Please see the letter below addressed to RFK Jr.
---------- Original Message ----------
From: CARL TUTTLE <runagain@comcast.net>
To: chd@childrenshealthdefense.org, advocacy@childrenshealthdefense.org
Date: 11/21/2024 1:30 PM EST
Subject: Breaking: Trump Taps RFK Jr. to Lead U.S. Department of Health and Human Services
Breaking: Trump Taps RFK Jr. to Lead U.S. Department of Health and Human Services
https://childrenshealthdefense.org/defender/trump-rfk-jr-hhs-secretary/
President-elect Donald J. Trump late today nominated Robert F. Kennedy Jr., founder of Children’s Health Defense, for secretary of the U.S. Department of Health and Human Services.
Children’s Health Defense
852 Franklin Ave., Suite 511
Franklin Lakes, NJ 07417
To CHD,
It is time to put end to this crime against humanity. Please forward the request below to Robert F. Kennedy Jr.
Respectfully Submitted,
Carl Tuttle
Independent researcher
Hudson, NH
To RFK Jr; Fire the Vector-borne Disease Division of the CDC for propagating a false Lyme disease narrative while suppressing evidence of chronic Lyme disease.
About Vector-Borne Diseases
https://www.cdc.gov/vector-borne-diseases/about/index.html
CDC is a national and international leader in addressing vector-borne diseases. CDC collaborates with public health departments, vector control agencies, universities, and other partners to detect, prevent, respond to, and control VBDs.
Carl Tuttle’s comment: What has been deceitfully established here in the US has been replicated worldwide.
The evidence of persistent infection is overwhelming but the collusion to suppress that evidence has stifled efforts to end the suffering. We need an immediate Manhattan Project to find a cure for this antibiotic resistant/tolerant superbug.
Lyme Disease: Call for a “Manhattan Project” to Combat the Epidemic
Raphael B. Stricker, Lorraine Johnson
Published: January 02, 2014
http://www.plospathogens.org/article/info:doi/10.1371/journal.ppat.1003796
Here is a draft list of who must be terminated immediately if we are to see any cure: (with a detailed explanation to follow in a letter addressed to Dr. Grace Marx of the CDC... Please read that letter below!)
1. Lyle Petersen, MD, MPH, Director of NCEZID's Division of Vector-Borne Diseases
lyle.petersen@cdc.hhs.gov
Quote from Dr. Lyle R. Petersen: “Long-term antibiotics not warranted for Lyme treatment.”
Additional references: 1, 2, 3, 4
2. Ben Beard, PhD Chief, Bacterial Diseases Branch, Division of Vector-Borne Diseases, NCEZID
cbb0@cdc.gov
CDC spokesperson Ben Beard insisted: “The vast majority of Lyme disease patients are served quite well by the guidance we have on our website.”
Additional references: 1, 2, 3, 4, 5, 6, 7, 8, 9
3. Paul Mead, MD, MPH Chief, Bacterial Diseases Branch, Division of Vector-Borne Diseases
pfm0@cdc.gov
Quotes from Dr. Paul Mead: "The reports of cases of Lyme being mistaken for other diseases are really quite rare."
Carl Tuttle’s comment: There is a growing Facebook group When ALS/ MS/ TM is Lyme nearly 4,000 with Lyme disease have been misdiagnosed with ALS or MS.
“Surveillance case definitions are created for the purpose of standardization, not patient care; they exist so that health officials can reasonably compare the number and distribution of “cases” over space and time.”
“The vast majority of patients who have Lyme disease will recover and do just fine.”
CDC Allows Commercial Group to Set Lyme Disease Policy and Funding Without Transparency or Oversight
https://www.govinfo.gov/content/pkg/CHRG-112shrg75786/html/CHRG-112shrg75786.htm
Excerpt: (Prepared Statement of Kris Newby)
In summary, these newly disclosed emails [FOIA] show that the Ad
Hoc International Lyme Disease Group, which is enabled by
employees of the CDC and the NIH, has been operating outside of
government regulations on transparency and public
accountability for years. It appears to be steering millions of
dollars of grants to group members, and it covertly has been
trying to tarnish the reputations of patients, researchers and
journalists who disagree with them, using their improper
relationships with government employees.
I urge Congress to further investigate this matter so that
scientific research on Lyme disease can proceed without the
undue influence of commercial interests.
[Mead was a member of this Quasi-Governmental Lyme Group]
4. Dr. Sue Visser, Deputy Director for Policy and Extramural Program, DVBD, NCEZID, CDC
svisser@cdc.gov
LDA President’s Blog– In-depth Synopsis of Advocate Vaccine Meeting Hosted by CDC
It’s all about the Lyme vaccine!
"As usual, Lyme patients and advocates everywhere have again been dismissed. Almost 50 years since Polly Murray, a mother, spread the word to health officials about what we now know as Lyme disease. We have no definitive test, no effective treatments accepted, even by government, no belief in chronic Lyme, little government research, doctors still afraid to treat, and Pfizer did not even have the courtesy to come and to present an updated video on a proposed vaccine* and did not even solicit input from the Lyme Community on the potential vaccine—a slap in the face." -Pat Smith, President Lyme Disease association Inc.
