I have read every single one of the thousands and thousands of comments on the petition. Yep, really...every single one. This particular story hit me hard and will stay with me forever. Whenever I need a boost to reenergize my determination to fight for home care improvements, THIS is the story I will remember... "My husband passed away from ALS last February. He had Medicare but it didn't provide any care in home. I had to take care of him on a trache for 8 months as he was unable to breath on his own or move anything except for his eyes. It was so hard on my own, no showers, sleep or eating for me for days, only if a volunteer would sit with him once a week. I couldn't take care of myself much less him from the sleep deprivation and not eating. I got a back injury from moving and changing him that made it nearly impossible to move, I now have to have physical therapy. I should have been there spending quality time with the love of my life. We missed so much time together that I can't stop grieving and the depression. Sometimes I can't bear the guilt and have thought of suicide, even though I did everything humanly possible. He decided to come off of the trache because he couldn't bear to see me so sad and I feel like it was my fault. I am in therapy and slowly healing. I feel for everyone going through this, patients and especially caregivers that have to watch the ones they love slowly wither away" Lori Alford - South Carolina