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876 results
    Petition to Matt Hancock

    Treat my daughter and other Irlen sufferers on the NHS

    My 13 year old daughter Edie suffers with Irlen Syndrome - a condition that affects how her brain processes the things she sees. It makes words move around on the page when she’s reading and makes her very sensitive to natural light meaning she can’t go outside for long. She needs special coloured lenses to help her live a normal life - but the NHS won’t fund it. Edie was also previously diagnosed with dyslexia in 2017. Children with dyslexia are entitled to certain support throughout their education - but because Irlens is not recognised by the NHS there is no mandatory support and everything has to be funded by parents. Her school has tried to be accommodating. They have provided her with filtered overlays that she puts over books to help her read, and they give her exams on rose-tinted paper. But this is not a long-term solution. The price of special glasses is around £400 and this is not something we can currently afford. Irlens UK say as much as 15% of people could be affected by the syndrome. This means that there are many children across the country just like my Edie who need support and probably aren’t getting it. My daughter is now in year 8 and really struggling, and I’m worried about her future and whether we’ll be able to afford new lenses for her every year. That’s why it’s so important for us and families like ours that the NHS recognises Irlen syndrome and provides us support. Please sign my petition telling the NHS to support Edie and children like her.

    amy pilkington
    Bradford, ENG, United Kingdom
    106,344
    Supporters
    • amy pilkington Bradford, ENG, United Kingdom
    • 106,344 supporters
    • Created Mar 18, 2019
    Petition to Greg Hunt MP, The Hon. Alan Tudge, The Hon. John Day, Paul Papalia MP, Premier Mark McGowan , Christian Porter MP, Greg Hunt MP

    Disability Support for Fibromyalgia Sufferers of Australia

    … disability at last so that sufferers are able to get the Disability Support Pension and to gain better…

    Michelle Greenwood
    Port Kennedy, Australia
    13,527
    Supporters
    • Michelle Greenwood Port Kennedy, Australia
    • 13,527 supporters
    • Created Feb 17, 2017
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    Victory
    Petition to Annastacia Palaszczuk, Annastacia Palaszczuk

    Home quarantine for cancer patients

    My pop has stage 4 brain cancer and was operated on in Sydney last week to have the tumours removed. He now has to face chemoradiotherapy in Queensland but is not being exempted from hotel quarantine. He will have to go through his treatment while living in a small room with just a bed and no balcony for 2 weeks. We are pushing for him to be allowed to quarantine in the comfort of his own home.  Not only does the hotel quarantine impose unnecessary costs on top of the costs he has already endured, but it will play a huge effect on his mental health and potentially effect his further treatment.  Please sign this petition in support for my Pop to home quarantine!! My family is desperate for something to be done to help him.  We love him so much and want his treatment to go as well as possible to give us more time with him.  Thank you so much for your time. 

    Jessica Ralph
    Australia
    24,612
    Supporters
    • Jessica Ralph Australia
    • 24,612 supporters
    • Created Oct 6, 2020
    Petition to NHS, UK Parliament, Theresa May MP, Jeremy Hunt

    Help Ehlers-Danlos Syndrome sufferers like my sister

    … illnesses, not enough is known about the condition for sufferers to be treated properly. In Debbie's … sufferers. Instead she must raise £60,000 so that the operation can be carried out by an EDS specialist…

    Debbie's Fight for Life
    11,859
    Supporters
    • Debbie's Fight for Life
    • 11,859 supporters
    • Created Mar 1, 2017
    Petition to United States Congress

    Approve a special Schedule II Narcotic pain card for chronic pain sufferers.

    … chronic pain sufferers. We can help ease patient suffering while safeguarding against prescription…

    Dan Egelton
    Brownstown, MI, United States
    29,544
    Supporters
    • Dan Egelton Brownstown, MI, United States
    • 29,544 supporters
    • Created Mar 26, 2017
    Petition to Government

    Free Prescription medication for Crohn's Disease Sufferers

    … pain and suffering resulting in lengthy hospital stays Sufferers should have free prescription drugs…

    Sandra Stevenson
    Derby, ENG, United Kingdom
    2,005
    Supporters
    • Sandra Stevenson Derby, ENG, United Kingdom
    • 2,005 supporters
    • Created Jul 20, 2019
    Petition to Government, The Department for Health and Social Care

