Without Spinraza, Zahra will die

By signing this petition, you are literally saving Zahra’s life.  Zahra, a 6 years old girl, has been diagnosed with a rare disease called Spinal Muscular Atrophy ("SMA"), which is a terminal, degenerative disease, that takes away a child’s ability to walk, stand, sit, eat, breathe, and even swallow.  HOWEVER, a new medication, SPINRAZA™ (nusinersen), not only can stop the disease, it will restore the previous degeneration. Unfortunately, Spinraza is VERY expensive, costing $750,000 USD! Zahra's story published on the Wall Street Journal:  https://on.wsj.com/2FMo3PA All you have to do in order to help Zahra is to simply sign this petition requesting Biogen, the company which makes SPINRAZA™, to ease Zahra's access to this medication by either reducing the price or any other way possible to save her life. Please follow Zahra on Twitter:  https://twitter.com/SaveZahraD #SaveZahra Dear Biogen company, please gift Zahra the compassionate use of SPINRAZA™ (nusinersen) or at lower prices before it is too late. Please support Zahra's family so that this little girl can start her treatment as soon as possible. No kid in this world deserves to be left to gradually or eventually die. Please help saving Zahra's life.    

Read more

303,799 signed of 500,000 goal

Justice for George Floyd

**UPDATE: on May 29, Derek Chauvin was arrested and charged with second degree murder, third degree murder and manslaughter. The other three officers were charged with aiding and abetting second degree murder, aiding and abetting third degree murder and aiding and abetting manslaughter. But the fight for justice continues, as does the need to keep a spotlight on Minneapolis. Please help me make sure there is a fair judicial process that results in justice and in the conviction of George Floyd's murderers. George Floyd was murdered by a Minneapolis police officer. George was handcuffed and restrained and being completely cooperative when this all went down. The officer put his knee on George’s neck choking him for minutes on minutes while George screamed that he could not breathe. Bystanders beg for the police officer to take his knee off George’s neck, but the officer didn’t listen and continued to choke him. Not that it would matter at all, but George was not even wanted for a violent crime. A grocery store that he was signing a bad check. We are trying to reach the attention of Mayor Jacob Frey and DA Mike Freeman to beg to have the officers involved in this disgusting situation fired and for charges to be filed immediately. Please help us get justice for George and his family!

Read more

19,703,898 signed of 21,000,000 goal

Re-establish climate change education on the EPA website

Prior to President Trump and the appointment of Scott Pruitt as EPA Administrator, there was a entire page on the EPA website dedicated to climate change education. Many students, teachers and parents across the country used the page to learn about climate change and to keep abreast of new scientific data and information. During the Trump Administration, the link to the education site was removed from the EPA web page "for updating" and was never restored (old link here - climate change) In the wake of the devastation caused by the recent Hurricanes Irma, Maria and Harvey, it is more critical than ever, to educate children, communities and families on the impact of global warming and how we can reduce our carbon footprint.  Please TAKE ACTION and SIGN THIS PETITION to get the climate change link back up on the EPA website!

Read more

63,677 signed of 75,000 goal

All Students Belong in All Utah Schools

The Jordan School district has decided to pull the Life Skills Special Education / Peer Mentoring programs from both Herriman and Bingham High Schools. This decision was made without adequate input from educators, the community, and the parents of the children with Special Needs. Our children deserve to attend their neighborhood schools with their siblings and friends. This local interaction is vital to the building of a compassionate and diverse community. The District’s decision is likely grounded in an effort to improve efficiency by consolidation. Nevertheless, all students deserve and need the opportunity to associate with, and learn from, children with special needs. Our society is rife with division. Our children are compelled by social media to develop a self-centered worldview. We need to combat these issues by giving them opportunities to think outside themselves. Diversity is something to be celebrated, and children with special needs have a unique way of helping all to understand that. Please give our community the opportunity to understand and include children of all abilities. Help all our children experience education as an extension of their neighborhood community. #weallbelongutah

