

To save the life of SMA patients and providing Risdiplam (medication for SMA treatment)
The Issue
Since there are more than 1000 SMA type 1 and 2 young patients in Iran and recent researches thanks to Roche company showed that @Risdiplam (Trade Name: Evrysdi) is an efficient medication to alleviate and cure these patients, we are convincing Iran Government and also Iran Health Ministry to import this medication as soon as possible.
P.S.: Iran government initially refused to import Risdiplam because of its high price which it relies on the fluctuations of foreign currencies in Iran. Moreover, Roche company declared that it openly wants to negociate with Iran government but mal political decisions endanger life of these patients.
By signing this petition, we are convincing Iranian Government to afford that price and also importing it as soon as possible.

The Issue
Since there are more than 1000 SMA type 1 and 2 young patients in Iran and recent researches thanks to Roche company showed that @Risdiplam (Trade Name: Evrysdi) is an efficient medication to alleviate and cure these patients, we are convincing Iran Government and also Iran Health Ministry to import this medication as soon as possible.
P.S.: Iran government initially refused to import Risdiplam because of its high price which it relies on the fluctuations of foreign currencies in Iran. Moreover, Roche company declared that it openly wants to negociate with Iran government but mal political decisions endanger life of these patients.
By signing this petition, we are convincing Iranian Government to afford that price and also importing it as soon as possible.

The Decision Makers
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Petition created on November 16, 2020