    Disability support for Endometriosis sufferers

    1 in 10 women will suffer with a chronic illness called Endometriosis. It’ll take on average 7 years to be diagnosed. Women will struggle with attendance at both school and work, resulting in lower achievements.  The NHS has classed Endometriosis as 1 of the top 20 most painful illnesses to have. On top of that, the secondary illnesses caused by Endometriosis are as debilitating if not more when added to a “endo flare up”.  People suffering with mental health, joint and back pain, are supported by the government.  We too require support, so we can gain financial security, and personal independence.  On a typical “flare up” a woman could be bed bound, crippled by pain. That our basic human rights, are in jeopardy. This would include but not restricted to; unable to cook or feed ourselves, unable to wash or bathe, unable to fully dress ourselves, unable to walk more than 200m or stand up straight for longer than 60sec. Plus the rising cost of medication. On average a monthly cost to an Endometriosis sufferer is £27 per month.  The impact is wider than just physical, it is proven to affect our mental health (not just us feeling down but leading to suicidal thoughts and tendencies) careers, family, our social life, Financial aspects, relationships and fertility.  I have lost countless jobs, as I’m unable to go more than a month without significant time off, due to incapacity, caused by this illness.  Im petitioning to gain disability status to those able to demonstrate the debilitating affect on their lives. Similar to those with joint or back issues. We in the UK fail to recognise unlike the rest of the world, the severity in the stages of Endometriosis. This will allow us to not be discriminated against for having a chronic illness with no cure, providing us with benefits as required, to lead a normal life. 

    Gemma Burke
    Hull, United Kingdom
    550
    Supporters
    • Gemma Burke Hull, United Kingdom
    • 550 supporters
    • Created Oct 2, 2019
    Petition to UK Parliament, Boris Johnson MP, Ann Coffey MP, Lucy Powell MP, Andy Burnham Mayor, BBC, ITV, Sky

    Get fibromyalgia sufferers more support in the UK

    I am writing this petition as a newly diagnosed Fibromyalgia sufferer. This auto-immune disease has taken over my life for the last 8 months. In turn, this means that I am not able to work, do normal daily activities or look after myself in the capacity that a normal adult woman should be able to. The consequence of this is that I am in a financial position that I have never been in in my life, with the possibility of losing my home due to financial constraints. I am in the process of going through the rigorous benefits system in the UK, which is endless paperwork and very long waiting times. Most of which are negative outcomes.  I have been a UK tax payer since I was 15 years old and I strongly believe that with a disability like this that falls under the Equality Act 2010 we should be entitled to more financial help. The benefits system makes it almost impossible for many people like me to get any help as most claims are joint, which I strongly believe should not be in these circumstances. People in my position will end up losing everything that they have achieved in their lifetime due to this disease. And I believe that we need to fight this with everything that we have.  So please sign this petition so that the government will have to rethink their strategies and how benefits money is distributed to the disabled.

    Taryn Vorster
    Manchester, ENG, United Kingdom
    5,571
    Supporters
    • Taryn Vorster Manchester, ENG, United Kingdom
    • 5,571 supporters
    • Created Sep 25, 2019
    Petition to NHS

    Approve Gastroparesis surgery for my son and other sufferers

    It’s so hard for me to watch my 23 year old son Joel losing weight, vomiting constantly and being so low on energy. He has a rare condition called gastroparesis that affects around 5% of the population. He needs surgery that would be offered free on the NHS in Scotland and Northern Ireland - but in England is incredibly expensive. I need your help to get my son the treatment he needs.  Watching Joel deteriorate has been heartbreaking for me as his mother. He was on a working trip abroad in September when he became seriously ill and has been in and out of hospital since then.  Gastroparesis is a condition where your stomach is unable to process food and causes sickness and vomiting. Medication is available but often doesn’t work and the condition causes severe weight loss and malnutrition. In a lot of cases a feeding tube is inserted, but this isn’t always successful and when it fails it results in hospital admission.  Joel is currently on sick leave and will have to start claiming benefits because his symptoms are too severe for him to carry on working.  What he needs is keyhole surgery to fit a gastric pacemaker which is successful in around 70% of cases. While in Scotland and Northern Ireland this happens on the NHS, in England it is not. We can either apply for funding or go private and pay up to £27,000. As a mother I should be able to protect my children and no parent should have to watch their child suffer. No one should have to go through this because they live in England and not Scotland.  Please sign my petition for Joel to get his surgery and for gastroparesis to be treated properly by the NHS for everyone in the UK - not just Scotland and Wales. 

    Rose La Touche
    London, ENG, United Kingdom
    3,731
    Supporters
    • Rose La Touche London, ENG, United Kingdom
    • 3,731 supporters
    • Created Nov 10, 2019
    Petition to NHS

    Make Laser Hair Removal and Electrolysis Free on the NHS for PCOS sufferers

    ….  There is NO cure for PCOS so let’s make the lives of PCOS sufferers better in whatever way we can…

    Charlotte Bailey
    Leicester, United Kingdom
    13,803
    Supporters
    • Charlotte Bailey Leicester, United Kingdom
    • 13,803 supporters
    • Created Jun 2, 2021
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