Please see the additional emails below addressed to Adriana Marques, Chief of the NIH Lyme Disease Studies Unit. A total of three emails have been sent with no response.
Email#3
---------- Original Message ----------
From: CARL TUTTLE <runagain@comcast.net>
To: "amarques@niaid.nih.gov" <amarques@niaid.nih.gov>
Cc: "Brennan, Patti (NIH/NLM) [E]" <patti.brennan@nih.gov>, "Schor, Nina (NIH/OD) [E]" <nina.schor@nih.gov>, "Gregurick, Susan (NIH/OD) [E]" <susan.gregurick@nih.gov>, "michael.lauer@nih.gov" <michael.lauer@nih.gov>, "lyric.jorgenson@nih.gov" <lyric.jorgenson@nih.gov>, "cbearer@som.umaryland.edu" <cbearer@som.umaryland.edu>, "rdebiasi@childrensnational.org" <rdebiasi@childrensnational.org>, "molloyel@tcd.ie" <molloyel@tcd.ie>
Date: 04/28/2023 10:31 AM
Subject: Persistent Symptoms After Treatment of Lyme Disease (Published by Adriana Marques Sept 2022)
Infectious Disease Clinics of North America September 2022
Persistent Symptoms After Treatment of Lyme Disease
https://www.sciencedirect.com/science/article/abs/pii/S089155202200040X
Adriana Marques
Excerpts:
"Further research to elucidate the mechanisms underlying persistent symptoms after Lyme disease and to understand CLD is needed."
Followed by.....
-Lyme disease is treated successfully with recommended antibiotics in most of the cases; however, some patients have persisting nonspecific symptoms after treatment, referred to as posttreatment Lyme disease symptoms (PTLDs) or syndrome (PTLDS).
-Chronic Lyme disease (CLD) is a controversial term, with no defined diagnostic criteria, used to describe different patient populations. Patients with PTLDs represent a small portion of patients with CLD.
-Most patients with CLD suffer from other conditions
Dr. Marques,
On the one hand you call for more research to understand Chronic Lyme Disease but on the other hand conclude "Most patients with CLD suffer from other conditions" so it appears that you have already made up your mind that persistent infection after antibiotic treatment cannot exist. How does someone with a clear bias against chronic Lyme benefit the research community?
Question:
How many grant applications have you approved to research Chronic Lyme during your tenure as the Chief of the NIH Lyme Disease Studies Unit?
How many have you rejected?
A response to this inquiry is requested.
Carl Tuttle
Hudson, NH
Email# 2
---------- Original Message ----------
From: CARL TUTTLE <runagain@comcast.net>
To: "amarques@niaid.nih.gov" <amarques@niaid.nih.gov>
Cc: "Brennan, Patti (NIH/NLM) [E]" <patti.brennan@nih.gov>, "Schor, Nina (NIH/OD) [E]" <nina.schor@nih.gov>, "Gregurick, Susan (NIH/OD) [E]" <susan.gregurick@nih.gov>, "michael.lauer@nih.gov" <michael.lauer@nih.gov>, "lyric.jorgenson@nih.gov" <lyric.jorgenson@nih.gov>, "cbearer@som.umaryland.edu" <cbearer@som.umaryland.edu>, "rdebiasi@childrensnational.org" <rdebiasi@childrensnational.org>, "molloyel@tcd.ie" <molloyel@tcd.ie>
Date: 04/26/2023 7:50 AM
Subject: Re: Study Shows Most Children Recover from Lyme Disease within Six Months of Treatment
Dr. Marques,
From your publication: [Most Children Recover from Lyme Disease within Six Months of Treatment]
An electronic health record (EHR) query identified 1300 pediatric Lyme patients but only 102 were evaluated in this study. So the study conclusions were based on 8% of the total?
You conclude with absolute confidence that “Most Children Recover from Lyme Disease within Six Months of Treatment” from only a fraction of the initial group? Is it easy to say what the science is when you control the outcome that you want?
