The following letter was sent to Dr Charles Beard of the CDC with copies to the participants of the HHS Special Webinar on Lyme Disease Persistence: http://www.cdc.gov/lyme/postLDS/ Sylvia Burwell was copied in addition to Senators involved in Lyme disease legislation. Consider sending a follow-up email respectfully demanding a response. Cut and paste the letter below and add it to your message. Sylvia Burwell email address: Sylvia.Burwell@hhs.gov Dr Charles Beard email address: charles.beard@cdc.hhs.gov ________________________________________ From: "Carl Tuttle" To: "charles beard" Cc: "Joseph Breen" , swbarthold@ucdavis.edu, "linda bockenstedt" , members@tulane.edu, amarques@niaid.nih.gov, lhu@tuftsmedicalcenter.org, "gipson" , dick_blumenthal@blumenthal.senate.gov, hannon@nysenate.gov, bonacic@senate.state.ny.us, "gov cuomo" , "Matt Sheehey" , "molsky" , "Sylvia Burwell" Sent: Wednesday, July 2, 2014 9:16:46 AM Subject: Re: Health and Human Services Webinar on the persistence of Borrelia burgdorferi (Lyme disease) July 2, 2014 Centers for Disease Control and Prevention Bacterial Diseases Branch Foothills Campus Fort Collins, CO 80521 Attn: Dr Charles B. Beard, BRANCH CHIEF BDB Dear Dr Beard, While you folks were preparing a summary document for the Post-Treatment Lyme Disease Syndrome HHS Special Webinar on Lyme Disease Persistence, Dr Raphael B Stricker et al published a case report of a fifty three year old patient with systemic Borrelia burgdorferi infection and consequent Lyme hepatitis, despite antibiotic therapy. http://www.labome.org/research/Granulomatous-hepatitis-associated-with-chronic-Borrelia-burgdorferi-infection-a-case-report.html In addition, Dr James R Palmieri published a case report of persistent Lyme disease from Pulaski County, Virginia with a second case report ready to submit involving an infant less than two years of age. http://www.dovepress.com/getfile.php?fileID=18365 As you know, David Denis had knowledge of persistent infection (Past CDC employee who controlled public health policy for Lyme disease) as he contacted Dr Kenneth Liegner regarding the Vicki Logan case. Vicki Logan’s CDC Fort Collins Positive CSF Culture Report: http://home.comcast.net/~runagain/Logan%20CDC%20Fort%20Collins%20Positive%20CSF%20Culture%20Report.jpg These are human case studies involving chronic Borrelia burgdorferi infection not laboratory experiments. Is this not evidence of persistent infection and verification that the one-size-fits-all treatment guideline is ineffective in treating all cases of Lyme disease? Why does the CDC continue to overlook/deny evidence of chronic infection in the Lyme patient population? I am sure the legislators included in this email thread would like an answer to these questions as well. Please provide a reply to this email at your earliest convenience as I am prepared to send follow-up requests until you reply to this message. Sincerely, Carl Tuttle Hudson, NH