one of the fastest growing criminal industries in the world. Traffickers reap billions in profits by using force, fraud or coercion to rob victims of their freedom through labor or commercial sex. Experts estimate that there are a minimum of approximately 5,100 to 60,500 people trafficked into and within the U.S. each year and an estimated 100,000 American children who are prostituted within the U.S. each year -- a brutal form of human trafficking. In Nevada, victims of sex trafficking and involuntary servitude include US citizens, foreign nationals, minors and adults. Traffickers and pimps force and coerce victims into commercial sex, and require them to meet a daily quota or be subjected to additional abuse or torture. Victims are often forced to provide commercial sex in massage parlors, brothels operated in residential homes, and on the street where pimps control and sell victims for sex. Victims are commonly advertised on internet sites like Backpage.com and sold to many men in a single night in hotels or motels or at truck stops. This brutal crime is happening in Nevada – but you can help to combat it by taking action now. Critical legislation, AB6, which will help victims of sex trafficking, has just passed the Assembly Judiciary Committee and will now head to the full floor for a vote. Your help is needed to ensure its passage!
Save Lives: Require Spinal Muscular Atrophy Newborn Screening!
This petition is part of the Kick Away SMA Challenge created by Hunter's Hope to help end the deadly effects of SMA. We are proud The FAST Movement partnered with us for the Kick Away SMA Challenge, including the petition for newborn screening for SMA. Please join us in our efforts to require SMA newborn screening. SMA is the number one genetic killer of babies and children under the age of two. SMA robs the ability to move, swallow, and eventually breathe. However, the SMA community knows this will soon change. The SMA community watched in amazement as Type 1 SMA babies treated with Nusinersen didn't lose their ability to move, swallow, and breathe, but instead gained strength. Some even crawled and took steps — steps away from the deadly effects of SMA. Although there is no cure for SMA, each day a treatment comes closer to FDA approval. American companies Biogen, Inc. and Ionis Pharmaceuticals recently announced plans to file for FDA approval of Nusinersen. Biogen will also offer a global expanded access program (EAP) for SMA Type 1 patients who meet the EAP criteria. About SMA: • SMA is the leading genetic killer of babies and children under the age of two.• SMA is a motor neuron disease like ALS.• SMA robs the ability to move, swallow, and eventually breathe. • One in 40 unknowingly carries the gene responsible for SMA.• When two carriers have a baby, there is a 25% chance the baby will be unaffected, a 50% chance the baby will be a carrier, and a 25% chance the baby will have SMA.• One in 10,000 babies is born with SMA. Hunter's Story: Doctors diagnosed our son, Hunter Davis, with SMA Type 1 when he was just eight weeks old. They told us Hunter would lose the ability to move, eat, swallow, and eventually breathe. Doctors told us there was no cure, no treatment, and no hope. They said he would likely survive between three and five months. We were devastated beyond belief. The doctors were wrong. Hunter received his first life-saving treatment outside the US when he was sixteen weeks old. We travel to Mexico with Hunter every six weeks for his treatments. He is now five years old and has received forty-four treatments. The hardest part has been watching other babies and children with SMA continue to deteriorate or, worse, lose their battles with SMA. We wish newborn screening had been in place when Hunter was born. He would have benefited more from receiving his life-saving treatments sooner. Heidi's Story: Doctors diagnosed Heidi Hall with Type 1 Spinal Muscular Atrophy when she was three months old. Heidi could only move a little bit at her elbows at that time. Her body was as hypotonic as a little ragdoll’s, and she was unable to support her head whatsoever. Doctors told her family she would lose all ability to move, then the abilities to swallow and breathe, and ultimately suffocate on her own secretions or die of pneumonia. This was expected to happen within one year of her diagnosis. None of that happened. Heidi was accepted into a clinical trial for a possible treatment for SMA, a disease that has been viewed as hopeless, particularly the severe Type 1. It is not hopeless. The drug Nusinersen has reversed the course of Heidi’s disease. Rather than deteriorating, she has slowly gained strength and abilities. She is able to breathe on her own, swallow, and sit with support. She is now even able to propel herself in a small, manual wheelchair. Heidi began to receive the trial drug at five months and would have