Today's letter to the Tick-Borne Disease Working Group with Cc: to the lead attorney of the Lisa Torrey vs IDSA lawsuit.....
---------- Original Message ----------
From: CARL TUTTLE <runagain@comcast.net>
To: tickbornedisease@hhs.gov
Cc: (82 Undisclosed recipients)
Date: January 31, 2020 at 8:35 AM
Subject: WORMSER at it again with his JUNK SCIENCE financed by the CDC
Clinical Infectious Diseases
Published: 23 January 2020
Prospective Evaluation of the Frequency and Severity of Symptoms in Lyme Disease Patients With Erythema Migrans Compared With Matched Controls at Baseline, 6 Months, and 12 Months
Gary P. Wormser, Donna McKenna, Carol L. Karmen, Keith D. Shaffer, Jesse H. Silverman, John Nowakowski, Carol Scavarda, Eugene D. Shapiro, and Paul Visintainer
Excerpt:
"The patients with erythema migrans were treated with antimicrobial regimens consistent with current guidelines beginning on the date of the baseline visit."
Financed through the CDC open checkbook: Funding: RO1 CK 000152
https://projectreporter.nih.gov/project_info_description.cfm?aid=8707215&icde=48502354&ddparam=&ddvalue=&ddsub=&cr=3&csb=default&cs=ASC&pball=
To: The Tick-Borne Disease Working Group,
One again we see Dr. Wormser unethically fixated on the acute stage of disease after bulls-eye rash. This does not represent the entire Lyme patient population!
Patients who have had a prolonged exposure to the pathogen and advance to late stage are almost always incapacitated. By avoiding the late stage horribly disabled Lyme patient population, you can perpetuate a forty year racketeering scheme to deny persistent infection.
Patient testimony all across America is describing a disease that is destroying lives, ending careers while leaving its victim in financial ruin.
Over thirty years has passed since the discovery of Lyme disease and we still don’t understand how Lyme disables its victim yet we know that untreated strep throat progress to rheumatic fever, causing irreversible heart damage. Untreated syphilis leads to progressive disability and dementia, and untreated human immunodeficiency virus infection progresses to AIDS with significant disability and death.
So what happens to the Lyme patient who is left untreated for months, years or decades?
Wormser and Shapiro refused to answer that question in my letter to the editor of JAMA published Dec 18, 2018.
Controversies About Lyme Disease
https://jamanetwork.com/journals/jama/article-abstract/2718786
There is no short term treatment cure for the horribly disabled Lyme patient and as long as we continue to ignore this patient class the truth about this disabling disease remains hidden from the public while the horribly disabled are left to fend for themselves.
There is no conflict of interest statement from Wormser and Shapiro revealing to the reader that they are defendants in a racketeering lawsuit in Texas District Court. The suit claims that these individuals along with the Infectious Diseases Society of America have all colluded to deny chronic Lyme disease. Absolutely everything Wormser and Shapiro have published is now in question. EVERYTHING
Ignoring the horribly disabled late stage Lyme patient while focusing on the acute stage of disease with early treatment has been deliberate and blatantly obvious:
Case in point:
NY Times: My Son Got Lyme Disease. He’s Totally Fine.
Eugene Shapiro
Horror stories about lingering Lyme disease proliferate, but the illness is easily treated.
https://www.nytimes.com/2019/06/27/well/live/lyme-disease-children-treatment-diagnosis.html
We have a disease that is destroying lives while the CDC and IDSA suppress evidence of persistent infection after extensive antibiotic treatment leaving hundreds of thousands (if not millions) around the globe in a debilitated state; a worldwide public health disaster.
Carl Tuttle
Lyme Endemic Hudson, NH