Mark PalladinoCrum Lynne, PA, United States
Mar 21, 2025

First - Thank you all for the amazing support so far, we're nearing 100 signers in just the first 3 days and that will give the petition another boost! I'm asking each of you to grab your cell and send a text message to a couple of friends and family members and ask for their support. We're not just fighting for ourselves or loved ones, but many others out there suffering. I recently exchanged messages with a father of a pre-teen boy who has been left bedbound for almost 6 months. He described him as crawling around on the ground with his head on the floor and not being able to walk without a significant amount of support. He is worried his son will spend his life in a wheelchair! As a father myself, it is beyond heartbreaking to hear stories like this about children suffering from this. Please send that text message and we'll triple the number of signers in no time. 

Second - I've refined our request as below. My thinking is that the most probable outcome is to get the current EUA extended to include LC patients in the moderate to severely immunocompromised category making them immediately eligible for the treatment as a preventative for COVID. Most of you know that preventing reinfection is a critical component of potential recovery. I think this better reflects what we're asking for, I hope you'll agree.

Here's what we want:

  1. Extend the current FDA emergency use authorization approval for Pemgarda to include Long COVID patients in the high-risk category, making them eligible for the treatment. Pemgarda results in a 70% risk reduction of developing symptomatic COVID-19 compared to a placebo and would provide an alternative to vaccination, which carries the risk of PSV according to a Yale study. Pemgarda has already been safely used for nearly a year to help moderately to severely immunocompromised people, including organ transplant recipients, stem cell transplant recipients, and those who are on chemotherapy for cancers to prevent COVID infections. Preventing reinfection is critical for Long COVID patients recovery.
  2. We need a warp speed 2.0 for Long COVID treatments. Fast track clinical studies of Pemgarda or other monoclonal antibodies for the treatment of long COVID patients. The NIH was granted $1.6 billion dollars 4 years ago for the RECOVER initiative, but has yet to produce a single viable FDA approved treatment. We fast tracked the vaccination for millions in just 9 months, but 5 years on Long COVID patients continue to suffer while they desperately wait for treatment.

Lastly - I have reached out to a PR expert, who was a first-wave Long COVID sufferer, and we're working on a plan to raise some visibility and try to get some media attention. Stay tuned. 

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