The email below is a follow-up to my previous letter posted in the last petition update: https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/25847056

---------- Original Message ----------
From: CARL TUTTLE <runagain@comcast.net>
To: Dennis.Dixon1@nih.hhs.gov, tickbornedisease@hhs.gov, hhh1@cdc.gov
Cc: (93 Undisclosed recipients)
Date: March 6, 2020 at 10:36 AM
Subject: Re: March 3-4, 2020, TBDWG Meeting (in-person)

Dr. Dixon,

Can you please explain to the Working Group why you only referenced the Klempner antibiotic trials during the March 4th meeting and none of the 700 other references I sent to you on Wednesday? What is your motivation for suppressing evidence of persistent infection after antibiotic treatment?

The following publication from Stony Brook Lyme Clinic couldn’t be clearer regarding treatment failure identifying chronic Lyme disease in a patient aggressively treated with antibiotics. I understand the patient received thirteen spinal taps, multiple courses of IV and oral meds, and relapsed after each one, proven by CSF antigens and/or PCR. (DIRECT DETECTION METHODS) The only way this patient (said to be a physician) remained in remission was to keep her on open ended clarithromycin- was on it for 22 months by the time of publication.

Seronegative Chronic Relapsing Neuroborreliosis.  
https://www.ncbi.nlm.nih.gov/pubmed/7796837

Lawrence C.a · Lipton R.B.b · Lowy F.D.c · Coyle P.K.d 

aDepartment of Medicine, bDepartment of Neurology, and cDivision of Infectious Diseases, Albert Einstein College of Medicine, and dDepartment of Neurology, State University of New York at Stony Brook, New York, NY., USA

Eur Neurol 1995; 35:113–117  (DOI:10.1159/000117104)

Abstract

We report an unusual patient with evidence of Borrelia burgdorferi infection who experienced repeated neurologic relapses despite aggressive antibiotic therapy. Each course of therapy was associated with a Jarisch-Herxheimer-like reaction. Although the patient never had detectable free antibodies to B. burgdorferi in serum or spinal fluid, the CSF was positive on multiple occasions for complexed anti-B. burgdorferi antibodies, B. burgdorferi nucleic acids and free antigen.
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Dr. Dixon,

Please hit reply all as I am sure everyone wants to hear your response to my inquiry.

A copy of this email has been sent to CDC attorney Heather Huntley and attorney Daniel Dutko of the Lisa Torrey vs IDSA lawsuit.

Carl Tuttle

Lyme Endemic Hudson, NH