The Feds are doing a GREAT job sabotaging the good intentions of the TBDWG.
---------- Original Message ----------
From: CARL TUTTLE <runagain@comcast.net>
To: "tickbornedisease@hhs.gov" <tickbornedisease@hhs.gov>
Cc: All members of the Working Group
Date: 02/25/2022 4:02 PM
Subject: Questioning the appointment of Dr. Sunil K. Sood to the Working Group
To the Tick-Borne Disease Working Group,
The following complaint was sent to President and CEO of North Shore-LIJ regarding inaccurate/misleading statements on the subject of Lyme disease by Dr. Sunil K. Sood.
It should be obvious that the member selection process for this Working Group is tainted in order to control the existing false narrative. First Wormser then Shapiro now Sood, who’s next?
For the record, there was no response from Michael J. Dowling, President and CEO of North Shore-LIJ.
Complaint letter to Michael J. Dowling, President and CEO North Shore-LIJ Health System:
________________________________________________________
From: Carl Tuttle
To: mdowling@nshs.edu
Cc: azendrian@nshs.edu, brianlally@nshs.edu, tlynam@nshs.edu, bmulliga@nshs.edu, adavenport@nshs.edu, DIHL@nshs.edu, wmack@nshs.edu, dmoravick@nshs.edu, drshow@wamu.org, dick blumenthal, Kemp Hannon, Serino, bonacic@senate.state.ny.us
Sent: Wednesday, October 7, 2015 11:46:48 AM
Subject: Complaint: Dr Sunil K. Sood, Chairman of Pediatrics at Southside Hospital
About North Shore-LIJ “North Shore-LIJ Health System provides services and support to guide people through the changing world of healthcare.”
Oct 7, 2015
North Shore-LIJ
200 Community Drive
Great Neck, NY 11021
Attn: Michael J. Dowling, President and CEO
Dear Mr. Dowling,
I would like to register a complaint with your institution regarding the inaccurate/misleading statements on the subject of Lyme disease by Dr. Sunil K. Sood, Chairman of Pediatrics at Southside Hospital who was recently interviewed on the Dianne Rehm show. [1]
Sood’s statements from the interview:
1. “What we know for certain is that the persistent symptoms are not due to the persistence of the Lyme bacterium in the body.”
2. According to Sood, a bull's-eye rash is present in "90 percent of cases."
3. “Ticks must be attached "48 to 72 hours" to transmit the disease”
For some unknown reason Dr. Sood has not kept up with the science as recently published studies have shown that infection persists well after multiple rounds of antibiotics.[2] [3] [4] [5] [6] [7]
Dr Sood however has kept up with the thirty year dogma/groupthink which claims persistent infection cannot exist.
The State of Maine is recoding the bull’s-eye rash in less than 50% of patients with Lyme disease [8] and rapid transmission of Lyme has been reported. [9] [10]
Excerpt from the recent Truthout article referencing Sood’s statements:
Lyme Disease Guidelines Panelists Engage in Coordinated Propaganda Campaign [11]
“Misinformation of this type has the potential to harm patients who trust experts to provide accurate information. Imagine if patients take this information as gospel and do not seek treatment because a tick has been attached for less than 48 hours. Imagine if they or their doctors discount the possibility of Lyme disease because they did not see a bull's-eye rash.”
Lyme disease can become a life altering infection when not treated immediately as recent reports from celebrities have surfaced [12] however Lyme has been misclassified as a “nuisance disease,” hard to catch and easily treated with a one-size-fits-all treatment guideline.
Quote from Senator Richard Blumenthal:
"Today for me culminates more than a decade of work and probably a decade more, because I've seen firsthand the devastating, absolutely unacceptable damage done by Lyme disease to individual human beings, Connecticut children and residents whose lives have been changed forever as a result of Lyme disease” [13]
Patients who had a prolonged exposure to the infection before diagnosis are almost always incapacitated. It is this class of patient who is difficult to treat and deliberately ignored as the focus has always been on the acute stage of disease. [14]
There is absolutely no training whatsoever for the later stages of Lyme disease so patients are often ping-ponged through the medical community misdiagnosed with a disease matching the specialist who examined them further delaying proper treatment.
