My follow-up message to the Senate Health and Human Services Committee…..
------- Original Message ----------
From: CARL TUTTLE <runagain@comcast.net>
To: Tom.Sherman@leg.state.nh.us
Cc: Shannon.Chandley@leg.state.nh.us, martha.fullerclark@leg.state.nh.us, James.Gray@leg.state.nh.us, Jeb.Bradley@leg.state.nh.us, Howard.Moffett@leg.state.nh.us, james.potter@nhms.org, michael.padmore@nhms.org, kathie@kathiefife.com, sdonta@comcast.net, Howard Moffett <howard.m.moffett@gmail.com>
Date: February 14, 2020 at 11:24 AM
Subject: New Hampshire HB490 follow-up
To the Senate Health and Human Services Committee,
I would like to thank the Senate Health and Human Services Committee for listening to us and working to create a path towards better diagnosis, treatment, and care for chronically ill patients suffering with tick borne diseases.
I neglected to mention in Tuesday’s hearing that I am also dealing with prostate cancer.
My letters to the editor have been published in JAMA, The Lancet Infectious Diseases, Arthritis & Rheumatology, and the BMJ. Please see today’s letter below written to the corresponding author of a recent article published in Nature Research.
The CDC acknowledges that their “official” surveillance data is incorrect, i.e. not 30,000 cases but over 300,000 new cases per year. Plus reporting is variable between states and counties. So these researchers have achieved near perfect correlation with incorrect data.
Sincerely,
Carl Tuttle
Lyme Endemic Hudson, NH
________________________________________
Nature Research
Lymelight: forecasting Lyme disease risk using web search Data
https://www.nature.com/articles/s41746-020-0222-x
Published online Feb 4, 2020
Adam Sadilek, Yulin Hswen, Shailesh Bavadekar, Tomer Shekel, John S. Brownstein & Evgeniy Gabrilovich
Feb 14, 2020
Google Inc.
1600 Amphitheatre Parkway
Mountain View, CA 94043
Attn: Adam Sadilek, Corresponding Author and Software Engineer
Dear Mr. Sadilek,
If we focused on the acute stage of infection we could have ignored the following diseases:
1. Rheumatic fever (untreated strep throat)
2. AIDS (untreated HIV)
3. Syphilis left untreated leads to progressive disability and dementia.
What happens to a patient with Lyme disease who goes months, years, or decades before diagnosis because of a false-negative serological test result, missing bulls-eye rash, misdiagnosis etc.?
The absence of a bulls-eye rash after tick bite allows patients to progress to severe neurological disease instead of obtaining a prompt diagnosis and early treatment. Humans do not produce detectable antibodies to Lyme disease for 4-6 weeks after a tick bite. By the time serology tests are positive, the spirochetes have already invaded various deep tissues, like those in syphilis, and are hard to eradicate with antibiotics.
Post Treatment Lyme Disease Syndrome (PTLDS) after early treatment and untreated Lyme of months, years or decades are two entirely different disease states; the latter being ignored for over three decades. Patients who have had a prolonged exposure to the pathogen are almost always incapacitated. In fact, patient testimony all across America is describing a disease that is destroying lives, ending careers while leaving its victim in financial ruin [1] yet there are no Public Service Announcements informing the public that you could become horribly “debilitated” or die from Lyme disease. [ 2 3 4 5 6 7 8 9 10 11]
Duke University Oncologist Dr. Neil Spector required a heart transplant after his infection was left untreated for years while serology was repeatedly negative for Lyme disease.
Gone in a Heartbeat – A Physician’s Search for True Healing
https://www.lymedisease.org/book-review-spector-lyme-disease/
Of course none of these references are promoted by those who have controlled the narrative for the past three decades and for that reason “you don’t get it until you get it” and then it’s too late.
There is no short term cure for this stage of disease and the CDC claims that even 20% of early treated patients do not recover. (Post Treatment Lyme Disease Syndrome)
The fraudulent misclassification of Lyme as a simple nuisance disease (hard to catch and easily treated) [12] has left hundreds of thousands chronically ill while the focus was to discredit the sick and disabled along with the courageous clinicians attempting to help these patients. [13]
We have lost three decades to this racketeering activity [14] while the attention and research dollars should have been used to find new approaches to fight this antibiotic resistant/tolerant superbug.
We are dealing with a life-altering/life-threatening infection with faulty/misleading antibody tests, inadequate treatment, no medical training and absolutely no disease control whatsoever; a public health disaster.
Lyme disease is a 21st Century plague hidden in plain sight.