While you contemplate a response to my inquiry, please see the following list of books published on the subject of Lyme disease contradicting your conclusions:
The false Lyme disease narrative “Hard to catch and easily treated” propagated by the CDC for nearly three decades has been exposed in countless books; first and foremost, frontline treating physician Dr. Kenneth Liegner’s 892-page book:
In the Crucible of Chronic Lyme Disease: Collected Writings & Associated Materials
by M.D. Kenneth B. Liegner
“In the fullness of time, the mainstream handling of chronic Lyme disease will be viewed as one of the most shameful episodes in the history of medicine because elements of academic medicine, elements of government and virtually the entire insurance industry have colluded to deny a disease.” -Kenneth B. Liegner M.D.
Cure Unknown: Inside the Lyme Epidemic
(Revised Edition with New Chapter)by Pamela Weintraub
Gone in a Heartbeat: A Physician's Search for True Healing
by Dr. Neil Spector
Lyme Madness: Rescuing My Son Down The Rabbit Hole of Chronic Lyme Disease.
by Lori Dennis
Bite Me: How Lyme Disease Stole My Childhood, Made Me Crazy, and Almost Killed Me
by Ally Hilfiger, Tommy Hilfiger - foreword, et al
The Opposite of Fate
by Amy Tan
Suffering the Silence: Chronic Lyme Disease in an Age of Denial
by Allie Cashel, Mandy Kaplan, et al.
Believe Me: My Battle with the Invisible Disability of Lyme Disease
by Yolanda Hadid, Daisy White, et al.
When Your Child Has Lyme Disease: A Parent's Survival uide
by Sandra K Berenbaum, Dorothy Kupcha
But She Looks Fine: From Illness to Activism
by Olivia Goodreau
Lyme disease: Can Justin Bieber recover?
by Richard Rawls
What Lurks in the Woods: Struggle and Hope in the Midst of Chronic Illness, A Memoir
by Nicole Bell
Australian Lyme Crimes: The Global Disgrace
by Julie Mellae
Starving to Heal in Siberia: My Radical Recovery from Late-Stage Lyme Disease and How It Could Help Others
by Michelle B. Slater PhD, Carol Jacobanis, et al.
Lyme Rage: A Mother's Struggle To Save Her Daughter from Lyme Disease
by Mindy Haber
Silent Suffering: Finding God's Faithfulness in Chronic Lyme Disease
by Lauren Murphree and Andrew Murphree
Holding Hope: One Family’s Odyssey through Lyme Disease and Psychosis
by Marabai Rose
Out of the Woods: Healing from Lyme Disease for Body, Mind, and Spirit
by Katina Makris, Richard Horowitz, et al.
Dear Lyme Disease: Transforming Your Pain into Purpose
by Wendi M. Lindenmuth, Megan Hudgins, et al.
Shadows of Lyme Disease
by Ron Landis
Ticked Off: A Physician Shares How He Beat Lyme and Got His Life Back
by Dr Gordon Crozier
There's a Deer at the Door and a Cow in the Mudroom: Learning to Live while Living with Lyme
by Jamie Bennett
THE GIFT OF LYME DISEASE AND CO-INFECTIONS
by Suzen Chan
Fighting for My Life: How I Found God and Beat Lyme Disease
by Patrick Collins
Tickled Imagination: A teenager's reality living with undiagnosed Lyme Disease
by Lauren Kingsly
Not If, When: Lyme Disease in Verse
by Gail Tierney
Cancer on a Harley - Or is It? Lyme Disease
by Lisa Torbert
It's All In My Head: A Journey of Healing & Transformation Through Chronic Lyme Disease
by Joe Cusamano
A Twist of Lyme: Battling a Disease That “Doesn’T Exist”
by Andrea H. Caesar
Over My Dead Body: What I Learned During My Decade-long Journey to Heal from Lyme Disease and Coinfections
by Mary Lyn Hammer
In Limbo Over Lyme Disease
by Melanie S. Weiss
Summary:
We are dealing with a life-altering/life-threatening infection with faulty/misleading antibody tests, inadequate treatment, misguided medical training and absolutely no disease control whatsoever; a public health disaster. So how did we get here? A chronic relapsing seronegative disease does not fit the business model of vaccine development, patent royalties and pharmaceutical profits.
Respectfully submitted,
Carl Tuttle
Hudson, NH