This petition site is a clearinghouse of evidence to be used in current and future litigation over the deliberate mishandling of Lyme disease by the academics that have controlled the narrative, government health officials who have aligned themselves and financed the deception with US taxpayer dollars and the editors of journals who continue to conceal the truth through the so-called "peer review" process.
--------- Original Message ----------
From: CARL TUTTLE <runagain@comcast.net>
To: "asteere@partners.org" <asteere@partners.org>, "afauci@niaid.nih.gov" <afauci@niaid.nih.gov>
Cc: tickbornedisease@hhs.gov, (97 Undisclosed recipients)
Date: 07/21/2020 11:25 AM
Subject: 1993 Senator Ted Kennedy Hearing, Washington DC
July 21, 2020
Center for Immunology and Inflammatory Diseases
Massachusetts General Hospital
149 13th Street
Charlestown, MA 02129
Attn: Allen Steere, MD, Principal Investigator
Dr. Steere,
It was brought to my attention that you attended the 1993 hearing in Washington chaired by Senator Ted Kennedy where fourteen-year-old Lyme patient Evan White testified while in a wheelchair.
NEWS: Former patient who testified as a child about Lyme disease recalls encounter with Sen. Ted Kennedy
https://www.lymedisease.org/186/
Excerpt:
“No one could hear or feel the moment of that child and not be moved,” Kennedy explained to the [Boston] Globe at the time. Anyone who wasn’t moved, he said, “hasn’t got a heart.”
Based on the summary below it appears that it took years of antibiotics, not weeks to treat Evan's disability. Had he not met Dr. Joseph Burrascano, Evan would have been a burden on the Social Security program today through "therapeutic nihilism." [1]
Late Neurologic Lyme Is Reversible: Evan White
Post by CaliforniaLyme » Wed 31 Oct 2007 16:46
https://www.lymeneteurope.org/forum/viewtopic.php?t=147
Although you witnessed firsthand the severity of Lyme disease Dr. Steere you and the co-defendants of the Lisa Torrey vs IDSA racketeering lawsuit went on to coauthor the deplorable Lancet article in September of 2011:
Antiscience and ethical concerns associated with advocacy of Lyme disease
Dr Paul G Auwaerter, MD, Johan S Bakken, MD, PhD, Prof Raymond J Dattwyler, MD, Prof J Stephen Dumler, MD, Prof John J Halperin, MD, Edward McSweegan, PhD, Prof Robert B Nadelman, MD, Susan O'Connell, MD,
Prof Eugene D Shapiro, MD, Prof Sunil K Sood, MD, Prof Allen C Steere, MD, Prof Arthur Weinstein, MD, Prof Gary P Wormser, MD
http://www.thelancet.com/journals/laninf/article/PIIS1473-3099(11)70034-2/abstract
Excerpt:
“Some activists portray Lyme disease, a geographically limited tick-borne infection, as a disease that is insidious, ubiquitous, difficult to diagnose, and almost incurable; they also propose that the disease causes mainly non-specific symptoms that can be treated only with long-term antibiotics and other unorthodox and unvalidated treatments.”
Your 1979 paper identifies Neurologic Lyme as a disabling disease:
Medicine (Baltimore). 1979 Jul;58(4):281-94.
Neurologic abnormalities of Lyme disease.
Reik L, Steere AC, Bartenhagen NH, Shope RE, Malawista SE.
PMID: 449663 DOI: 10.1097/00005792-197907000-00001
https://www.ncbi.nlm.nih.gov/pubmed/449663
And here is the 2014 official playbook right out of Mass General Hospital on how to overlook persistent infection and avoid liability for committing the TBD patient to a psychiatric ward: [2]
Lyme disease: a review of its epidemiology, evaluation, and treatment.
Gerstenblith TA, Stern TA.
Consultation Psychiatry, Massachusetts General Hospital, Boston, MA; Harvard Medical School, Boston, MA; Avery D. Weisman Psychiatry Consultation Service, Massachusetts General Hospital, Boston, MA. Electronic address:
http://www.ncbi.nlm.nih.gov/pubmed/25016354
Excerpt:
"If a patient's symptoms become so severe that he or she develops significant distress and impairment in occupational and social functioning, the patient should be assessed for a somatic symptom disorder (even if a known medical illness is present)."
_______________________________________________________
How many other Lyme patients have been lost to this travesty over the past three decades due to this racketeering scheme to suppress evidence of persistent infection after extensive antibiotic treatment and then claim there is no evidence? [3]
Carl Tuttle
Lyme Endemic Hudson, NH
Cc: Tick-Borne Disease Working Group
References:
1. The twin traps of overtreatment and therapeutic nihilism in clinical practice
Sílvia Mamede , Henk G Schmidt
DOI: 10.1111/medu.12264
2. Letter to the editor Psychosomatics
https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/9959961
3. Letter to the editor published in the BMJ
https://www.bmj.com/content/369/bmj.m1041/rr-1