In a huge step forward for visibility and legitimacy, HHS launched a new dedicated Long COVID website during Long COVID Awareness Week

https://www.hhs.gov/longcovid/ 

From the landing page:

"Understanding Long COVID, Supporting Patients, Advancing Solutions

What Is Long COVID? Long COVID is a serious chronic disease that can affect multiple body systems and significantly disrupt daily life. Long COVID affects 5–7 % of U.S. adults—roughly 18 million people, according to the CDC. Long COVID remains an ongoing public health challenge requiring continued research, clinical innovation, and coordinated response.

Long COVID: A Multisystem Chronic Disease with National Impact
Long COVID is a distinct and multisystem condition with its own drivers, risk factors, and clinical course. It affects all ages, regions, and communities.

There is currently no single FDA-approved diagnostic test for Long COVID. Diagnosis is based on clinical evaluation, and individuals do not need a documented positive SARS-CoV-2 test to receive a diagnosis. Symptoms can vary widely and may fluctuate or relapse over time, making diagnosis and long-term management complex. Long COVID contributes to reduced workforce participation, disability, and significant economic burden, with national costs estimated in the hundreds of billions of dollars annually."

Interestingly, there are spots for future updates:

"Clinician Locator [Coming soon in 2026]
Clinician locator with national provider directory and information on doctors who are treating Long COVID, Lyme disease, IACCIs, and invisible illnesses.

Patient Resources [Coming soon in 2026]"