Petition updateThe Lori Project -Please Help Advocate for Pre-Symptom Early Detection of Abdominal CancerThank you all for signing! For those who saw my post on the Mayo Clinic forum - Please read.
Allen MorganDouglassville, PA, United States
Nov 25, 2024

Hello,

When I made my post on Mayo Clinic Pancreatic Cancer forum, I guess I broke a rule or something since my post is no longer there. Certainly it was not my intent to break any rules.

A couple of people had questions and I couldn't respond since the post was gone and I can't see the questions anymore.

I think I got the gist of one of the questions from a person in California who concurred that they found her pancreatic cancer via an ultrasound.  First, I hope you are doing well.

To be honest I am a complete novice at this process but I have plan :-)

To try and answer your question - my goal is to gather enough signatures that I can reach out to my local US Representative to ask for their help to get some consideration from any one of the following organizations: CDC, or Department of Health & Human Services.

They could start a process to review and recommend a policy change if they see merit even if insurance companies will not agree to pay for these ultrasounds initially.

If we can get some support at a governmental level then dealing with health insurance would be the next step.

As logical as the premise I am suggesting seems to be using ultrasounds as an early detection strategy, I am fully aware this is an uphill battle.

We spend millions upon millions looking at early detection tests and I hope they solve that problem sooner rather then later.

In the interim, ultrasounds are proven tools and non-invasive. Why not leverage them for early detection versus what we do now. We use them when people have symptoms and much later in the pursuit of optimal outcomes.    

The fact I am a novice may not give you much confidence but I will try and make up for it with persistence :-)

If anyone has any questions or suggestions, I can be reached at teamlorimorgan@gmail.com. 

I will also be posting additional information at https://teamlorimorgan.com

Thank you all and kind regards,

Allen Morgan

 

 

 

 

   

 

 

 

 

 

 

 

 

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