Dear Supporters,

Thank you for supporting us in to make treatment for children affected by CTNNB1 syndrome. Your support is truly appreciated.

Little Miracles for Kids has raised enough funds to develop the treatment, but we are in urgent need of a license to proceed. We want to use the money we’ve raised to give our kids the treatment they need in Australia. Currently, CMRI, the patent holder, is in negotiations for an exclusive license with a Slovenian foundation. This will block us from making the treatment. 

CTNNB1 syndrome has no existing treatment, making this treatment our only hope.

Please help us by sharing this petition widely through your networks, including friends, family, co-workers, and on social media platforms like Twitter and Facebook. Increased exposure boosts our chances of being heard. If you have connections in the media, kindly share this petition and seek their support.

In the comments section, please share the reason you’ve signed the petition, if you’re comfortable doing so. Comments carry significant weight with CMRI decision-makers, telling personal stories that illustrate the profound impact of this on real lives.

We are deeply grateful for your continued support.

Sincerely,

Sadjad Abdoli
Little Miracles For Kids Foundation