Read more

56,148 signed of 75,000 goal

Helping Antonio Milane get disability accommodations at Stanford

MY CURRENT SITUATION:A few months ago, I was accepted into my dream school, Stanford University. At first, I felt like I was on top of the world. Just when I thought that the battle was over and that I could delve into my dreams at last, I realized that I might not be able to attend. The same story that befell me in prior years was going to consume my life again: Stanford University is unwilling to provide me access to a scribe for assignments deeming my necessity as a “personal preference.” Despite being an institution with billions of dollars, with enough resources to easily provide me with the needed accommodations, Stanford still negates its responsibility to do so, thus representing a blockade in my future endeavors. Simply put, I would be unable to attend Stanford and achieve my goals without the assistance of a scribe, as work will be impossible to complete for a boy who can not write. This petition represents the voice of the silenced and the continuous fight for accessibility. Around the country, thousands of disabled students fight for the right to attend college. My story coincides with this battle, and it is before you now. MORE ABOUT ME:When I was born, doctors dubbed me a ‘miracle child’. During my birth, complications arose, and I suffered massive brain damage. The umbilical cord was wrapped around my neck while my mother pushed me out, and I choked to death. For ten minutes, my heart stopped, and the doctors rushed to revive me. After a subsequent miracle, my fetal body was fading between life and death. I responded to no touch, sound, and was in a completely vegetative state. I was diagnosed with cerebral palsy along with epilepsy, which are both neurological disorders that affect my ability to access my environment. Doctors told my mother that my brain damage would never heal, and I would be stuck in a vegetative state for the rest of my life. I would depend on them for all of my basic needs and never live a normal life. Luckily, I was born determined to change my fate. Throughout my entire childhood, I endured thousands of hours of therapy. I had no real childhood as my disability isolated me from others. It was hard for other kids to understand why I could not talk or move like them. However, I never let the fire inside me smolder. This inner fire guided me throughout my academic career as I frequently struggled to receive the proper accommodations I needed. Perpetuous battles about obtaining a scribe started in elementary school and have been consistent ever since. Teachers consistently congratulate me on my intelligence; however, I would fall behind because of my inability to write. My motor difficulties were never an excuse to underperform or give up on any task and in high school, I became a figure of purpose, hope, and advocacy for my cohort. HOW YOU CAN HELP:Please sign this petition and illustrate that this behavior is unacceptable. Financial incentives should never overcast humanistic values. Share this petition with more friends personally or via social media. If you are a current Stanford student or staff member, please share this with your Stanford community. Thank you.  

Read more

74,263 signed of 75,000 goal

Make Pandemic Unemployment Benefits Tax-Free

In 2020, the US Congress approved Pandemic Unemployment Assistance Programs, to help the workers who were hardest-hit by the COVID-19 Pandemic. Unfortunately, these benefits are taxed by the Federal Government.  Even if a recipient elected to have withholding taken from their benefits, in many states, withholding was not taken from the additional $600 or $300 weekly benefits. In April millions of unemployed and underemployed Americans will face a surprise tax bill. We ask Congress and The Biden Administration to make Pandemic-related unemployment benefits tax-free for 2020 and 2021.

Read more

44,971 signed of 50,000 goal

Provide air conditioning for your mail carriers

Mail carriers are battling the sweltering heat in the summers and are constantly being pushed and demands are high. Parcel volume is at a high level because of the convenience of online shopping, which of course is good for business.  However, the Arizona summers get to be 120 degrees and the LLV's get about 20 degrees hotter than that. It is illegal to leave a child or an animal in a vehicle in these conditions, shouldn't the same be applied to us? I know I don't even have a place to cool down on my lunch break.   The new fleet replacement is supposed to occur at the end of the year so it would be great if the hottest climate areas be replaced first since this may take a few years to be completed.