We have been dealing with an antibiotic resistant/tolerant superbug [15] deceptively concealed by the CDC, Infectious Diseases Society of America and their propaganda arm, The American Lyme Disease Foundation as identified in the Change.org petition calling for a congressional investigation [16] into the deliberate mishandling of Lyme disease.
We have serious concerns about Dr. Sood with his inaccurate information as he serves on the panel that is tasked with updating the IDSA treatment guidelines for Lyme disease.
As a member of the Lyme community, we would like to see a public correction/retraction of Dr. Sood’s misleading Lyme disease statements from the Dianne Rehm show.
Your immediate attention to this serious matter is requested.
Sincerely,
Carl Tuttle
Hudson, NH
Cc: Senator Richard Blumenthal, Winnie Mack, Regional Executive Director, North Shore-LIJ Health System, Donna Moravick, Executive Director, SouthsideHospital, Diane Rehm Show
REFERENCES:
[1] It’s Lyme Disease Season: What To Know About Contracting, Diagnosing And Treating The Disease
[2] Case report of persistent Lyme disease from Pulaski County, Virginia
http://www.dovepress.com/getfile.php?fileID=18365
[3] Granulomatous hepatitis associated with chronic Borrelia burgdorferi infection: a case report
[4] Review of evidence for immune evasion and persistent infection in Lyme disease
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3636972/
[5] Morphological and biochemical features of Borrelia burgdorferi pleomorphic forms
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4339653/
[6] Scotty Shelton and Persistent Infection in Saginaw MN
[7] Persistent Lyme Infection 1991 (See attached CDC Fort Collins Positive CSF Culture Report)
http://cognitiveliberty.net/wp-content/uploads/2014/12/David-Dennis.pdf
Vicki Logan CDC Positive Culture Report (personal Dropbox storage area)
[8] Report to Maine Legislature Lyme Disease
https://www.maine.gov/dhhs/mecdc/infectious-disease/epi/vector-borne/lyme/documents/lyme-legislative-report.pdf -- 2009, 59%
http://www.maine.gov/dhhs/mecdc/infectious-disease/epi/vector-borne/lyme/documents/lyme-legislature-2010.pdf -- 2010, 43%
http://www.maine.gov/dhhs/mecdc/infectious-disease/epi/vector-borne/lyme/documents/2011-lyme-legislature.pdf -- 2011, 42%
http://www.maine.gov/dhhs/mecdc/infectious-disease/epi/vector-borne/lyme/documents/2012-lyme-legislature.pdf -- 2012, 49%
[9] Clinical evidence for rapid transmission of Lyme disease following a tickbite
http://www.dmidjournal.com/article/S0732-8893(11)00415-9/abstract
[10] Lyme borreliosis: a review of data on transmission time after tick attachment
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4278789/
[11] Lyme Disease Guidelines Panelists Engage in Coordinated Propaganda Campaign
[12] Lyme is not your average “Nuisance Disease”
[13] Blumenthal takes Lyme disease fight to the Senate
http://ctmirror.org/2011/07/18/blumenthal-takes-lyme-disease-fight-senate/
[14] Long-Term Assessment of Health Related Quality of Life in Patients with Culture-Confirmed Early Lyme Disease
[15] Identification of novel activity against Borrelia burgdorferi persisters using an FDA approved drug library
https://www.tandfonline.com/doi/full/10.1038/emi.2014.53
[16] Petition: Calling for a Congressional investigation of the CDC, IDSA and ALDF
Groupthink is a psychological phenomenon that occurs within a group of people, in which the desire for harmony or conformity in the group results in an irrational or dysfunctional decision-making outcome. Group members try to minimize conflict and reach a consensus decision without critical evaluation of alternative viewpoints, by actively suppressing dissenting viewpoints, and by isolating themselves from outside influences.