Add Myalgic Encephalomyelitis/Chronic Fatigue Syndrome to List B of the NDIS

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In 2018, Emerge Australia launched a paper petition to demand better access to the NDIS for people with ME/CFS. After gathering 1400 signatures it was tabled in Parliament by Greens MP Adam Bandt on 5th December 2018. The petition is still reaching politicians and making waves in Parliament.

However, more needs to be done. We are now launching the same petition but this time online. Whilst the paper petition was successful, we know that an online petition can reach many more people. We are asking you to sign the petition, share it online, and encourage your friends and family to add their name to the petition.

The petition represents the many Australians with ME/CFS whose applications for the National Disability Insurance Scheme (NDIS) are being unfairly rejected. We ask the Australian Government to work with Emerge Australia to address this injustice.

We, the undersigned, request for action by the Australian Government and the NDIA to:

1.    Partner with the ME/CFS community to develop appropriate guidelines for NDIS assessors.

2.    Add ME/CFS to List B of permanent conditions where further assessment is required.

3. Recognise that people with ME/CFS should not be required to have undergone Graded Exercise Therapy or Cognitive Behavioural Therapy in order to access the NDIS as these treatments are no longer recommended and may cause harm.