Latest email sent to the Tick-Borne Disease Working Group...
---------- Original Message ----------
From: CARL TUTTLE <runagain@comcast.net>
To: "Dennis.Dixon1@nih.hhs.gov" <Dennis.Dixon1@nih.hhs.gov>, "SSood@nshs.edu" <SSood@nshs.edu>
Cc: "tickbornedisease@hhs.gov" <tickbornedisease@hhs.gov>
(all members of the TBDWG)
Date: 03/19/2022 8:34 AM
Subject: Congress Commends NIH Collaboration with Advocacy Groups to Advance Research on Maternal-Fetal Transmission of Lyme Disease
To the Tick-Borne Disease Working Group,
Please see the news release below regarding congenital Lyme and the NIH.
Congenital Lyme was first identified in 1985 (Allen Steere) per the attached lengthy list of references and yet it took 37 years for the NIH to acknowledge this evidence? Isn’t this a crystal clear indication that our Public Health Agencies are COMPLETELY BROKEN!!
Congenital Lyme References
https://www.dropbox.com/s/g5am2pamxc1a4hx/Congenital%20Transmission%20of%20Lyme.doc?dl=0
We have autopsy results and a lengthy list of references proving chronic Lyme as well and that too is going unrecognized by members Dixon and Sood on this Working Group. Isn’t this a crystal clear indication that our Public Health representatives are COMPLETELY BROKEN!!
Announcement from Bruce Fries, President, Patient Centered Care Advocacy Group:
Congress Commends NIH Collaboration with Advocacy Groups to Advance Research on Maternal-Fetal Transmission of Lyme Disease (Please read this article!!)
https://www.webwire.com/ViewPressRel.asp?aId=284113
Note from Bruce Fries:
Since NIH has a history of noncompliance with appropriations directives for Lyme, the release includes language to hold them accountable. Success will be determined by the amount of grants funded that have measurable benefits for mothers and children.
Much of the long-term follow-up will be addressing the bias in the NIH special study sections that prevents grants from being approved for research that might challenge the mainstream dogma. Rather than calling the baby ugly, I think a better approach may be to push for creation of a special study section that focuses on tick-borne diseases and make sure the nomination and selection processes are open and transparent.
Many thanks to the advocates and advocacy groups who helped make this happen.
Bruce
Bruce Fries
President, Patient Centered Care Advocacy Group
Advisor for Research and Public Policy, Mothers Against Lyme
202-617-1592
BruceFries@Gmail.com
Carl Tuttle
Hudson, NH
Acknowledging chronic Lyme disease since 2008 when bedridden on oxygen and near death before obtaining a diagnosis.