LivLyme Conference
http://lemonsnlyme.com/tag/sue-visser/
I asked Sue [Visser] this question: “You’ve been here all day listening to all these doctors and researchers present the science on chronic Lyme, so why is the CDC still so resistant to the diagnosis and helping suffering patients?”
Her answer: “That is the million dollar question. I don’t have an exact answer but my best guess is due to poor diagnostic tools.”
5. Dr. Grace Marx MD, MPH, Bacterial Diseases Branch
gmarx@cdc.gov
Grace Marx, MD, MPH is misrepresenting Lyme disease which will lead to inappropriate guidance for the medical community. Below is a critique of Dr. Marx’s Lyme presentation:
“Educational Tools for Clinicians” with18 areas of misinformation.
https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/31258735
Controlling the public health narrative through omission of ALL the evidence/facts/scientific references is deceitful and exposes the public to risk while maintaining the illusion that our public health officials have everything under control.
TOUCHED BY LYME: CDC serves up same old wrongheaded Lyme advice
https://www.lymedisease.org/touched-by-lyme-cdc-serves-up-same-old-wrongheaded-lyme-advice/
6. Christina Nelson, M.D., M.P.H., medical officer at the Division of Vector-Borne Diseases
wje1@cdc.gov
TOUCHED BY LYME: CDC ignores ethics, attacks “chronic Lyme”
https://www.lymedisease.org/touchedbylyme-cdc-ignores-ethics/
CDC Sabotages State laws Protecting Lyme Patients
https://www.linkedin.com/pulse/cdc-sabotages-state-laws-protecting-lyme-patients-jenna-luche-thayer/
7. Alison Hinckley PhD, Lead, Epidemiology and Surveillance Team Bacterial Diseases Branch
cue0@cdc.gov
Post-treatment Lyme borreliosis in context: Advancing the science and patient care Grace E. Marx*, Alison F. Hinckley, Paul S. Mead
Published 27 June 2021
https://www.thelancet.com/pdfs/journals/lanepe/PIIS2666-7762(21)00130-7.pdf
The study from the Netherlands referenced in this commentary is the same old garbage (junk science) regurgitated by the CDC/IDSA year after year, decade after decade while avoiding the elephant in the room. Conclusion: “Fortunately, safe and effective vaccines for Lyme disease may be on the horizon which could both reduce LB incidence on a population scale while averting long-term patient suffering”
Carl Tuttle’s comment: After researching the mishandling of Lyme disease for the past fifteen years I can say with absolute certainty that the rush to create a vaccine led to the deliberate mismanagement of this disease.
8. Adriana Marques, M.D. Chief, Lyme Disease Studies Unit NIAID
amarques@niaid.nih.gov
Chronic Lyme disease: a review
https://pubmed.ncbi.nlm.nih.gov/18452806/
Published June 2008
Adriana Marques
Excerpts:
“...there is currently no clear evidence that post-Lyme disease syndrome is caused by persistent infection with B burgdorferi”
“Further research to elucidate the mechanisms underlying persistent symptoms after Lyme disease and controlled trials of new approaches to the treatment and management of these patients are needed.”
My question to Marques: What new approaches to the treatment and management of Lyme disease have been developed since you published this paper SIXTEEN years ago?
1. Symptoms after Lyme disease: What’s past is prologue
https://www.science.org/doi/10.1126/scitranslmed.ado2103
Published Nov 2024
Adriana Marques
My inquiry to Marques: For the record there are many infections requiring long-term antibiotics so why Klempner stopped his NIH funded antibiotic treatment trials for Lyme after “12 weeks” and then claimed no benefit makes absolutely no sense whatsoever.
Is there a reason why these facts/references/lab reports are missing from your viewpoint published in Science Translational Medicine?
Marques refuses to answer any of my inquiries.
The following letter addressed to Dr. Grace Marx of the CDC breaks down the evidence dating back three decades:
---------- Original Message ----------
From: CARL TUTTLE <runagain@comcast.net>
To: grace.marx@cuanschutz.edu, "gmarx@cdc.gov" <gmarx@cdc.gov
Cc: katrina.rouse@usdoj.gov, jonathan.kanter@usdoj.gov
Date: 10/25/2024 9:11 AM EDT
Subject: Tick-Borne Diseases and Associated Illnesses, Community Engagement Series: Mental Health and Neurological Effects
Tick-Borne Diseases and Associated Illnesses, Community Engagement Series: Mental Health and Neurological Effects
https://www.hhs.gov/oidp/initiatives/tick-borne-diseases-associated-illnesses-national-community-engagement-initiative/index.html
3:00 pm – 3:20 pm A Clinician Toolkit: Improving Care for Patients with Prolonged Symptoms and Concerns about Lyme Disease By Grace E. Marx, MD Medical Epidemiologist, Centers for Disease Control and Prevention
Dear Dr. Marx,
I listened to your presentation yesterday with great interest and I must congratulate you for your outstanding performance in suppressing all evidence of persistent infection; chronic Lyme disease.
