Please see the email below addressed to the Tick-borne Disease Working Group. The picture included shows me with a nephrostomy tube protruding from my back.

---------- Original Message ----------
From: CARL TUTTLE <runagain@comcast.net>
To: "linden.hu@tufts.edu" <linden.hu@tufts.edu>
Cc: All members of the TBDWG
Date: 05/09/2022 9:01 AM
Subject: How serious is Lyme disease in its chronic stage?

To the Tick-borne Disease Working Group,

Please see the following recent announcement referencing an Epstein-Barr Virus Vaccine:

NIH Launches Clinical Trial of Epstein-Barr Virus Vaccine
https://www.niaid.nih.gov/news-events/nih-launches-clinical-trial-epstein-barr-virus-vaccine

May 6, 2022

Excerpt:

Approximately 1% of all EBV-infected individuals develop serious complications, including hepatitis, neurologic problems, or severe blood abnormalities. EBV also is associated with several malignancies, including stomach and nasopharyngeal cancers and Hodgkin and Burkitt lymphomas, as well as autoimmune diseases, such as systemic lupus erythematosus and multiple sclerosis.

______________________________

Carl Tuttle’s comment:

Chronic Lyme disease is immunosuppressive allowing latent viruses to become reactivated. I often tested positive for reactivated EBV over the nine-year treatment of chronic Lyme in which time I was diagnosed with lymphoma (Cancer of the immune system) treated with Rituxan and radiation therapy. The lymphoma led to a nephrectomy of the right kidney when a large node crushed the ureter leading to a nephrosis. After a year of living with a nephrostomy tube protruding from my back and three failed attempts to dilate the ureter, it was time to remove the kidney as it was only functioning at 7%. My medical claims in 2018 exceeded $600,000. But then again, Lyme is a simple nuisance disease; “Hard to Catch and Easily Treated” with a 2–4-week course of antibiotics as dictated by the Infectious Diseases Society of America and propagated by the US Centers for Disease Control.

Carl Tuttle
Hudson, NH

Attachments: (Personal Dropbox storage area)

Nephrostomy tube with urine collection bag March 31, 2018
https://www.dropbox.com/s/g4oioau4heowzpp/Nephrostomy%20tube%20and%20urine%20collection%20bag%20Mar%202018.JPG?dl=0

Reactivated Epstein Barr laboratory report (This is not a new infection at age 55!!)
https://www.dropbox.com/s/iuco0lwurit7a6s/Reactivated%20EBV.JPG?dl=0