Actualización de la peticiónHELP PEOPLE WITH RARE DISEASES GET THEIR LIFE-SAVING MEDICATIONS

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Susan DolinSedona, AZ, Estados Unidos
9 dic 2016
We now have 455 signatures! I thank all of you for your continued support as we hopefully turn this into a movement that Congress can't ignore any longer. I was interviewed by a reporter who is doing a story on orphan drugs and when she saw the petition she realized that her story wasn't complete as it missed a whole segment of the population. This is what I hope will be only the first of media coverage of this important issue. As soon as this story is published i will notify everyone!
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