Respectfully Submitted,
Carl Tuttle
Lyme Endemic Hudson, NH
Cc: Alison Mitchell Editorial & Publishing Director, Nature Journals
REFERENCES: (Please read them)
1 Under Our Skin Documentary
https://vimeo.com/221710454?fbclid=IwAR07MFNDcYwLn6SnaPWa9bUOBsfBcCQfnOdCra0ruQiwixr5jLiLN8SJPYE
2 Wheelchair-Bound Girl Calls Blessing By Pope Francis ‘Most Precious Moment Of My Life’
http://newyork.cbslocal.com/2015/09/24/pope-francis-blesses-girl-in-wheelchair/
NEW YORK (CBSNewYork) — “A 12-year-old girl who has been confined to a wheelchair since being diagnosed with Lyme disease said meeting Pope Francis as he arrived in New York Thursday was “the most precious moment of my life.”
3 Nashua Mom in the 'Lyme Light' on Katie Couric Show
http://patch.com/new-hampshire/nashua/nashua-mom-talks-chronic-lyme-on-katie-couric-show
“Fifth-grade teacher Kelly Downing was paralyzed from the neck down and interviewed by Katie Couric.”
4 Cardiac Tropism of Borrelia burgdorferi: An Autopsy Study of Sudden Cardiac Death Associated with Lyme Carditis.
(March 2016)
http://ajp.amjpathol.org/article/S0002-9440(16)00099-7/abstract
“Fatal Lyme carditis caused by the spirochete Borrelia burgdorferi rarely is identified. Here, we describe the pathologic, immunohistochemical, and molecular findings of five case patients.”
5 CDC Case Study #1: Three Sudden Cardiac Deaths Associated with Lyme Carditis:
http://www.cdc.gov/mmwr/preview/mmwrhtml/mm6249a1.htm?s_cid=mm6249a1_w
6 CDC Case Study #2: A case report of a 17-year old male with fatal Lyme carditis
http://www.cardiovascularpathology.com/article/S1054-8807(15)00025-3/abstract?rss=yes
7 Infection by Borrelia burgdorferi and cutaneous B-cell lymphoma (Cancer)
https://www.ncbi.nlm.nih.gov/pubmed/9331890
“Specific DNA sequences of Borrelia burgdorferi were identified in cutaneous lesions from 9 patients (follicle center lymphoma: 3/20; immunocytoma: 3/4; marginal zone B-cell lymphoma: 2/20; diffuse large B-cell lymphoma: 1/6).”
8 Culture evidence of Lyme disease in antibiotic treated patients living in the Southeast.
http://danielcameronmd.com/culture-evidence-of-lyme-disease-in-antibiotic-treated-patients-living-in-the-southeast/
“Rudenko and colleagues reported culture confirmation of chronic Lyme disease in 24 patients in North Carolina, Florida, and Georgia. All had undergone previous antibiotic treatment.”
9 Granulomatous hepatitis associated with chronic Borrelia burgdorferi infection: a case report
http://www.labome.org/research/Granulomatous-hepatitis-associated-with-chronic-Borrelia-burgdorferi-infection-a-case-report.html
“The patient had active, systemic Borrelia burgdorferi infection and consequent Lyme hepatitis, despite antibiotic therapy.”
10 Seronegative Chronic Relapsing Neuroborreliosis.
https://www.ncbi.nlm.nih.gov/pubmed/7796837
“We report an unusual patient with evidence of Borrelia burgdorferi infection who experienced repeated neurologic relapses despite aggressive antibiotic therapy. Each course of therapy was associated with a Jarisch-Herxheimer-like reaction. Although the patient never had detectable free antibodies to B. burgdorferi in serum or spinal fluid, the CSF was positive on multiple occasions for complexed anti-B. burgdorferi antibodies, B. burgdorferi nucleic acids and free antigen.”
11 Persistent Borrelia Infection in Patients with Ongoing Symptoms of Lyme Disease
http://www.mdpi.com/2227-9032/6/2/33
“This pilot study recently identified chronic Lyme disease in twelve patients from Canada. All of these patients were culture positive for infection (genital secretions, skin and blood) even after multiple years on antibiotics so there was no relief from current antimicrobials. Some of these patients had taken as many as eleven different types of antibiotics.”
12 Lyme Disease Is Hard to Catch And Easy to Halt, Study Finds
New York Times By GINA KOLATA Published: June 13, 2001
http://www.nytimes.com/2001/06/13/us/lyme-disease-is-hard-to-catch-and-easy-to-halt-study-finds.html
13 Letter to the Editor, The Lancet Infectious Diseases Published May 2012
http://www.thelancet.com/journals/laninf/article/PIIS1473-3099(12)70054-3/fulltext
The Lancet published my rebuttal to the “Antiscience” article written by the IDSA guideline authors.
14 Racketeering antitrust lawsuit against the Infectious Diseases Society of America
https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/22161412