As a follow-up to the previous petition update please see below the second letter sent to Dr. Fauci followed by two notes to Attorney Daniel Dutko (RICO lawsuit) regarding the response received from NIAD on behalf of Dr. Fauci.

Dr. Fauci was sent the entire comment file from this petition totaling over 1000 pages. Nine randomly selected comments from disabled Lyme patients across America were highlighted in a separate email.

The purpose of this petition is not only to demand a congressional investigation but to provide a history of who knew what and when and decided to run with the existing racketeering scheme as opposed to challenging what has be wrongly established. All information posted to this petition is available for future litigation.

Note: Download the Quest Diagnostics Lyme Report 2018 below indicating that, “Rates of positive test results are rising dramatically and is now present in new U.S. states”

Second letter to Dr. Fauci:

---------- Original Message ----------
From: Carl Tuttle <runagain@comcast.net>
To: Anthony.Fauci@nih.hhs.gov
Cc: info@massmed.org, hilary.marston@nih.hhs.gov, Marshall.Bloom@nih.hhs.gov, ddutko@hanszenlaporte.com, president@massmed.org, chris.smith@mail.house.gov, collin.peterson@mail.house.gov, catharine.paules@nih.hhs.gov, mmsvp@massmed.org, jdrazen@nejm.org, comments@nejm.org, OCPOSTOFFICE@niaid.nih.gov
Date: July 30, 2018 at 4:26 PM
Subject: Re: Tickborne Diseases — Confronting a Growing Threat

Dr. Fauci, 

This is a second request for acknowledgement and response to my email dated July 26, 2018.

As an MD you are well aware that untreated syphilis leads to progressive disability and dementia while untreated HIV infection progresses to AIDS with significant disability and death. 

Again I ask the question Dr. Fauci; “What happens to the Lyme patient who went months, years or decades before diagnosis?”

Late stage Lyme disease is a horribly disabling disease and to hide this from the public while ignoring patient testimony is ethically and morally inexcusable yet this is exactly what has been taking place for the past three decades while the focus was to discredit the sick and disabled comparing the disease to the “aches and pains of daily living.” (Wormser term)

Based on the article you coauthored in the NEJM it would appear that you haven’t been entirely straightforward while omitting the facts and references I presented in my previous letter.

Please hit “Reply All” when responding to this inquiry so that those involved in Lyme disease legislation and litigation can hear from you directly. (Not a correspondence officer)

Sincerely,

-Carl Tuttle

Lyme Endemic Hudson, NH

 

1st letter to Attorney Daniel R. Dutko:

---------- Original Message ----------
From: Carl Tuttle <runagain@comcast.net>
To: ddutko@hanszenlaporte.com, Anthony.Fauci@nih.hhs.gov
Cc: info@massmed.org, hilary.marston@nih.hhs.gov, Marshall.Bloom@nih.hhs.gov, ddutko@hanszenlaporte.com, president@massmed.org, chris.smith@mail.house.gov, collin.peterson@mail.house.gov, catharine.paules@nih.hhs.gov, mmsvp@massmed.org, jdrazen@nejm.org, comments@nejm.org, OCPOSTOFFICE@niaid.nih.gov
Date: August 1, 2018 at 9:34 AM
Subject: Re: Tickborne Diseases — Confronting a Growing Threat

Aug 1, 2018 

HANSZEN LAPORTE
14201 Memorial Drive
Houston, Texas 77079
Attn: Daniel R. Dutko, Associate

Dear Attorney Dutko, 

Please see the response below from NIAD, Office of Communications and Government Relations on behalf of Anthony S. Fauci, M.D.

As you click on the links provided by Kara M. Harris you will see a continuation of the established dogma which ignores the fact that undiagnosed Lyme is destroying lives, ending careers, causing death and disability while leaving victims in financial ruin. 

I provided Dr. Anthony Fauci with solid references and a 1033 page document with patient testimony identifying Lyme as a life-altering/life-threatening infection. An astute fifth grader would easily recognize something is seriously wrong here as the patient experience does not match the existing CDC disease representation. 

Fauci’s refusal to challenge what has been wrongly established (through a thirty year racketeering scheme to downplay the severity of Lyme disease) is evidence that this deception is supported throughout all government agencies. 

For your review I have attached the latest Quest Diagnostics Lyme Report 2018 indicating that, “Rates of positive test results are rising dramatically”

https://mma.prnewswire.com/media/724151/Quest_LymeDiseaseTrendsReport.pdf?p=original

We will see many more lives destroyed while government agencies (NIAD) continue to ignore that Lyme is destroying lives, ending careers, causing death and disability while leaving victims in financial ruin. 

Respectfully submitted,

Carl Tuttle

Lyme Endemic Hudson, NH

 

Response from NIAD: 

 --------- Original Message ----------
From: "NIAID Ocpostoffice (NIH/NIAID)" <OCPOSTOFFICE@niaid.nih.gov>
To: "runagain@comcast.net" <runagain@comcast.net>
Cc: "NIAID Ocpostoffice (NIH/NIAID)" <OCPOSTOFFICE@niaid.nih.gov>
Date: July 30, 2018 at 4:05 PM
Subject: RE: Tickborne Diseases — Confronting a Growing Threat CAS-02765

Dear Mr. Tuttle: 

Thank you for your email dated July 26, 2018, to Anthony S. Fauci, M.D., director of the National Institute of Allergy and Infectious Diseases (NIAID), National Institutes of Health, regarding Lyme disease.  Dr. Fauci has asked us to reply on his behalf. 

