American Heart Association
American Heart Association
American Heart Association to put Congenital Heart Defects on their Home Page
Congenital Heart Defects (CHD) also the most common Birth Defect. We are born with Defects and have repairs but there is no cure, we are under observation and treatment for our life span. People with CHD carry the burden of an often misunderstood condition and the lack of awareness of Congenital Heart Defects. There are 40 types of Heart Defects and many are born with combinations of these Defects. 1 in 100 people are born with Congenital Heart Defects.
Pericarditis testing for Children and Teens.
My son nick passed away May 11th 2016 after he went into cardiac arrest because he had pericarditis ( fluid on his heart) . My son was seen at Adams county regional medical center may 9th having chest pain and feeling fatigued and wheezing my mom took him in where they let him sit for 4 hours not once did a doctor check him out or listen to his chest the nurses took his vitals they did xrays and a ekg and then the doctor decided from that my son had bronchitis and gave him antibiotics and cough pills and when they were discharging him they checked his vitals and his blood pressure had dropped low but they said it was ok and discharged him by the next day my son started running fever and was wheezing worse and light headed and his chest hurting worse we tried getting him into his family doctor and they wouldn't see him because they were over booked so we had to continue with the antibiotics and cough pills then by the 11th my son couldn't walk hardly was sleeping alot and wasn't eating and still very wheezy and chest pains and fever .I rushed him to Cincinnati children's hospital where my son went into cardiac arrest and never came back they tried 45 mins to revive him. So I'd like to get doctors to A. Do testing for pericarditis in children and teens when chest pains involved. B. Have hospitals do more tests when a child is having low blood pressure and chest pains. A ecg could have saved him C. Doctors take more time to understand a patient's condition and complaints not just blow them off. D. Give every patient the care they deserve regardless of medical insurance held or not having any at all. E. Doctors be trained to know even children and teens can have heart disease or heart problems and how to properly treat them. If i can save even 1 child suffering from pericarditis and save another parent from the pain of losing a child then its worth it. Pericarditis is fluid around the heart and i had never heard of it before my son passed away i feel there's just not enough knowledge of the disease and we need to bring this to others attention and make sure children and teens are tested for this because no child should be shrugged off and let down by health care facilities. 1 test could have saved my only son a ecg and a high dose of ibprophen he would be here. Its completely treatable. But that hospital that doctor failed my child.
Stop promoting lung cancer stigma in the media
For years, anti-smoking ads effectively reduced smoking by emphasizing negative images of smokers afflicted with lung cancer. Unfortunately, these ads caused the public to equate smoking and lung cancer, and villianized smokers and lung cancer patients instead of tobacco and tobacco companies. This "smoking equals lung cancer" meme is persistent, pervasive, and generates lung cancer stigma. Lung cancer stigma increases depression and blame among patients and their family members, reduces compassion and funding for lung cancer, hinders awareness of other lung cancer risk factors, and discourages those at high risk from seeking lung cancer screening that could save their lives. The "smoking equals lung cancer" meme is unfair and inaccurate. The Centers for Disease Control and Prevention (CDC) and the National Cancer Institute (NCI) state smoking affects every organ in the body and is a risk factor for twelve cancers as well as sixteen other diseases, including heart disease, the biggest killer of all. In fact, more people die of smoking-related cardiovascular disease than die of lung cancer. But publications and media usually mention smoking and smoking cessation only in association with lung cancer. This reinforces the stigma. What do we want?We're asking US and global cancer organizations, media companies, researchers, and professional organizations to help reduce lung cancer stigma by reducing the "smoking equals lung cancer" mindset. We're asking they do this by using the following tactics in their communications: avoid using any images of tobacco products in communications about lung cancer refer to smoking as a RISK FACTOR for cancer (instead of a cause) when discussing smoking in association with lung cancer, include references to other known risk factors for lung cancer avoid featuring communications about smoking and smoking cessation in proximity to lung cancer communications whenever possible discuss smoking and smoking cessation in association with EVERY cancer (not just lung cancer) and every disease linked to smoking Why do we care? Lung cancer is the most deadly cancer. In the US alone, a jumbo jet's worth of lung cancer patients die every day. One in sixteen people in the US will get it in their lifetime, and about 80% of them will be nonsmokers. Organizations that promote smoking cessation focus on lung cancer patients (most of whom do not smoke) rather than ALL patients whose diseases are linked to smoking. The fact is, smoking cessation cannot cure ANY cancer, nor guarantee a person will not get lung cancer. Because of stigma, many people don't know that anyone with lungs can get lung cancer, and that lung cancer research is funded at a level far less per death that other major cancers. Members of the Lung Cancer Social Media (#LCSM) community want to change these facts in our lifetimes. You can learn more about lung cancer stigma here https://lcsmchat.com/lung-cancer-stigma-references/Supporters of this petition include [names of lung cancer organizations]
Cardiopulmonary resuscitation certification for high school gradation
This petition looks to increase the numbers of certified people in cardiopulmonary resuscitation (CPR) by supporting Pennsylvania Senate Bill Number 521. This bill will make it a requirement that students in grades 9-12 take a CPR class and obtain a certification as a part of their high school graduation requirements. By passing this bill we will increase the number of persons in the community to respond, identify, and intervene in those who are suffering from a cardiac arrest. The overall goal of the bill is to increase the number of certified individuals in CPR within our communites and increase the chances of surviving a cardiac arrest.
