Stop Insurance Companies from Denying Gene Therapy for Duchenne Patients


Stop Insurance Companies from Denying Gene Therapy for Duchenne Patients
The Issue
My son, like many others, suffers from Duchenne muscular dystrophy. This devastating disease affects 1 in every 3,500 live male births worldwide (source: World Health Organization). Despite the existence of promising gene therapy treatments that could significantly improve his quality of life and slow down the progression of the disease, our insurance company has denied coverage.
This is not an isolated case. Across the country, insurance companies are denying access to gene therapy for Duchenne patients. This denial is not based on medical advice but rather on financial considerations. It's a heartbreaking reality that families like ours face daily.
Gene therapy has been shown to be a potential game-changer in treating Duchenne (source: The New England Journal of Medicine). It's time we demand that insurance companies prioritize patient health over profits and cover these potentially life-altering treatments.
Join us in urging lawmakers to pass legislation ensuring all insurance companies cover gene therapies for boys with Duchenne muscular dystrophy. Sign this petition today and help give boys like my son a fighting chance at life.
49,779
The Issue
My son, like many others, suffers from Duchenne muscular dystrophy. This devastating disease affects 1 in every 3,500 live male births worldwide (source: World Health Organization). Despite the existence of promising gene therapy treatments that could significantly improve his quality of life and slow down the progression of the disease, our insurance company has denied coverage.
This is not an isolated case. Across the country, insurance companies are denying access to gene therapy for Duchenne patients. This denial is not based on medical advice but rather on financial considerations. It's a heartbreaking reality that families like ours face daily.
Gene therapy has been shown to be a potential game-changer in treating Duchenne (source: The New England Journal of Medicine). It's time we demand that insurance companies prioritize patient health over profits and cover these potentially life-altering treatments.
Join us in urging lawmakers to pass legislation ensuring all insurance companies cover gene therapies for boys with Duchenne muscular dystrophy. Sign this petition today and help give boys like my son a fighting chance at life.
49,779
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Petition created on March 20, 2024