Petition updateCalling for a Congressional investigation of the CDC, IDSA and ALDFIDSA Retracts Lyme Disease Publication Due to Inaccurate Information on Modes of Transmission
Carl TuttleHudson, NH, United States
Jul 4, 2021

Additional email to Paul Auwaerter, vice chair of the IDSA Foundation.

1st email: https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/29231613

2nd email: https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/29263852

---------- Original Message ----------

From: CARL TUTTLE <runagain@comcast.net>
To: pauwaert@jhmi.edu, alexa011@mc.duke.edu, thomas.fekete@temple.edu, editor2@webmd.net
Cc: All members of the NH Lyme Disease Study Commission, governorsununu@nh.gov John Sununu
Date: 07/04/2021 8:23 AM
Subject: IDSA Retracts Lyme Disease Publication Due to Inaccurate Information on Modes of Transmission

IDSA Retracts Lyme Disease Publication Due to Inaccurate Information on Modes of Transmission
https://www.webwire.com/ViewPressRel.asp?aId=275320
 
Washington, DC USA –   WEBWIRE  –  Tuesday, June 22, 2021
 
Excerpt:
 
In response to a complaint filed by the Patient Centered Care Advocacy Group (PCCAG), the Infectious Diseases Society of America (IDSA) has removed the publication, Ten Facts You Should Know About Lyme Disease , from its website...
 
... “This statement is inaccurate. It is well documented that Lyme disease can be transmitted from mother to fetus and lead to adverse birth outcomes. Transmission of B. burgdorferi from mother to fetus in humans has been documented with Borrelia spirochetes identified in fetal tissues/and or placenta by various methods including culture, immunohistochemistry with use of specific monoclonal antibodies, indirect immunofluorescence, PCR and microscopy.”...
 
 
July 4, 2021
  
The IDSA Foundation
1300 Wilson Boulevard Suite 300
Arlington, VA 22209
Attn:  Paul Auwaerter, vice chair of the IDSA Foundation
 
Dr Auwaerter,
 
Per the attached list of references, congenital transmission of Lyme disease was recognized back in 1985 so it has taken the IDSA 36 years to acknowledge this mode of transmission?  

https://www.dropbox.com/s/z10em0szgpm8bll/Congenital%20Transmission%20of%20Lyme%202015.doc?dl=0
 
Here is yet other example where the IDSA refuses to recognize critical facts about the disease:
 
Seronegative Lyme disease
 
I would like to point out the following case study from Stony Brook Lyme clinic. I understand the patient received thirteen spinal taps, multiple courses of IV and oral meds, and relapsed after each one, proven by CSF antigens and/or PCR. The only way this patient (said to be a physician) remained in remission was to keep her on open ended clarithromycin- was on it for 22 months by the time of publication.
 
 
Seronegative Chronic Relapsing Neuroborreliosis.  
https://www.ncbi.nlm.nih.gov/pubmed/7796837
 
Lawrence C. · Lipton R.B. · Lowy F.D. · Coyle P.K. 
 
Department of Medicine, Department of Neurology, and Division of Infectious Diseases, Albert Einstein College of Medicine, and Department of Neurology, State University of New York at Stony Brook, New York, NY., USA
 
Eur Neurol 1995; 35:113–117  (DOI:10.1159/000117104)
 
Abstract
 
We report an unusual patient with evidence of Borrelia burgdorferi infection who experienced repeated neurologic relapses despite aggressive antibiotic therapy. Each course of therapy was associated with a Jarisch-Herxheimer-like reaction. Although the patient never had detectable free antibodies to B. burgdorferi in serum or spinal fluid, the CSF was positive on multiple occasions for complexed anti-B. burgdorferi antibodies, B. burgdorferi nucleic acids and free antigen.
 
___________________________________
 
 
For your review, here is a list of additional references from my personal Dropbox storage area:
 
Seronegativity in Lyme borreliosis and Other Spirochetal Infections
 
16 September 2003
 
https://www.dropbox.com/s/3d6m45jzlhhwalu/Seronegativity.pdf?dl=0
 
I’ll ask the question again; “So what else have you gotten wrong and propagated over the past three decades Dr. Auwaerter?”
 
It doesn’t sound like the Infectious Diseases Society of America has gotten much right about Lyme disease and you appear to be spearheading the disinformation as you were lead author of the deplorable Lancet article:
 
Lyme disease antiscience
http://www.thelancet.com/journals/laninf/article/PIIS1473-3099(12)70054-3/fulltext
 
 
Carl Tuttle
Hudson, NH
 
Member of Governor Chris Sununu’s Lyme Disease Study Commission
http://www.gencourt.state.nh.us/statstudcomm/details.aspx?id=1515&rbl=1&txtbillnumber=hb490
 
Cc: All members of the NH Lyme Disease Study Commission
 
THOMAS FEKETE, M.D., FIDSA CHAIR of the IDSA Foundation
 
Barbara D. Alexander, MD, MHS, FIDSA, President IDSA
 
Editor WebMD
 

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