After my recent post on Social Media and speaking through our charity it was apparent that thousands of parents biggest worry was the question what will happen to our autistic children and adults when we are no longer around. Parents all need piece of mind that practical and emotional support will be available when they are not there to help.

Freedom of Information data that reveals only 1 in 4 councils are able to support disabled people and their Carer's to make contingency plans for future care options; only 1 in 3 LAs are aware of how many disabled adults are currently being cared for by family and friends at home.

Parents and adults with a disability are feeling the pressures and better planning and funding is urgently needed for future care needs so the right support is in place at the right time.

We are calling upon the government to ensure social care is adequately funded to meet the ever growing needs especially in these uncertain times of families and disabled adults  

Our overseas Ambassador Paula McGowan shares :

The delayed LeDeR has been published
138 pages tell us that not much has changed Inappropriate DNRs are still applied because a person learns more slowly
Lack of preventative care doesn't exist
Social care is broken
No accountability 

https://www.kcl.ac.uk/ioppn/assets/pdfs/leder/leder-annual-report-2023.pdf

Parents Quote:

'The reality is, unless you are financially prepared and legally savvy, it is a postcode lottery. No-one seems to want to take responsibility for it. Not enough work is being done to identify the vulnerable families. There is no safety net. It is essential that this changes.'

'I try not to think about it at the moment because I was having sleepless nights over it but it is something I will have to face and it scares me to death'

'This is major cause of anxiety to me.  
As a single mother it’s really difficult A friend said don’t think to much and although that’s hard and sometimes impractical I think we have to not get caught up in forward thinking ,as it’s stopping us enjoying now  '

As a parent of 2 Autistic Adults this is a constant worry especially now during these uncertain times and the results of the recent LeDer Report.

 

We ALL need to have piece of mind.

Please sign this petition to make our voices heard.

Thank you.

Anna Kennedy OBE

www.annakennedyonline.com