40 ACRES AND A MULE REPARATIONS FOR MOST HIGH CHILDREN
INTRODUCTION Harriet Tubman became famous as a “conductor” on the Underground Railroad during the turbulent 1850s. Born a slave on Maryland’s eastern shore, she endured the harsh existence of a field hand, including brutal beatings. In 1849 she fled slavery, leaving her husband and family behind in order to escape. Despite a bounty on her head, she returned to the South at least 19 times to lead her family and hundreds of other slaves to freedom via the Underground Railroad. Tubman also served as a scout, spy and nurse during the Civil War. In 1849 Tubman fled Maryland, leaving behind her free husband of five years, John Tubman, and her parents, sisters, and brothers. “Mah people mus’ go free,” her constant refrain, suggests a determination uncommon among even the most militant slaves. She returned to the South at least nineteen times to lead her family and hundreds of other slaves to freedom via the Underground Railroad. Utilizing her native intelligence and drawing on her boundless courage, she eluded bounty hunters seeking a reward for her capture, which eventually went as high as forty thousand dollars. She never lost a fugitive or allowed one to turn back. Did You Know? Harriet Tubman's birthname was Araminta Ross. Two things sustained her: the pistol at her side and her faith in God. She would not hesitate to use the pistol in self-defense, but it was also a symbol to instruct slaves, making it clear that “dead Negroes tell no tales.” Timid slaves seemed to find courage in her presence; no one ever betrayed her. She affirmed her faith in God in her statement, “I always tole God, I’m gwine to hole stiddy on to you, an’ you’ve got to see me trou [through].” Tubman collaborated with John Brown in 1858 in planning his raid on Harpers Ferry. The two met in Canada where she told him all she knew of the Underground Railroad in the East. Advising him on the area in which he planned to operate, she promised to deliver aid from fugitives in the region. Brown’s admiration for her was immeasurable, and he wanted her to accompany him on the raid. Tubman planned to be present but was ill at the time and could not participate. Tubman’s resistance to slavery did not end with the outbreak of the Civil War. Her services as nurse, scout, and spy were solicited by the Union government. For more than three years she nursed the sick and wounded in Florida and the Carolinas, tending whites and blacks, soldiers and contrabands. Tubman was a short woman without distinctive features. With a bandanna on her head and several front teeth missing, she moved unnoticed through rebel territory. This made her invaluable as a scout and spy under the command of Col. James Montgomery of the Second Carolina Volunteers. As leader of a corps of local blacks, she made several forays into rebel territory, collecting information. Armed with knowledge of the location of cotton warehouses, ammunition depots, and slaves waiting to be liberated, Colonel Montgomery made several raids in southern coastal areas. Tubman led the way on his celebrated expedition up the Combahee River in June 1863. For all of her work, Tubman was paid only two hundred dollars over a three-year period and had to support herself by selling pies, gingerbread, and root beer. After the war, Tubman returned to Auburn, New York, and continued to help blacks forge new lives in freedom. She cared for her parents and other needy relatives, turning her residence into the Home for Indigent and Aged Negroes. Lack of money continued to be a pressing problem, and she financed the home by selling copies of her biography and giving speeches. Her most memorable appearance was at the organizing meeting of the National Association of Colored Women in 1896 in Washington, D.C. Two generations