Follow-up letter to Dr. Ben Beard of the CDC.....
---------- Original Message ----------
From: CARL TUTTLE <runagain@comcast.net>
To: tickbornedisease@hhs.gov, cbb0@cdc.gov
Cc: (98 Undisclosed recipients)
Date: June 1, 2020 at 2:29 PM
Subject: Re: Response from the CDC: "Direct Diagnostic Tests for Lyme Disease"
On Tue, May 12, 2020 at 4:06 PM Beard, Charles (Ben) (CDC/DDID/NCEZID/DVBD) < cbb0@cdc.gov> wrote:
“In terms of increasing the early sensitivity of Lyme disease diagnostic tests, we agree that this is badly needed. The primary complication lies in the fact that during early stages of illness, Lyme spirochetes are only transiently present in the peripheral blood where they can be detected by a direct diagnostic test.”
June 1, 2020
National Center for Emerging and Zoonotic Infectious Diseases
1600 Clifton Road
Atlanta GA 30329-4027 USA
Attn: Ben Beard, PhD Chief, Bacterial Diseases Branch, Division of Vector-Borne Diseases, NCEZID
Dr. Beard,
The quote above was taken from your response to an inquiry regarding the status of "Direct Diagnostic Tests for Lyme Disease" through a supporter of my change.org petition.
Let me refresh your memory……
A DNA sequencing test was being evaluated by the CDC in 2013 when Dr. Sin Lee of Milford Molecular Diagnostics identified a spirochetemia in the blood of a sixteen-year-old boy who was previously treated for Lyme disease. Dr. Lee found spirochetes in the blood of this patient in the middle of the winter so this was a complete surprise as it goes against the concept that “spirochetes are only transiently present in the peripheral blood.”
Dr. Lee went on to publish his findings:
International Journal of Molecular Sciences
DNA sequencing diagnosis of off-season spirochetemia with low bacterial density in Borrelia burgdorferi and Borrelia miyamotoi infections.
https://www.ncbi.nlm.nih.gov/pubmed/24968274
Sin Hang Lee, Jessica S Vigliotti, Veronica S Vigliotti, William Jones, Thomas A Moorcroft, Katherine Lantsman
________________
Faulty/misleading antibody tests (Serology) landed this sixteen-year-old male in a psychiatric ward when his lab results did not meet the CDC’s strict criteria for positive results. His Western blot had only four of the required five IgG bands. Subsequent DNA sequencing identified a spirochetemia in this patient’s blood so his psychiatric issues were a result of neurologic Lyme disease misdiagnosed by antiquated/misleading serology. This patient was previously treated with antibiotics so it was a confirmed case of chronic Lyme disease.
After Dr. Lee published his findings, the CDC abruptly ended all communication with no explanation which prompted Dr. Lee to file a 57.1million dollar lawsuit: (proficiency testing was never completed as planned)
Associated Press
Milford scientist suing CDC over Lyme test
https://apnews.com/f018456adcbf4d5c94596963b04fc54d
John Burgeson November 20, 2018
________________
Dr. Beard……It would appear that the CDC wants to avoid direct detection methods at all costs to ensure the existing dogma remains intact. Dogma (racketeering scheme) that the CDC has supported for three decades.
Carl Tuttle
Lyme Endemic Hudson, NH