Petition updateVestibular patients for smarter doctors & better patient careBAW - balance awareness week - is coming soon!
Tania StadsbaderHerne, Belgium
7 Sept 2018

No more misdiagnosis:
that’s our BAW goal.

To ‘guide’ the clinician in his or her decision scheme, when diagnosing ‘you’ as a vestibular patient...
Dizzy Me is working with EBM Practicenet (the Evidence-Based Medicine platform, which makes guidelines available) and CEBAM (Belgian Centre for Evidence-Based Medicine, which produces the guidelines first) on ‘correct medical guidelines’.

This is key to our
‘no more misdiagnosis’ goal.

What did we do & current step:

* After a first official interpellation with a ‘summary advice’ towards EBM (which I did 10 days ago and which will be used for discussion amongst professionals on this platform)
* I will now set up the multidisciplinar workgroup that will work on CEBAM guidelines for Belgium (CEBAM makes them, EBM makes them available)
* >> with the intention to spread this on international scale as a next step!

Ten days ago I selected and sent my email to several doctors, asking them to join the team and to work on this.
Sending that mail doesn’t mean we have a team yet; they still have to say ‘yes, we want this change and we want to work on this’.

* So it is very crucial now to inform this workgroup of doctors about the petition for change, which has reached 3884 signatures by now. Please keep signing (with comment please) and sharing.
* If we want them to say ‘yes’, this time your visible support online is extremely important and very welcome. It will make or break our wish-‘to’-come-true.

Comment, like, share this news!
Thank you so much.

Tania

The petition link https://www.change.org/p/world-health-organization-who-vestibular-patients-for-smarter-doctors-and-better-patient-care

Other news!
Lets help vestibular expert Dr Viviana Muci win the Early Career Award!

Her research into the human balance system is partly based on sexy space flight science - we know Viviana Mucci from the zero gravity flight with Dizzy Me!! - and she also values the experiences and expertise of patients.

Dr Viviana Mucci has reached the final �. The winner will now be decided by popular vote so if you've ever felt off-balance for any reason, please consider a vote for Vivi and for vestibular research �.”

Voting page: http://bit.ly/FSECRAvo

 

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