came together to celebrate the strength of black women and to continue their struggle for a life of dignity and respect. Harriet Tubman, the oldest member present, was the embodiment of their strength and their struggle. Sarah Bradford, Harriet: The Moses of Her People (1886); Earl Conrad, Harriet Tubman (1943); Dorothy Sterling, ed., We Are Your Sisters: Black Women in the Nineteenth Century (1984). This is more than history this is a Biblical moment that our ancestors pave the way for us to have I am being led by the Holy Spirit to start this movement of getting us reparations so that we can heal ourselves from the wounds of our ancestors pain and affliction. I can only imagine to change that this could bring to the people of the Lost tribes I pray that everyone takes heed and understands that this is the time the first will be the last and the last will be the first praise the most high for His blessings Samara Yeshaya
My brother could have lived - Support AEDs in public businesses
My 26 year old brother, Jessie Hayes, died on Sunday, December 17, 2017 inside of a Hammond, Indiana IHOP. When paramedics arrived to the Hammond, Indiana IHOP almost 20 minutes after the 911 call was placed, Jessie was in cardiac arrest, unresponsive and had no pulse. My brother could have lived if there was an AED Defibrillator installed in that IHOP location. The State of Indiana does not mandate public businesses to have an AED Defibrillator unless the business is a health club or a doctor's office. What happens if an employee of a restaurant goes into cardiac arrest and the business is not mandated to have an AED? Will the employee become another "Jessie"? Will a customer become another "Jessie"? Please help me to fight to mandate that all public businesses have an AED Defibrillator installed and that at least one employee is trained and certified in basic life support. My brother was a beloved Supervisor at UPS Hodgkins, IL and left behind his family (including his six-year old son). No family should experience this kind of loss. Let's help to save lives, one life at a time.
Dehumanising nursing image in a soap opera " CLINIC MATTER"
Nursing is a unique profession requiring intellectual and enthusiastic professionalism. It takes a lot of extraordinary qualities to care for the sick and well in various dimension of human existence. Many in the society do not truly understand "who a nurse really is" thus, portraying the image as a servant like, feminine profession for secondary school drop-outs with low intellectual capabilities and dependence on "obeying the last order". In line with the above, 'Clinic matters', a popular household soap opera in Nigeria which started transmission initially on Nigeria Terrestrial Television and now on Satellite bouquet has not only been misinforming the public, but has rubbished, downgraded, degraded and bastardised the image of the nursing profession with impunity! We say " Enough is enough!" Nurses worldwide deserve an apology from the Producer of this image denting soap opera. We hereby demand that: 1.The producers of this program should stop airing the soap opera with immediate effect! 2. The producers of the movie tender a PUBLIC APOLOGY to nurses worldwide. 3. The producers should henceforth work with relevant professionals before releasing any further episodes of the program (either already recorded or presently being shot). If after 30 days of this petition, a media apology is not instituted, we shall be forced to take legal action (local and international) against all those involved in the airing of this program featuring activities that are obviously an insult on the intelligence of Nurses all over the world! Signed. Inspire Nurses Network, Africa.
Help Huntington Disease Warriors get equal opportunities for treatment or Research.