We have studies proving persistent infection after antibiotic treatment for mice, dogs, ponies, monkeys, cows, iris biopsy, and ligamentous tissue but if you perform a simple Google search for the following statement, “There is no convincing scientific evidence that chronic Lyme exists” you will find the top search results are connected to “elements of academic medicine” involved in the denial of the late stage Lyme epidemic.
In 1991 the Lyme disease organism, Borrelia burgdorferi, was grown from the cerebrospinal fluid of Lyme patient Vicki Logan at the Centers for Disease Control in Fort Collins, Colorado despite prior treatment with intravenous antibiotics. The patient died when the insurer refused additional IV antibiotics. Here is a copy of Logan’s CDC positive culture report for your review.
(Vicky Logan’s Chronic Lyme Autopsy results Page #1, 2, 3, 4, 5, 6, 7)
There are 700 peer-reviewed publications referencing persistent infection and in a 2018 study all patients were culture positive even after multiple years on antibiotics so there was no relief from current antimicrobials. Some of these patients had taken as many as eleven different types of antibiotics.
Thirty-four years ago Dr. Allen Steere identified chronic Lyme disease which should have set off a red flag prompting an immediate search for better antimicrobials but then did a 180° as he became principal investigator (PI) of the Phase 3 clinical trial for the first Lyme disease vaccine. So all the eggs were put into the vaccine basket while a campaign was orchestrated to discredit the sick and disabled patient population along with the courageous clinicians attempting to help these patients. Apparently, a chronic relapsing seronegative disease did not fit the business model of patent royalties, vaccine development and pharmaceutical profits.
Here is Dr. Steere’s 1990 publication summary for your review:
The New England Journal of Medicine
Published November 22, 1990
Chronic neurologic manifestations of Lyme disease
https://www.nejm.org/doi/full/10.1056/NEJM199011223232102
The chart below summarizes Lyme research funded by the NIH and only 2.5% has been allocated for treatment:
Lyme research NIH
For the record there are many infections requiring long-term antibiotics so why Klempner stopped his NIH funded antibiotic treatment trials for Lyme after 90 days makes absolutely no sense whatsoever:
From the following publication:
Benefit of intravenous antibiotic therapy in patients referred for treatment of neurologic Lyme disease
https://www.dovepress.com/benefit-of-intravenous-antibiotic-therapy-in-patients-referred-for-tre-peer-reviewed-fulltext-article-IJGM
Infections requiring long-term antibiotics:
Infections requiring long-term antibiotics
Lyme misdiagnosed/undiagnosed for months, years or decades is far more incapacitating than "acute" Lyme and 2-4 weeks of antibiotics does not scratch the surface of this well-established/immune suppressive infection. These are the patients who need help the most but have been excluded in research for decades. There are countless stories of patients seroconverting after the initial few doses of Doxycycline and now that a toxin has been identified that puts Lyme disease in an altogether different category of infection:
Toxins
Published: 21 May 2024
Borrelia burgdorferi 0755, a Novel Cytotoxin with Unknown Function in Lyme Disease
https://www.mdpi.com/2072-6651/16/6/233
So it would appear that one way to get a medical association (AMA) to go along with the suppression of evidence is to throw them a boatload of money... five million taxpayer dollars to be exact for a so-called IDSA biased “Clinician Toolkit” (CDC grant number NU50CK000597)
This controlling of the narrative has caused unimaginable pain and suffering all across America as insurance companies refuse to pay for long-term treatment, personal bankruptcies from out-of-pocket expenses to treat chronic infection, suicides from despair all while Valneva Received FDA Fast Track Designation for its Lyme Disease Vaccine.
Chronic Lyme must be recognized and finally addressed with 100% attention to effective antimicrobials for all stages of disease.
Question:
Is collusion to control the narrative through suppression of the truth, facts and scientific references a criminal offence?
Carl Tuttle
Hudson, NH
Cc: Assistant Attorney General Jonathan Kanter, Attorney Katrina Rouse
Attorneys for the United States Antitrust Division
Assistant Attorney General Jonathan Kanter Announces Task Force on Health Care Monopolies and Collusion
https://www.justice.gov/opa/pr/assistant-attorney-general-jonathan-kanter-announces-task-force-health-care-monopolies-and
“Every year, Americans spend trillions of dollars on health care, money that is increasingly being gobbled up by a small number of payers, providers and dominant intermediaries that have consolidated their way to power in communities across the country,” said Assistant Attorney General Jonathan Kanter of the Justice Department’s Antitrust Division. “Led by Katrina Rouse, the task force will identify and root out monopolies and collusive practices that increase costs, decrease quality and create single points of failure in the health care industry.”