Read more

240,169 signed of 300,000 goal

Open Youth Sports in New Mexico

We need your help and support to re-open youth sports in New Mexico!  It has been a year since New Mexico kids have been allowed to play their sport/games in our state, (soccer, football, baseball, basketball, volleyball, among others).  We previously provided to the Governor’s office a safe re-opening plan and have continued our communications with them; however, youth sports are still unattended to. Did you know that New Mexico is the ONLY State in the country that has not allowed youth sports to re-open!  49 other states have successfully allowed youth sports leagues to play during the pandemic and have done so safely without spread of COVID.  It is time to make New Mexico’s youth a priority!   We know youth sports can be played safely based on the successes that have been demonstrated from other states and it is incumbent upon us to re-open youth sports post haste in NM.  The prolonged closures have increased concerns for the physical, mental and emotional wellbeing of our NM kids.  We need to act fast.  It is undisputed that sports activities can help kids with self-esteem, confidence and overall physical and emotional wellbeing so why would we not make youth sports re-opening a priority? The New Mexico youth sports communities are ready to open following the necessary safety protocols. 

Read more

10,951 signed of 15,000 goal

Demand Amazon Save The Iconic Detroit State Fairgrounds Bandshell!

One of Michigan's most  iconic music venues is slated to become a parking lot by Amazon!  Amazon has garnered billions in profits in 2020 so they can afford to preserve this landmark which has seen performances from the MC5 and Iggy Pop to Benny Goodman to Nina Simone and Stevie Wonder among countless others.   Historically, Detroit and the Motown sound ushered in countless hits which took over the world's ears, hearts, and imaginations.  Even absent that, the stage has been graced by Countless performances and served a vital function for Detroit and Michiganders everywhere.  The music industry, music historians, and media like The Rolling Stone Magazine , Billboard , Amazon Music, Spotify, should all lend their power to influencing Amazon to save this one iconic landmark!  (Additionally, performers who have lost work should also get their support and support from Congress too!) We are petitioning Amazon to: Preserve this integral piece of history for future generations To stop imminent plans for destroying the bandshell For local electeds to actively support preserving this testament to live performance, music, and culture For local electeds to consider emergency recognition of the bandshell as a landmark, if at all possible For Amazon to use the money it has earned in 2020 to alter its plans  Get Detroit City Council to support saving the Bandshell You can read more about it here. Please: Sign on to save it! Contact Amazon directly with this petition's request here: amazon-pr@amazon.com Contact the Governor  and Here Contact the Mayor And share this petition widely! Thank you! Together, we can do it!!!  

Read more

60,370 signed of 75,000 goal

We need better access to cancer screenings during COVID

This petition comes from Sarah Kaehny, a cancer survivor and volunteer with the American Cancer Society Cancer Action Network.  We’ve all been impacted in some way by the COVID-19 pandemic. For me, the pandemic meant that I lost my dream job, my health insurance, and the ability to afford the health care I need as a cancer survivor. In 2012, I was diagnosed with stage 3 sarcoma. Is cancer scary? Sure. But the financial stress of health care is almost as bad as any diagnosis. After radiation and multiple surgeries, I am currently cancer-free. To make sure I stay that way, my doctor recommends I get a cancer scan every three months. For years, I’ve been diligent about getting these procedures. But when the coronavirus pandemic hit, I was laid off from my job. Once unemployed, I couldn’t afford the COBRA health insurance from my former employer.   As a cancer survivor, not having health insurance scared the crap out of me. To be in a situation where you have to choose between food and bills, and your health care, you choose food and bills. Keep food on the table, keep the heat on. But that meant that I had to skip the regular cancer scan that my oncologist recommended. No one should have to make this kind of decision, but I know that I’m not the only one. In fact, from February to mid-April of 2020, the rate of some cancer screenings fell by over 80 percent. Congress is currently working on a COVID relief bill, and they are considering including subsidies for COBRA insurance for people who have lost their jobs due to the pandemic. This could actually lower the cost of health care premiums for tens of thousands of people, including cancer survivors like me. If this had passed months ago, I would have been able to keep my health insurance and avoid the stress of waiting to know if my cancer had returned. Please join me in asking Congress to include this provision and support lowering the cost of quality health insurance. Cancer survivors like me can’t wait.

Read more

23,287 signed of 25,000 goal