Editorial censorship over the past thirty years has kept the truth from the public as patient testimony all across America (and the globe) is describing a disease that is destroying lives, ending careers while leaving its victim in financial ruin. This petition site is a clearinghouse of evidence to be used in current and future litigation over the deliberate mishandling of Lyme disease by the academics that have controlled the narrative, government health officials who have aligned themselves and financed the deception with US taxpayer dollars and the editors of journals who continue to conceal the truth.

There is no way my letter to the editor below will see the light of day so it is being published here for everyone to see …….

When evidence based medicine has been spun to fit bias agendas and the patient voice has been intentionally ignored who investigates the dishonest science?

-Carl Tuttle

Letter to: Dr. Joerg Heber with copy to The Tick-borne Disease Working Group and Dr. Anthony Fauci who continues to fund Wormser's "JUNK SCIENCE"

---------- Original Message ----------
From: CARL TUTTLE < runagain@comcast.net>
To:  jheber@plos.org,  plosone@plos.org
Cc:  ipuebla@plos.org,  mdohm@plos.org,  gvousden@plos.org,  mbyrne@plos.org,  afauci@niaid.nih.gov
Date: November 12, 2019 at 8:28 AM
Subject: Post-treatment Lyme disease symptoms score: Developing a new tool for research.

PLOS 

Post-treatment Lyme disease symptoms score: Developing a new tool for research.

Turk SP, Lumbard K, Liepshutz K, Williams C, Hu L, Dardick K, Wormser GP, Norville J, Scavarda C, McKenna D, Follmann D, Marques A  https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0225012

Excerpt:

“Some patients have residual non-specific symptoms after therapy for Lyme disease, referred to as post-treatment Lyme disease symptoms or syndrome, depending on whether there is functional impairment.”
 

Nov 12, 2019

PLOS
1160 Battery Street
Koshland Building East, Suite 225
San Francisco, CA 94111
Attn: Joerg Heber, Editor-in-Chief (PhD in Semiconductor Physics)

Dear Dr. Heber,

As the Editor-in-Chief of a scientific journal you should be well aware of the following: (Taken from the attached JAMA letter to the editor published Dec 18, 2018)  https://jamanetwork.com/journals/jama/article-abstract/2718786

“It is well known that untreated streptococcal pharyngitis can progress to rheumatic fever, causing irreversible heart damage. Untreated syphilis leads to progressive disability and dementia, and untreated human immunodeficiency virus infection progresses to AIDS with significant disability and death. What happens to a patient with Lyme disease who goes months, years, or decades before diagnosis because of a false-negative serological test result?”

Wormser et al do not discuss the consequences of untreated Lyme disease in their PLOS published paper. Why do you think that is the case Dr. Heber?

Post Treatment Lyme Disease Syndrome after early treatment and untreated late stage Lyme of months, years or decades are two distinctly different disease states with the later going unrecognized for over three decades. The absence of a bulls-eye rash after tick bite allows patients to progress to severe neurological disease instead of obtaining a prompt diagnosis and early treatment. Purposely avoiding the advanced stage of disease hides the horribly disabled and anyone unable to see this is somewhat naïve. Avoiding the seriously disabled Lyme patient population hides the severity of the disease as exposed in the “Under our Skin” documentary.

Under Our Skin - Extended Trailer (5min, please watch the video)

https://www.youtube.com/watch?v=sxWgS0XLVqw

For the past three decades, Lyme disease has been portrayed as hard to catch and easily treated  [1] while those who control the narrative (Through editorial censorship) refuse to recognize this pathogen as an antibiotic resistant/tolerant superbug by suppressing evidence of persistent infection.  [2] This misclassification has all but eliminated government funding that should have been equal to or greater than AIDS or Zika which are also life-altering/life-threatening infections in need of cures.

For example: (in reference to persistent infection)

I would like to point out the following case study from Stony Brook Lyme Clinic. I understand the patient received thirteen spinal taps, multiple courses of IV and oral meds, and relapsed after each one, proven by CSF antigens and/or PCR. The only way this patient (said to be a physician) remained in remission was to keep her on open ended clarithromycin- was on it for 22 months by the time of publication.