I was approved for a stem cell treatment that was supposed to be only for ALS and it reverses the degenerative damage from my Huntington Disease and improves quality of life. The usa does not offer this. Only, foreign countries. That actually care for these people with horrible diseases. The reason I have to pay is because it's treatment. Meaning, it's been proven to work. However, it's too costly and as most of us know research is free because it's experimental and you never know what could happen. I think if you would ask the HD patients, we are willing to take that risk. I just kindly ask that you share so we can get the same opportunities as the rest of the movement disorder community. I would be so grateful. I'm hoping it gets in the hands of medical vendors and research teams, we can get some answers. Thanks and god bless! Huntington Disease Awareness. What exactly is it? HUNTINGTON DISEASE WARRIOR ADRIENNE·SATURDAY, JUNE 29, 2019 I get asked this quite often. So, I’m providing information from the HDSA link below.Please always feel free to ask. I get more offended when people don’t. :) HD affects the whole brain, but certain areas are more vulnerable than others. Pictured above are the basal ganglia – a group of nerves cell clusters, called nuclei. These nuclei play a key role in movement and behavior control and are the parts of the brain most prominently affected in early HD.What Is Huntington’s Disease?Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities usually during their prime working years and has no cure. HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of inheriting the faulty gene. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.The symptoms of HD are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.Symptoms usually appear between the ages of 30 to 50, and worsen over a 10 to 25-year period. Ultimately, the weakened individual succumbs to pneumonia, heart failure or other complications. Everyone has the gene that causes HD, but only those that inherit the expansion of the gene will develop HD and perhaps pass it on to each of their children. Every person who inherits the expanded HD gene will eventually develop the disease. Over time, HD affects the individual’s ability to reason, walk and speak.Symptoms Include:Personality changes, mood swings & depressionForgetfulness & impaired judgmentUnsteady gait & involuntary movements (chorea)Slurred speech, difficulty in swallowing & significant weight lossThe Huntingtin GeneHuntington’s disease is a hereditary neurodegenerative disorder caused by an expansion of a repeating CAG triplet series in the huntingtin gene on chromosome 4, which results in a protein with an abnormally long polyglutamine sequence. HD is one of a larger family of polyglutamine repeat disorders, all of which diseases. It is inherited in an autosomal dominant fashion, so that each child of an affected parent has a 50% chance of developing the disease. There is currently no cure or treatment which can halt, slow or reverse the progression of the disease.The HD gene was identified in 1993. It contains a repeating sequence of three base-pairs, called a “triplet repeat” or “trinucleotide repeat.” An excess number of CAG repeats in the gene results in a protein containing an excess number of glutamine units.The normal function of huntingtin is not known, but the expanded polyglutamine sequence in the huntingtin protein is in some way toxic to brain cells. Just as in other polyglutamine expansion disorders, certain neurons appear to be more vulnerable to damage in HD. Atrophy is most marked in the corpus striatum of the basal ganglia, including the caudate and putamen. In later phases of the disease, other regions of the brain are also affected.The Progression of HDHuntington’s Disease manifests as a triad of motor, cognitive, and psychiatric symptoms which begin insidiously and progress over many years, until the death of the individual. The average length of survival after clinical diagnosis is typically 10-20 years, but some people have lived thirty or forty years. Late stage HD may last up to a decade or more. https://hdsa.org/what-is-hd/overview-of-huntingtons-disease/ Thank you again!Sincerely,Adrienne Lovett (sorry unable to sign, due to muscle deterioration)
Eat Healthy, Drink Healthy
Children have been eating junk food including processed foods such as frozen foods, and fast foods and they have been drinking sugary drinks like sodas, sports drinks, and juice for so many years. They have access to these junk foods and sugary drinks if there are vending machines present in the schools. I think they remove soda and drink machines with these sugary drinks, and put water, chocolate milk, 1% milk, 2% milk, vitamin d milk and skim milk. They need to also add soy milk, rice milk and almond milk as well, or eliminate drink machines completely. Then they should keep cracker products, party mix, popcorn, pretzels, and Chex mix in the snack machines as oppose to candy bars, chips, cookies, and pastries, or remove the snack machines completely. In school cafeterias, they have ice cream, cookies, pies, cakes, fruit juices, and chips for the kids to buy with lunch. In school cafeterias, they should give popcorn, cracker products, chex mix, and pretzels along with fruits and vegetables in place of junk foods. Instead of serving juice and other sugary drinks, they need to give milk with meals, and water with snacks. In childcare centers, private schools, and preschools, they emphasize the concept of healthy eating and that they are not to bring junk food of any kind to school. With meals, they are served milk, and with snack the kids drink water. Also, children drink water with lunch and snack in some schools because there are kids with certain food allergies. There are no snack or drink machines present in these centers, and same with most private schools. Even if there is no cafeteria in these childcare centers, private schools and preschools, a chef should be available to cook meals for them in a clean kitchen. In half-day preschools and childcare centers, children bring lunch from home. Half-day preschool, childcare teachers and administrators should