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Endometriosis
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I have suffered from endometriosis for 26 years & was only diagnosed 3 years ago. I am currently waiting on excision surgery because of financial difficulties & lack of access. I am disabled by endometriosis, can’t live independently, & can’t make my own living because of it. If excision surgery were covered by insurance & a specialist was available in my area, I would have been able to get surgery right after I was diagnosed. My qualify of life would definitely have been improved by now. Patients are suffering & this desperately needs to change.
Eliza supported: Establish an Insurance Code for Endometriosis Excision Surgery and Mandate Proper TrainingAfter years of suffering debilitating pain for unknown/undiagnosed reasons and sent to multiple doctors of different specialties, I was finally sent to a new OB/GYN whom suggested I have a diagnostic laparoscopy to check for endometriosis. I had many radiological imaging done over the years that did not indicate that I had endometriosis. I had frequent ovarian cysts and “fluid in the cul-de-sac”. My new OB/GYN explained that endometriosis will often not appear on imaging.
I was then diagnosed with endometriosis in 2009. My doctor took plenty of pictures to explain what was going on, what he found, what he did during the surgery to try to help my pain. The benefits of that surgery didn’t last long. My pain actually got worse as time went on. I had another surgery 6 months later. I was stage 4 at this point.
I was diagnosed with adenomyosis as well.
My journey of pain continued. I had a total hysterectomy in 2012 at the age of 27. That hysterectomy didn’t help. My pain has NEVER stopped. I have been in pain management for many years.
I know having an excision surgery would give me a quality of life. I currently don’t have one. Not only can I not work, this disease has caused me to lose everything. It’s winning.
The “gold standard” for managing endometriosis is having an excision specialist perform an excision surgery. Even if I lived close to an excision specialist, I can’t afford it. I have thought about selling everything I have left of value to have this surgery. Material things don’t matter when you don’t have ANY quality of life.
Women shouldn’t have to suffer daily and lose everything because they can’t afford a surgery that could completely change their life.
I want to live again. I want to work again. I have spent so many years in my home and in my bed. I have missed out on the best years of my life because I can’t afford an excision surgery.
Please help me live again. Please let women live a life again!!
Amy supported: Establish an Insurance Code for Endometriosis Excision Surgery and Mandate Proper TrainingMy daughter is suffering with this disease,we live in Mississippi so it’s been extremely hard finding help thanks for all you/yall do!
Bonnie supported: Establish an Insurance Code for Endometriosis Excision Surgery and Mandate Proper TrainingI have had two excision surgeries for stage IV endometriosis. This care should be accessible for all women suffering from endometriosis, but sadly the cost is a huge barrier due to lack of coverage by insurance companies. We need change.
Emma supported: Establish an Insurance Code for Endometriosis Excision Surgery and Mandate Proper TrainingYou’re not alone — a community of supporters is ready to back you.
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