Seronegative Chronic Relapsing Neuroborreliosis.  
https://www.ncbi.nlm.nih.gov/pubmed/7796837

Lawrence C.a · Lipton R.B.b · Lowy F.D.c · Coyle P.K.d  aDepartment of Medicine, bDepartment of Neurology, and cDivision of Infectious Diseases, Albert Einstein College of Medicine, and dDepartment of Neurology, State University of New York at Stony Brook, New York, NY., USA
Eur Neurol 1995; 35:113–117  (DOI:10.1159/000117104)

Abstract

We report an unusual patient with evidence of Borrelia burgdorferi infection  who experienced repeated neurologic relapses despite aggressive antibiotic therapy. Each course of therapy was associated with a Jarisch-Herxheimer-like reaction. Although the patient never had detectable free antibodies to B. burgdorferi in serum or spinal fluid, the CSF was positive on multiple occasions for complexed anti-B. burgdorferi antibodies, B. burgdorferi nucleic acids and free antigen.
________________________

Duke University Oncologist Dr. Neil Spector required a heart transplant after his infection was left untreated for four years while serology was repeatedly negative for Lyme disease.

Gone in a Heartbeat – A Physician’s Search for True Healing 

https://www.lymedisease.org/book-review-spector-lyme-disease/

Patient testimony all across America (and the globe) is describing a disease that is destroying lives, ending careers while leaving its victim in financial ruin.

The truth about this devastating disease has been kept from the public for 43 years and there are no  Public Service  Announcements informing the public that you could become horribly disabled  [3]  [4] or die  [5] from Lyme disease.

A worldwide community of physicians has been influenced by the ongoing disinformation campaign aimed at promoting the idea that Lyme is little more than a nuisance disease as health agencies across the globe are blindly following what has been deceitfully established here in the U.S. The academics that controlled the narrative for the past three decades have been named as defendants in a Texas District Court racketeering lawsuit and that fact is missing from the conflicts of interest statement in the Wormser published PLOS article.  Why is that Dr. Heber?

Court Document:

https://www.dropbox.com/s/18uyrli878ug51m/LymeDisease%20RICO%20Lawsuit.pdf?dl=0

We are dealing with a life-altering/life-threatening infection with faulty/misleading antibody tests, inadequate treatment, no medical training and absolutely no disease control; a public health disaster.

And once again we see  Wormser fixated on the acute stage of disease after early treatment as he continues to believe that he has pulled the wool over the eyes of the reader and medical community.

When evidence based medicine has been spun to fit bias agendas and the patient voice has been intentionally ignored who investigates the dishonest science?

A response to this inquiry is required.

Respectfully submitted,

Carl Tuttle

Lyme Endemic Hudson, NH

Cc: Iratxe Puebla, Senior Managing Editor
Michelle Dohm, Managing Editor, Editorial Board Services
George Vousden, Senior Editor
Meghan Byrne, Senior Editor, Team Manager
Anthony S. Fauci, M.D., NIAID Director
 
References: (Please read them!)

1.  Lyme Disease Is Hard to Catch And Easy to Halt, Study FindsNew York Times By GINA KOLATA Published: June 13, 2001

http://www.nytimes.com/2001/06/13/us/lyme-disease-is-hard-to-catch-and-easy-to-halt-study-finds.html  

Excerpt: But some who have treated hundreds of patients with long-term antibiotics, like Dr. Sam L. Donta of Boston University Medical Center, were not convinced. The antibiotics in the studies were not given for a long enough time, Dr. Donta said, and he would have chosen different ones. Perhaps all that the studies show, he said, is ''that this particular treatment doesn't work.''

2.   Peer Reviewed Evidence of Persistence of Lyme Disease Spirochete Borrelia burgdorferi and Tick-Borne Diseases after the mandated one-size-fits-all IDSA treatment approach:(700 articles)

https://www.dropbox.com/s/n09sk90eo6xz7ua/700%20articles%20LYME%20EvidenceofPersistence-V2.pdf?dl=0 

3.   Latent Lyme Disease Resulting in Chronic Arthritis and Early Career Termination in a United States Army Officer (Published: 06 March 2019)

https://academic.oup.com/milmed/advance-article/doi/10.1093/milmed/usz026/5370051?searchresult=1

4.   Nicole Malachowski: Unfit for Duty from Debilitating Tick-Borne Disease

http://cdmrp.army.mil/cwg/stories/2018/nicole_malachowski_profile

5.    Deaths From Lyme Disease Compiled by: John D. Scott, Research Scientist 17 April 2018

https://www.dropbox.com/s/eo794dx7zspc1ln/Ld%20deaths.doc?dl=0