hire a chef to cook lunch and give a healthy snack each day to the staff and students. Students can have the option of eating school lunch, or bringing lunch from home. Even if children bring lunch from home, the teachers or chefs can give them milk. They can eat the snack given in school with water. They should serve these milk products, milk alternatives, healthy snacks, healthy meals, and water whether or not there is a cafeteria. Fresh fruits and vegetables have more nutrients that children need, compared to juices, sports drinks and soda. Chefs and teachers should feed children more fresh fruits, vegetables, eggs and other protein sources, yogurt, and grains. Children need to drink milk with meals, and water with snacks. They should also cook all the children's meals fresh from scratch, and not feed children processed food. Several frozen meals have lots of preservatives, and the nutrients are not natural because they come from those preservatives. Plus all these processed foods have too much fat, sugar and sodium. Examples of healthy meals are peanut butter and jelly sandwiches, cheese sandwiches, and pasta dishes made from scratch with vegetables on the side. They can even make chicken nuggets, french fries, and other items children enjoy eating from scratch too instead of buying them frozen. Another thing school chefs, teachers, and administrators could do is put a salad bar with fruits, vegetables, chicken, and other meat products, and fresh salad dressings for children and teachers to access during their meal times whether they have a cafeteria or not in all schools. All children need access to a salad bar during lunch time. People in the cafeteria or kitchen should be there to supervise children each time they go. Teachers need to be able to watch the children as they eat their lunch, too. For children with food allergies, such as milk, corn, eggs, nut(s), gluten, meat, or fish allergies, chefs and teachers need to provide the children with food substitutes or alternatives. They should give them soy, almond, or rice milk. Parents need to let the staff know about their children's food allergies. If the school cannot provide alternatives, healthy foods for snack and lunch need to be sent from home. Once a month or everyday, I see some schools ordering fast food for the students and teachers. Instead of ordering fast food, they need to order pizza, tacos, french fries, chicken nuggets, burritos, salads, and sandwiches from fast casual restaurants. They should order food from fast casual restaurants once a month for all students and staff. In teacher's lounges in schools, they have vending machines with all the junk foods and sugary drinks, as well. In those vending machines, I suggest they put coffee, tea, water, and milk, and the same types of healthy snacks they have for children in cafeterias. When kids see their teachers walk in with candy bars, cookies, and other types of junk food and/or sugary drinks, they will be tempted and want to eat them as well. Either vendors and administrators change the types of foods and drinks they have in vending machines for teachers, or eliminate them. Parents who send lunch from home know they should replicate the same principle at home. Even if children take lunch from home, they still need fruits and vegetables. As their first teachers, they know to should teach their children to eat healthy. Children need to still have access to the salad bar in school whether they eat lunch from home, or the food they have in school. Whatever school children go to, the same rule should be implemented. Whether there is a school cafeteria or not, teachers and chefs should serve milk with lunch, and water with snack. Chocolate, lowfat milk (1% and 2% milk), vitamin D milk and skim milk should be given to children. Children who have allergies, or are vegans should be given soy milk, rice milk, or almond milk. Children who are not allergic or are not vegan should have a chance to try the alternatives to milk, too. Sodas, juices and sports drinks contain too much sugar, and it is unhealthy for everybody to drink. Drinking these will cause heart problems, diabetes and weight gain. These health problems will also lead to premature death. Same thing with eating sweets of all kinds excessively. All the nutrients our body needs will also become depleted if we drink all these drinks with meals and snacks. Eating mostly healthy foods, and drinking milk and water is also the key to leading a healthy life.
For all businesses that serve the public have at least 1 person per shift CPR certified.
My grandfather colapsed while shopping at a Walmart in Granite City IL. My grandmother was at check out waiting for him. He was by himself when he collaspsed and had a heart attack. No one employed by Walmart is required to be trained on CPR and there policy is to secure the area and not touch the injured person when a accident happens and call 911. No shoppers were allowed to intervine and he laid on the ground untill the paramedics arived 5 plus minutes later. He passed away 3 days later in ICU at Gateway Hospital in Granite City IL from lack of oxygen to the brain. I am so appauled that no one , not security, not a manager not even a pharmacist or tec could help him. If they were trained on basic CPR and had an AED on site they may have saved his life. I really dont want this to happen to someone else. Walmart is a huge corporation that serves millions of customers. I feel that every business that serves the community should have at least 1 trained person per shift trained on CPR and the use of an AED. I want to get the word out in the hopes that laws and policies change and this could be prevented for another family. My grandfather was 81 and lived a good long life. I believe it may have been his time to leave this earth, but what if a child chokes and goes in to cardiac arrest or a younger person has a heart attack. Every minute in these types of situations is crucial. Large businesses that serve a wide variety of consumers should be prepared in the event something like this happens. Please sign my petition to change policies and let our local goverment know you want a change.