The ARS Gene is a gene that belongs to a group of leukodystrophies. This gene is very rare and my wife Claire has the AARS2 Gene. It comes with life debilitating problems and can eventually lead to death. This Gene is that uncommon that there's no real treatment or cure for it as little is known. We are appealing for further funding and research to be allowed especially more funding so that one day a cure/treatment can be found.

It's imperative we act now and get as many signatures as possible to start the ball rolling. If we are successful in securing enough supporters and signatures then this petition will be forwarded to the Health and Social Care MP Gillian Keegan hopefully with the support from our own Member of Parliament Julian Knight MP to raise the question in the House of Commons.

Im hoping its not too late for Claire and I will fight on for her until I take my last breath. At least we all tried and she knows how much you all love her and care. I intend to also advocate for this gene in particular as Claire is only as far as we know one of two in the UK with it. So please don't delay all I ask is you sign and support. Thank you Paul