benefited even more from a diagnosis at birth that would have resulted in earlier intervention. Ella's Story: Ella Hunt was born beautiful and seemingly healthy. This changed at 4 months, when doctors diagnosed her with the fatal disease SMA Type 1. Doctors told Ella's parents she would soon die and sent them home, where they began the process of planning her funeral. Ella's parents quickly shifted gears and turned to the SMA community to help save her. Thanks to that help, Ella just turned five, and although SMA has weakened her body, her fighting spirit remains strong. Unlike Hunter and Heidi, Ella hasn't received treatments for her SMA. She lost the ability to move and swallow. However, with daily therapies and diet protocol at the helm, she and her family wait for the hope of treatments and ultimately a cure. Ella's family wishes more than anything that newborn screening and the Nusinersen treatment had been in place when she was born. SMA Trials Nearing FDA Approval: Although there is currently no FDA-approved treatment or cure for SMA, two clinical trials come closer to FDA approval each day. These treatments are Ionis's Nusinersen and AveXis's AVXS-101. They have the potential to make SMA a manageable disease. To be most effective, it is imperative treatments are administered as soon after birth as possible. Act Now: We believe the FDA will soon approve Nusinersen. The time to act is now. We can help end the deadly effects of SMA. Newborn screening must be in place when SMA treatments receive FDA approval. Every baby born with SMA should be afforded life-saving treatment. Please sign our petition asking states to enact legislation requiring SMA screening for newborns. Support our efforts by following us on Facebook: Kick Away SMA & Hunter's Hope.
Justice for Keith Childress Jr.
This letter serves as a written complaint, a demand for transparency, and justice for citizens that fall victim to the failure of officers within LVMPD to follow policies and safety procedures established to prevent death and/or serious bodily injury to the citizens of our community. LVMPD Use of Force Policy includes some of the following statements, “Officers do have the ability to impact the direction and the outcome of many of the situations they handle, based on their decision-making and the tactics they choose to employ.” “Officers should … attempt to slow momentum; … use tactics and alternatives to higher levels of force; … they may withdraw to a more tactical position.” Trust in LVMPD is compromised when a citizen can be shot down in broad day light and inconsistencies of the investigation are exposed. Our community has in the past and is now again being unwillingly subjected to the shame of the growing trend across our nation of military style armed officers that are trained to shoot first then scramble to cover mistakes, prevent justice, and NOT indict for murder later. The citizens of Las Vegas, North Las Vegas, and surrounding areas in Clark County demand accountability and responsibility for errors. We want a thorough, honest, and transparent investigation, including active DA involvement and oversight in the entire process. We expect that this complaint and the ongoing investigation is handled in a professional manner in line with the quoted mission statements listed above of LVMPD. Specific demands include as listed below to allow for a FULLY transparent investigation and disclosure to the affected family: WE DEMAND, due to inconsistent and inaccurate reporting, that the District Attorney supervises the investigation process, and provides direct input of recommendations regarding this case and future cases as well. WE DEMAND, the immediate release of training, experience, and personnel records of the involved officer’s, Sgt. Robert Bohanon and Officer Blake Walford to include any past complaints and resolutions. WE DEMAND, full Transparency of the investigation to the family, including ALL unedited Body/ Dash Cam footage from time of initial call, and ALL 911/ and dispatch recordings of the incident. And further WE DEMAND, the release of the Firearm Dispatch Report, FIT Investigation Report, CIRT Review, and the involved officer’s, Sgt. Robert Bohanon and Officer Blake Walford, Public Safety Statements. Date of Occurrence: December 31, 2015 Time of Occurrence (approximate): 2pm Complaint Type: Investigation Practices of Officer Involved Shootings Name(s) of Employee(s): Sgt. Robert Bohanon and Officer Blake Walford. Location of Incident: 8335 Gilden Crown Court, Las Vegas, NV Specific Complaint: Unjust MURDER of Keith Childress Cc: Mayor Carolyn G. Goodman; Sheriff Joseph Lombardo; District Attorney Steven B. Wolfson; Governor Brian Sandoval
DNR is the ones who needed to be Prosecuted. and the tax payers are funding this orogram?
DNR is the ones who needed to be Prosecuted. and the tax payers are funding this orogram?