Join Us to Honor our Friend and Activist Nick Grillo

Yet another very sad day for all of us: we’ve lost Nick Grillo, an amazing friend and advocate in the ALS community. Nick inspired us all and gave people with ALS a reason to have hope. He was a founding member of Hope NOW for ALS, and started one of the first petitions that galvanized our movement. Although we are heartbroken again, we will use this moment to fight even harder in his memory. On June 16th leaders from Hope NOW for ALS will be in Washington, DC to participate in a rally to advocate for legislation that will open up more treatment options for ALS patients and others with terminal illnesses. We will honor Nick and all the other friends we have lost by using our voices to fight for change. If you are able, we encourage you to learn more and RSVP to attend the rally here: http://www.myrighttotrynow.com/ And that is only the beginning. Over the next few days we will be announcing some new ways for this community to join together, honor friends like Nick, and use our collective power to fight for treatments and a cure. Nick knew what could happen when this community came together, and my family and I have that same hope. Our hope is stronger than our fear, and we will not let this diagnosis change that. We plan on stomping our feet, clapping our hands, and screaming from the top of our lungs until someone comes up with a treatment. Thank you again for joining this movement, it means more than you will ever know. Jay + Hope NOW for ALS