💜Faye's Law Has Evolved- Here's why
To everyone who has signed, shared and supported Faye’s Law — thank you. 💜
I have made an important update to this petition, and I want to explain why.
The reason for Faye’s Law has not changed.
What has changed is the healthcare landscape around it — and our understanding of exactly where Faye’s Law could fit within the patient-safety reforms now developing.
When this campaign began, I was asking for greater recognition of patients’ medical histories, repeated abnormalities and the dangers of diagnostic and lifestyle labels influencing future care.
I still am.
But important patient-safety developments have happened and continue to develop, including Jess’s Rule, Martha’s Rule and the NHS Reasonable Adjustment Digital Flag.
These are changes we welcome.
And now there is another major development:
THE GOVERNMENT IS LEGISLATING FOR A SINGLE PATIENT RECORD.
The Health Bill 2026 proposes bringing together health and care information that is currently fragmented across different systems.
This matters enormously to Faye’s Law.
It means we no longer need simply to ask:
“Can we connect the records?”
We can ask something more important:
“WHILE YOU ARE CONNECTING THEM — CAN WE CONNECT THE PATTERN TOO?”
That is why I have updated Faye’s Law.
I do not want this campaign to duplicate reforms that other families, campaigners and healthcare professionals have worked incredibly hard to achieve.
I want Faye’s Law to build upon them and help close the gaps between them.
Faye’s Law — History Matters — now asks for six central patient-safety principles:
💜 SEE THE HISTORY
A patient’s relevant medical history should follow them across years, services and organisations.
📈 CONNECT THE PATTERN
Repeated unexplained abnormalities and related presentations should trigger longitudinal review rather than being considered only in isolation.
🏷️ QUESTION THE LABEL
A previous diagnostic or lifestyle label should never replace appropriate clinical assessment when new objective evidence, abnormalities or deterioration emerge.
🧠 PROTECT THE VULNERABLE
Memory, cognitive, communication and other difficulties should trigger appropriate reasonable adjustments so that vulnerable patients are not expected to navigate complicated healthcare systems without the support they need.
🔗 SOMEONE MUST OWN THE NEXT STEP
Important referrals and investigations should have a visible outcome. A referral being sent is not the same as a problem being solved.
🧩 BUILD HISTORY MATTERS INTO THE SINGLE PATIENT RECORD
Do not simply join hundreds of pages together.
Use technology safely to help clinicians see significant trends, repeated presentations, unfinished pathways, vulnerability and relevant historical information — while keeping clinical judgement with qualified healthcare professionals.
TECHNOLOGY SHOULD FIND THE EVIDENCE — NOT MAKE THE DIAGNOSIS.
Every significant automated alert or summary should be traceable to its original source so that mistakes can be identified and challenged.
WHY HAVE I CHANGED THE PETITION RATHER THAN STARTING AGAIN?
Because the purpose has not changed.
Faye’s Law has developed as patient-safety policy has developed.
The people who originally supported this campaign signed because they believed patients should be seen as whole human beings rather than isolated appointments, symptoms or labels.
That principle remains at its heart.
What we now have is a clearer proposal for how that principle could work alongside reforms already happening.
I believe that is responsible campaigning.
When something positive is introduced, we should recognise it.
When somebody else has already fought successfully for part of the answer, we should not claim it as our own.
We should build on it.
And when Government is already developing the infrastructure capable of making another part of our proposal possible, we should speak while there is still an opportunity to influence what that infrastructure becomes.
A PATIENT IS MORE THAN TODAY’S APPOINTMENT.
That sentence remains the heart of Faye’s Law.
History matters.
Patterns matter.
Objective evidence matters.
Vulnerability matters.
Follow-up matters.
And the person behind all those records matters.
We cannot change what happened to Faye.
But perhaps her story can help change what happens to somebody else.
If you signed the original Faye’s Law, please read the updated petition and, if you continue to support what we are asking for, please share it again.
Every signature helps us show Government that people want a healthcare system capable of seeing the whole patient and the whole story.
ONE PATIENT.
ONE CONNECTED HISTORY.
ONE SAFETY NET.
💜 FAYE’S LAW — HISTORY MATTERS
Connect the Pattern. Protect the Patient. No More Labels.
Thank you for standing with us.
Michelle 💜