
I'll keep exposing it and screaming injustice. We had to opt out of employer-sponsored coverage because the employer refused to allow us the right to protect our child's life-saving medication from temperature extremes. This isn't just happening to my family. This is happening to families and patients across the US. At some point, employers should be held accountable.
Let me know do you believe this is fraud or a scam.
Questions you should ask your mail order pharmacy to determine if they will handle your medications safely.
#1. What is the temperature that my medication will be exposed to? They may try to give you the outside air temperature and ignore the temperatures of the hot truck or mailbox. Don't allow them to not confess that the trucks and mailboxes reach much hotter than the outside air. Trucks and mailboxes can reach 120-170 degrees on a 90 - 100-degree day.
#2. What is the stability of your medication? Sometimes, the mail order pharmacists will not want to take the time to see if there is additional stability studies showing if the medication is safe in freezing temperatures or temperatures of 120-170 degrees. Most medications do not have stability studies showing medications are safe at those extreme temperatures. You deserve the right to know. Ask them to contact the manufacturer and find out what the exact stability is. If they refuse, there are a few pharmacists who support us and can help outreach to the manufacturers.
Document, document, and document. Before recording know the recording laws in your state and their state. We need to expose the deception and responses that you're receiving upon calling.
Certain state boards are trying to refuse us the right to take this issue to them because they say few file complaints. If patients are deceived into not knowing that their life is at risk due to improper storage of meds, they will not be filing complaints. Also, the State Boards are aware of the NBC article that proved that most don't know where to complain to, and State Boards know that patients may fear retaliation from the one pharmacy they are allowed to use if they do complain.
It shouldn't take complaints for the State Boards of Pharmacy to do their jobs. As they are well aware these trucks and mailboxes reach 120-170 degrees, and for them to do their jobs and protect patients like my son. The State Boards know that medications exposed to high temperatures as those exposed during shipping can cause medications to break down and not only lose potency but have earlier expiration dates than on the bottle, increase in toxicity, or increase in carcinogens.
I really don't know if I'd have the hope that I have today without our many supporters on this petition. One day, we will see justice and change.
Thank you,
Loretta Boesing
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loretta@uniteforsafemeds.com