We now have 455 signatures! I thank all of you for your continued support as we hopefully turn this into a movement that Congress can't ignore any longer. I was interviewed by a reporter who is doing a story on orphan drugs and when she saw the petition she realized that her story wasn't complete as it missed a whole segment of the population. This is what I hope will be only the first of media coverage of this important issue. As soon as this story is published i will notify everyone!