The scientists, clinicians, and staff at NIAID care about Lyme disease patients, and our scientific work is rooted in compassion.  Although progress has been made toward better understanding the challenges resulting from Lyme disease infection, we recognize the importance of tackling those that remain.  Information about NIAID research on Lyme disease is available at https://www.niaid.nih.gov/diseases-conditions/lyme-disease  In particular, you may wish to review the information on chronic Lyme disease, which discusses NIAID research on post-treatment Lyme disease syndrome at https://www.niaid.nih.gov/diseases-conditions/chronic-lyme-disease

In addition, ongoing research efforts are further described in the NIAID report, Current Efforts in Lyme Disease Research, 2017, at https://www.niaid.nih.gov/sites/default/files/NIAIDLymereport2015.pdf  For example, you may wish to refer to pages 5 and 10 of the report, which describe how NIAID supports basic research projects to address key questions regarding persistence of infection in animal model systems and in human clinical studies.

We appreciate you sharing your thoughts.

Sincerely,

Kara M. Harris, MPH 

Section Chief for Controlled Correspondence and Public Inquiries
Legislative Affairs and Correspondence Management Branch
Office of Communications and Government Relations
National Institute of Allergy and Infectious Diseases
National Institutes of Health

 

2nd letter to Attorney Daniel R. Dutko:

 ---------- Original Message ----------
From: Carl Tuttle <runagain@comcast.net>
To: ddutko@hanszenlaporte.com, Anthony.Fauci@nih.hhs.gov
Cc: info@massmed.org, hilary.marston@nih.hhs.gov, Marshall.Bloom@nih.hhs.gov, president@massmed.org, chris.smith@mail.house.gov, collin.peterson@mail.house.gov, catharine.paules@nih.hhs.gov, mmsvp@massmed.org, jdrazen@nejm.org, comments@nejm.org, OCPOSTOFFICE@niaid.nih.gov
Date: August 1, 2018 at 1:49 PM
Subject: Re: Tickborne Diseases — Confronting a Growing Threat

On August 1, 2018 Carl Tuttle wrote: “As you click on the links provided by Kara M. Harris you will see a continuation of the established dogma which ignores the fact that undiagnosed Lyme is destroying lives, ending careers, causing death and disability while leaving victims in financial ruin.”

 

Dear Attorney Dutko, 

The study below was referenced in the following NIAD document:

Current Efforts in Lyme Disease Research, 2017 https://www.niaid.nih.gov/sites/default/files/NIAIDLymereport2015.pdf 

Conclusion from the study below: Lyme is no big deal!! Wrong! Once again this study focuses on the patient who was previously treated NOT the patient who went months, years or decades before diagnosis.

As my previous emails to Dr. Fauci stated: 

As an MD you are well aware that untreated syphilis leads to progressive disability and dementia while untreated HIV infection progresses to AIDS with significant disability and death. 

You know that untreated strep throat progresses to rheumatic fever causing irreversible heart damage. What happens to the Lyme patient who went months, years or decades before diagnosis?

Suddenly when Lyme is involved all logic and previous knowledge of untreated infection flies out the window! In other words, “Let’s ignore this class of patient altogether.”

As reported by all disabled Lyme patients, the one-sized-fits-all IDSA treatment guideline of two to three weeks of antibiotics had absolutely no effect on the quality of life. We need acknowledgement of the disabled class of Lyme patient with an entirely different treatment approach aimed at returning these individuals to their productive lives as they enjoyed prior to Lyme disease. 

Here is the NIAD referenced study:

Long-term Follow-up of Patients With Lyme Disease: Longitudinal Analysis of Clinical and Quality-of-life Measures.

Wills AB , Spaulding AB , Adjemian J, Prevots DR, Turk SP ,Williams C, Marques A. 

Abstract 

BACKGROUND:

Lyme disease is the most common vector-borne disease in the United States. Some patients report persistent or intermittent subjective symptoms of mild to moderate intensity after antibiotic treatment for Lyme disease. We sought to evaluate trends in clinical and quality-of-life (QOL) measures in a cohort of patients with Lyme disease enrolled in a natural history study at the National Institutes of Health from 2001-2014.

METHODS:

QOL was measured using the self-administered 36-item Short Form Health Survey (SF-36) during study follow-up. Primary outcomes included mean physical (PCS) and mental (MCS) health QOL composite scores and reporting long-term (≥2 years) symptoms, adjusted for Lyme disease stage and severity at diagnosis.

RESULTS:

Overall, 101 patients with an average follow-up time of 3.9 years (range, 0.5-11.3 years) were included. At first visit, overall mean QOL scores were below the US population mean for both PCS (45.6 ± 10.4) and MCS (47.3 ± 11.5) but increased to just above the national average after 3 years of follow-up for both PCS (50.7 ± 9.6) and MCS (50.1 ± 10.0). Baseline QOL scores were lowest in those with late disease (P < 0.01) but also increased by the end of follow-up to national averages. In multivariate analysis, the only factors significantly associated with long-term symptoms or lower QOL scores were other comorbidities unrelated to Lyme disease.

CONCLUSIONS:

Comorbid conditions can play a role in the reporting of long-term symptoms and overall QOL of Lyme disease patients and should be considered in the evaluation of these patients.

CLINICAL TRIALS REGISTRATION:

NCT00028080.

Published by Oxford University Press for the Infectious Diseases Society of America 2016. This work is written by (a) US Government employee(s) and is in the public domain in the US. 

KEYWORDS:

Borreliaburgdorferi; Lyme disease; epidemiology; longitudinal analysis; quality of life

PMID:

27025825

PMCID:

PMC4885655

DOI:

10.1093/cid/ciw189

 

Carl Tuttle

Lyme Endemic Hudson, NH